Midweek Magic – Christmas Inspiring Blogs for You!

Christmas Blogs for You

The festive season always starts for me with the traditional carol service held by my old school in the local parish church.  We old boys and girls gather in a local hostelry before and enjoy some Christmas nibbles and beverages before heading over to join in with Silent Night and listen to the young choir carolling.  There is something magical about the candle lit church and the smell of mulled wine and spice in the air.  With every year it becomes slightly harder to get myself there, slightly less predictable to know if I will be physically able to make it or if fatigue and pain will have laid me out.  I made it last week!  Never mind that the old neck decided to spasm or that by the end of the service my ear was nearly touching my shoulder, forget the howling wind and heavy rain outside the doors, it was time for Christmas to begin.

Christmas lights

 

The blog posts that I have found have actually been sitting on this page for a week now, but other events overtook – some planned, others not so much.  You might have noticed a little political debate surrounding the UK in recent months and a small matter of a General Election, but much more important in this house was the Christmas drinks event that fell on the same date.  Several months back, definitely before the date was stolen for the election, the young engineer and his business partner booked a new bar in Convent Garden for their second Christmas party.  You may recall that the lovely girl did some work experience with her big brother over the summer, but she was shocked to receive an invite to said party……we all received them, a dead give away that they came from the business partner and not the young engineer.  He would not want parents and grandparents arriving and getting carried away with the festivities!  Or so he says….

The family suffered a huge loss on the morning of the 12th December as our old dog took a turn for the worse and had to be taken to the vet for the last time.  He has been my constant companion since chronic illness struck and I am heartbroken…..another post for another day.  A trip to London that evening was not something any of us wanted – it was windy and raining, and Mum and I needed waterproof mascara for other reasons.  The whole country was waiting with baited breath as the election exit polls started to emerge and we were looking for our parking spot in a Covent Garden car park.  The weather was playing havoc with my pain – my back and leg nerve pain was screaming at me and my shoulders felt like something was grating away the bone each time I moved my arms.  Naturally the wine bar was in an old building and the young engineer had booked the basement bar – the barman was convinced that he was going to have to carry this middle aged woman down the stairs, whilst hubby suggested an inflatable slide like they use on aircraft.  But I shut them all up and slowly (I like to think of it being dignified!) I made my way down the stairs as my Dad waited at the bottom to catch me. No, that did not fill me with confidence.

Party pineapple

A good time was had by all and yours truly managed the whole evening without shedding a tear – even when my boy gave me a hug.  Please note – this is a very rare occurrence!!!  The music was loud and sent magnificent vibrations through my titanium spine and spinal cord stimulator – I still can’t decide whether it was a pleasant or horrendous feeling – the food was great and the cocktails were exorbitant (price!).  We met the rest of the Risk Ledger team, which has increased to 8 this year and were amused to hear what our boy is like as a boss.   We, the parents and grandparents, did a good job at being the embarrassing family – we are all quite loud, sociable and will chat to anyone and are very different to the young engineer!  I think that several of his friends/employees were surprised that hubby and I aren’t tech geeks -no he doesn’t get it from us.  It would have been very easy to stay at home for so many reasons, but I am  glad to have pushed through the pain and the grief to have been able to come away a very proud mum – just don’t tell him that I said that!!

Claire & Daniel

My pick of inspiring blogs are all festive themed – some of them full of cheer, others about coping with this time of year as it is not great for us all.  So grab a cuppa, sit back and enjoy!

https://ourfavouritejar.home.blog/2019/12/05/a-christmas-extravaganza-at-waddesdon-manor/

https://www.achronicvoice.com/2019/12/06/holiday-checklists/

https://coffeeandfairylights.com/christmas-gift-guide-for-fibro/

https://kimyoung.ca/reduce-your-holiday-stress/

https://www.theblessedmamaof4.com/christmas-paintbrush-ornaments/

https://www.ajourneythroughthefog.co.uk/2018/11/for-many-people-the-festive-season-is-not-a-time-of-celebration/

https://trippingthroughtreacle.com/chronic-illness-christmas-ghosts/

https://managingchronic.com/home-life/2019-holiday-gift-guide-chronic-illness/

https://beinganne.com/2019/12/review-christmas-in-lantern-square-snowfall-in-lantern-square-by-helen-rolfe-hjrolfe-orionbooks-newrelease-romance-series-lanternsquare/

https://anhistorianabouttown.com/history-of-christmas-markets/

Please make a blogger’s day and comment, like and share posts!

Have a great weekend,

Claire x

A Little Winter Magic and some Chronic Illness Reflections with Inspiring Blogs for You!

Hello PainPals!  I did start an Inspiring Blogs for you last week, but life seemed to get in the way.  This leaves a couple of weeks in the PainPals house to catch up on, yet the brain fog is leaving me struggling to remember what happened yesterday let alone last week – but I will try.

Winter Magic & Chronic Illness Reflections

 

When chronic illness (CI) slowly creeps up on you, often the “patient” and the “nearest and dearest” don’t notice how life has changed because we are all too busy living it.  A couple of weeks back I was very proud that I managed to successfully make a 50th birthday cake for a friend’s Silver and Gold party.  The cake took all week as I painstakingly cut out icing stars, painted them, baked the cake,  iced the cake – taught hubby how to ice the cake! – and decorated it.  I am so slow now as my hand frequently spasms (when painting on hundreds of gold “stars”) and the dislocated right arm is not conducive to handling a heavy icing rolling pin! But I did it.

 

Dancing queen

 

The next challenge was to get to the actual party.  Before CI, dressing up in silver and gold sparkles and spending my night on the dance floor being the dancing queen would have been a great night out.  With CI it can be a struggle to actually get out in the evening before fatigue sets in, but an extra strength is needed to overcome not just the physical limitations but the psychological ones too.  Before I could get through the door of the party venue in my electric wheelchair, I had to break through the barriers that my own brain was throwing up as I came to terms with no longer being an able bodied dancing queen.  The words drowning queen often spring to mind as the body won’t behave in the way that the head wants it to.  I still struggle, yet live this daily – and it soon became clear that it wasn’t just me having to come to terms with these changes.

 

underwater photography of woman
Photo by Engin Akyurt on Pexels.com

 

Several different friends asked if I had seen another lady – a mum from the primary school, where we all used to meet at the school gates when our now young adults were little. The interest here was that she was walking with a stick and “something” had happened to her – they wondered if I knew what?  I didn’t know, but immediately recognised that there would be people looking at me in the same light “last time we saw Claire she was up and mobile – for some it would have even been pre walking stick – what has happened that she is in now in a wheelchair?”  But for anyone who hasn’t witnessed that event or that general decline, so often they feel they can’t ask.

 

ask blackboard chalk board chalkboard
Photo by Pixabay on Pexels.com

 

When this other lovely mum and I “bumped” into each other at the edge of the dance floor, I think that we immediately recognised kindred spirits and were also not afraid to ask “what happened?”.  She told me that she had suffered a stroke in her forties, I told her about my back surgeries and downward spiral with Ehlers Danlos Syndrome and chronic pain.  We discussed wheelchairs! When I later said to my friends that others (who hadn’t been with me over the last 10 years) would be wondering about me in the same way that my pals had mentioned the other lovely mum, at first they were taken aback and then realised this was true.  People who were not in the know were not “gossiping” about us, but rather were surprised to see such a huge change and I think this makes us think of our own frailties and indeed mortality. But I can assure you – a good time was had by all!

 

 

There has been a momentous event in the household – the young engineer has moved out! Hang out the bunting, change the locks……no, only kidding but I have to say that the household has used far less pasta and tuna in the weeks that he has been gone.  He has moved with a couple of friends into a swanky pad alongside the Queen Elizabeth park – home of the 2012 Olympics – in east London.  I did remind him that the new bedding would not only have to be put on the bed but also taken off the bed and put in the washing machine…..that gizmo sitting in the corner of the bright white new kitchen.  I wonder how long it will stay looking that way?!  This place is so smart that there is even a posh onsite gym for residents!  I am happy to report that he has not returned to the wrong address – at least not to this one, his better half may beg to differ!  Hubby and I have been sure to book our Christmas dinner at his place (we might be treated to tuna pasta).

 

 

The weather in the UK has been truly wet over the last fast weeks and with the changing of the clocks winter is arriving.  I have been reading some great wintery posts over the last few weeks so thought that I would share some before we enter December. So sit back with a cup/glass of something delicious and enjoy!

https://www.brainlesionandme.com/reasons-for-loving-winter/

https://chronicpainfighter.com/are-weighted-blankets-helpful-in-fibromyalgia/

https://chronicallyresilient.org/7-ways-to-beat-seasonal-affective-disorder-this-winter/

https://jademarie.co.uk/emetophobia-winter-coping-techniques/

https://crookedbearcreekorganicherbs.com/2019/11/25/the-herbs-and-spices-of-thanksgiving/

https://thecuriousfrugal.com/fall-soups/

http://www.paperseedlings.com/2019/11/wasted-snowflakes.html

https://www.momentsofpositivity.com/2019/11/believeing-in-yourself.html

https://mcwglenys.blogspot.com/2019/11/sex-isnt-everything.html

https://bysarahwhiley.wordpress.com/2019/11/26/peace/

Thank you for reading and please share/like/comment on the posts that you enjoy.

Have a great weekend,

Claire x

Falls and Bruises, Mixed with Magic – Inspiring Blogs for You!

It feels like forever since I last posted Monday Magic…..in fact writing still remains a bit of a challenge with the dislocations and whatnot getting the better of me.

Monday Magic Inspiring Blogs for You! w:c 14th Oct

I did learn a valuable lesson last week.  Hubby was out coaching year 6 football (10-11 year olds!) so I was home alone with our 17 year old dog.  IMG_0654Before the front door slams I always hear the same phrase leave hubby’s lips “Don’t do anything stupid!” – I mean as if!!!  I had helped the dog up – he can no longer stand unaided which prove problematic for yours truly – and then headed for his pottery water bowl.  “That looks a bit manky, Sam, I’ll get you some fresh water” :just as I was crossing the kitchen, heavy bowl in hand and stretching the ligaments to the limit – one hip decided to go disco dancing all by itself. Pop!  Out of socket it leapt and left its owner leaping across the floor, skidding in the dog’s manky water and the owner nose diving toward the hard tiles of the kitchen floor.

 

You know that feeling when something happens in slow motion, yet there is nothing you can do to prevent the outcome?  After face planting the ground I slowly attempted to move, gently checking for injuries.  Who am I kidding, everything hurt like crazy, most joints had popped out by this point and I couldn’t have told you if anything had broken or not.  Could I stand up? um…..Could I sit up?…..maybe, if I could manoeuvre myself without using arms or legs.  No that really wasn’t going to work, particularly as there was water all around me.  After heaving myself up the kitchen cupboards into a quasi seated position, I managed to use my mobile phone which happened to be tucked in my pocket and ring my parents, who live up the road.  Hurray – they were home and came straight down, but I was still soaked through to my underwear by the time they arrived and of course Dad laughed. I can see the funny side – the dog had scarpered and was waiting in the hall for them, whilst I was spread eagled across the kitchen floor surrounded by water and smashed crockery. What a sight to see!

Slump

 

Anyway my lesson was that when the family “fuss” and tell this old know-it-all that I must behave and always carry a phone when home alone……they are right.  In fact I think a key box may be a good idea – not for when the lovely girl or the young engineer forget their keys – but in the event that I have to “phone a friend” for help in the future.

The bruises have been monumental down my legs, side and arms – the whole Ehlers Danlos easy bruising skin has been in full view, but they are now fading.  Our dog is the proud owner of a brand new PLASTIC blue water bowl.  Hubby has managed to get me to the theatre and on a university art school open day with the lovely girl – with lots of velcro fastenings and tapes to keep everything in place.  But as you can imagine the call before the front door slams has now become “I mean it this time, Claire – don’t do anything stupid!!”

IMG_0658

I have read numerous blog posts over the last few weeks whilst nursing my sore body and have picked a few favourites that I think are inspiring.  So sit back with a cuppa and enjoy!

https://rachelintheoc.com/2019/09/how-boundaries-can-help-us-avoid-burdens-by-guest-judith-staff-jcstaff_/

https://weareholistic.wordpress.com/2019/10/07/2811/

https://despitepain.com/2019/10/10/are-online-support-groups-helpful-for-people-with-pain/

https://morethanaspoonie.blog/2019/10/10/the-depression-greyzone/

https://ritubhathal.com/2019/10/08/when-youre-still-waiting-what-to-do/

https://ourfavouritejar.home.blog/2019/10/08/10-things-to-know-about-hospice-care/

https://keirancrying.com/2019/10/07/home-is-wherever-i-live-my-tips-for-moving-house/

https://the-tea-chest.blog/2019/10/13/%e2%99%a5-charity-tea-%e2%99%a5/

https://kateonthinice.com/planning-for-happiness-with-a-good-plan/

https://www.morganprince.com/2019/10/self-care-activities-10-minutes.html

Please comment, like and share these posts!

Have a great week,

Claire x

P.S. I am ok and live to fight another day!!

Monday Magic Inspiring Blogs for You! 14th Oct

 

Midweek Magic – and some Inspiring Blogs for You!

It has been a momentous week for several reasons.  Hubby and I were planning a trip to visit his parents and true to form I was so unwell at the beginning of last week that it was looking like we would have to cancel….yet again.  I am ashamed to say that it has been over 3 years since I last managed the 4 hour journey, in fact it was when I stayed with them after my spinal cord stimulator surgery.  Please believe me when I say that it is not that I don’t love my in laws but rather that every time we have planned a visit my body has disagreed.  There have been shoulder dislocations, POTS flares and neck problems – not forgetting that my chronic back pain prevents me from sitting still for long periods.

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Midweek Magic Inspiring Blogs for You! 22 Aug

Something that goes hand in hand with a chronic illness is unpredictability and then the inability to make plans – and the guilt at having to break plans.  So when Tuesday morning dawned and I couldn’t sit upright, I felt that I had let everyone down yet again.  Wednesday arrived and we decided to give it a go.  The electric wheelchair was hoisted into the car, I was settled in surrounded by cushions, an Audible series was downloaded and we were away.  It wasn’t an easy journey, but I made it even if I did have to swap one sofa for another!

IMG_2418I had a different furry friend to keep me company following a faint – Lexi the pug – and I enjoyed the freedom that my electric wheels gave me during a trip into Hereford city centre.  My driving skills are improving!  IMG_0605With the weather breaking in the UK my symptoms are more manageable now and the fainting is under control – would you believe though that the wet, clammy, stormy weather causes as many problems with this body barometer of mine as the really hot days?!

 

 

 

 

 

This week the lovely girl started work experience with big brother, the young engineer.  How I wish I could have been a fly on the wall!!  He wants her to help with design elements of…….um, I wish I knew or understood!

5159516f-3d4b-46f4-b279-e449f74c120c

It seems to have gone well, but she laughed in the change in her big brother as soon as they got home reverting from boss to twit!  The whole family has enjoyed playing with my latest toy that arrived this week – a recliner chair which has already saved me during a POTSie episode today as it will lay me almost flat.  The young engineer was so excited by the integral USB port that he almost face planted on the floor when lifting himself to standing too far!! I will give you a chair review when I have had it for a couple of weeks.

So back to business and sharing some great blog posts with you.  I have found a couple of posts about writing – for lovely Ritu the publication of her novel is in sight (if it is as good as her cakes it will be fab) – tips to boost your family’s health, and some lovely posts from chronic illness pals.  So sit back with a cuppa and enjoy!

https://www.therollingtwenties.com/2019/08/love-to-write-part-3.html

https://ritubhathal.com/2019/08/20/when-it-all-gets-a-bit-too-much/

https://livelovetexas.com/homemade-apple-cinnamon-sugar-scrub-recipe/

https://hughsviewsandnews.com/2019/08/12/blogging-with-a-little-help-from-your-friends-a-guest-post-by-sherri-matthews-writersherri/

https://www.realisticoptimism.org/post/can-exhaustion-work-for-you

https://www.angiecruise.com/how-to-boost-your-immune-system-naturally-before-school-starts/

https://crazychroniclife.wordpress.com/2019/06/25/a-pep-talk-to-myself-and-anyone-else-that-needs-it/

https://bucketsoftea.co.uk/happiness/five-things-to-put-a-real-smile-on-your-face/

https://chronicrants.com/2019/08/21/would-it-be-different-if-i-werent-a-woman/

https://positivelyrachel.com/2019/08/14/mindful-impact/

Please make someone’s day with a like, a comment or a share if you enjoy their post!

Have a great week,

Claire x

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Midweek Magic Inspiring Blogs for You! 1 22Aug

 

 

 

 

Midweek Magic – Inspiring Blogs for You!

Inspiring blogs has slipped to midweek again, but as I had already found the posts I really wanted to share them.  I didn’t get near my laptop on Monday as hubby was filling out the dreaded tax return online – this meant he had 2 laptops and the ipad spread out in front of him and he doesn’t even have a regular job!  Who knew that the tax office struggles to cope with zero hour contracts?!

Midweek Magic 16th May

The politics student has returned to university this week, but not before a trip to A&E to check out his knee.  I think that I mentioned last week that he had dislocated and then relocated his knee – the pain and terrible cracking continued and we were advised by the GP & a physio friend that he needed to go to hospital to have it checked.

Cartoon knee
image courtesy of clipart-library.com

So I duly packed off hubby and son, with flasks and sandwiches…..no, I didn’t but probably should have done as they were waiting for the best part of last Friday.  The wait we could understand – there were a lot of emergencies and the waiting room was full – but it was a shame about the attitude of the nurse specialist.  Son and hubby explained the problem and were slightly taken aback by the tone used to tell them that A&E is for really sick people!

They explained that the GP had sent them and were apologetic for taking up time…….but where does someone go with this sort of problem? No you are not seriously ill, but you do have something wrong that your GP can’t deal with……no wonder so many of us chronic bodies avoid going to hospital!

Enough moaning, yours truly has had an eventful week and managed several outings between the bouts of neck pain.  A curry with friends – a fellow zebra who made contact via this very blog, another reunion at my old school as Chair of the alumni group – a  group only 2 years behind me so I knew them which was great, and a National Theatre Live production of All My Sons at our local cinema.  If you get the chance to see this it is fantastic – Sally Field, Bill Pullman, Colin Morgan (aka Merlin!) and Jenna Coleman. Getting out of the cinema was a challenge as although the spinal cord stimulator helps with the pain it doesn’t help with the dead leg and immobility after sitting.  Good job I have a husband, eh? But it is no wonder I can hardly move today and am happy I have a new furry pal come to stay for a couple of days…….meet Jensen!

The posts encompass various things that have been happening this week – Mother’s Day in the USA (read Willow’s beautiful poem), ME/CFS awareness and mental health awareness. May is the awareness month for many conditions and I will put up a listing on another post – I don’t want to miss anyone out.  Don’t miss the inspiring ladies featured at Tea and Cake for the Soul. So grab yourself a drink, sit down and relax!

https://lifeattheintersection.com/2019/05/06/who-are-the-millions-missing/

https://willowdot21.wordpress.com/2019/05/12/song-lyric-sunday-mothers/

https://www.jolinsdell.com/2019/05/book-review-printed-letter-bookshop-by.html

https://pamecrement.com/2019/05/10/before-she-was-your-mother/

https://ablondeinthecrowd.wordpress.com/2019/05/13/confidence-help/

https://myloudwhispersofhope.com/2019/05/13/its-mental-health-awareness-week-in-the-uk-may-13th-19th/

http://jademarie.co.uk/positive-body-image/

https://father-hood.co.uk/2019/05/13/parents-subconsciously-sexist/

https://teaandcakeforthesoul.wordpress.com/2019/05/13/menopause-fab-at-50/

Please share some love and comment, like and share your favourites!

Have a great week,

Claire x

16th May MM

 

 

Midweek Magic – Inspiring Blogs for You!

Did you think that I’d forgotten about “IBFY” this week?  I had a blog tour spot for Monday and didn’t want to overdo the musings, so thought a midweek spot might do nicely to share these posts that I had found for you.

Midweek Magic Inspiring Blogs for You!

We survived our week with hubby away…..just!……..and more importantly he survived an activity week with 64 ten year olds.  The weather was really kind to them and he returned looking more like he had been to Spain rather than to Kent, the sun tan covering any signs of exhaustion!  At this end I continued to share drugs and my CBD vape with the politics student as he nursed, and continues to, his dislocated knee; there was one faint/fall/dislocation and only one set of plans cancelled. Not too bad going!  The lovely girl even managed to get out of bed every morning to do her paper round without her dad dragging her out of bed.

photo of person holding alarm clock
Photo by Acharaporn Kamornboonyarush on Pexels.com

As hubby arrived home, the eldest and a group of friends headed off for Snowdonia, North Wales….to go camping!  Pitching a tent in the dark on one of the coldest nights this year – not my idea of fun and I think the young engineer’s better half would have preferred a B&B.  They actually had snow and built the snowmen to prove it!

IMG_46612A9C68B1-1

Meanwhile yours truly now has the results of my neck x ray and unsurprisingly it shows disc and degeneration problems in both the cervical and thoracic spine.  “Where shall we refer you?” pondered my GP……um, how about somewhere that can arrange new bodywork!  I think that my neurosurgeon might go off for a very long holiday when he sees my name on the Back Pain Clinic patient list again.  At the moment I have no expectations and want to avoid more surgery – be it on my shoulder or my spine……time will tell!!

 

plant branch spice alluaudia procera

 

I hope that you enjoy this mix of blog posts that I have found this week – I have finished with a short video to highlight pain in Ehlers Danlos Syndromes Awareness Month.  So sit back with a favourite cuppa and happy reading!

https://irishtwinsmomma.com/postpartum-depression/

https://sybrinapublishing.wordpress.com/2019/05/03/my-review-of-fatality-in-f-by-alexia-gordon/

https://www.musthikemusteat.com/lets-catch-up/

https://melissavsfibromyalgia.com/2019/05/02/my-gut-friendly-coffee-routine/

https://fullofgritandgrace.com/2019/05/01/mental-health-chronic-illness-why-its-critical-we-discuss-them-together/

https://michelevosberg.com/2019/04/30/what-are-you-afraid-of/

http://anordinarymom.site/who-are-you-forgetting-to-invite/

https://myideaofparadiseetc.blogspot.com/2019/05/mothers-day-around-world.html

https://channongray.com/kindness-an-elixir-for-body-and-soul-alike/

https://themighty.com/video/painting-our-pain-ehlers-danlos-syndrome/?utm_source=newsletter_eds&utm_medium=email&utm_campaign=newsletter_eds_2019-04-24&jwsource=cl

Please like, comment and share!

Have a great week,

Claire x

PS: Happy Birthday, Dad!

 

 

May Day Magic – Inspiring Blogs for You!

Another week and here we are in May – so it seems perfect to have a little May Magic as Monday came and went this week!  It has been a perfect day in south London – sunny, bright and mild – what better way to start the month.

May Day Magic 1

Hubby is away this week with the year 5 classes for an “outward bound” style activity holiday – or to put in in layman’s terms…..archery, hiking, zipwires, pylon climbing and more with 60 nine and ten year olds.  Of course hubby has the boys’ dorms under his care after the activities finish for the day, and his comment to me on their first night was “I knew it was going to be challenging when we started our first task of bed making and one of them actually said ‘what’s a duvet?”!!”.  They usually arrive home with damp kit, a bit smelly and absolutely shattered…..and that is just the adults.  This year they have a bank holiday weekend to recover and I know that the adults will appreciate the extra day for R&R.

brown work boots
Photo by Lum3n.com on Pexels.com

This leaves me at home with my offspring.  The eldest has just returned from a surprise birthday weekend away in Dublin – lovely treat from his better half – and is now looking forward to the first package in his gift from us…..a subscription to Pong Cheese Club.  Watch this space for taste testings!  My main carer for the week – the politics student – is nearly as much help as a chocolate teapot as he has succumbed to Ehlers Danlos Syndrome and dislocated his knee during a footie kick around.  He managed to relocate everything to the correct position – you get used to doing this with EDS – but now cannot walk, despite my best efforts with tubigrip, a brace, crutches and painkillers.  We must have made a strange looking team as we put the rubbish out today…..him on crutches, me in a collar and sling – there is definitely a joke in there somewhere about the number of dislocations in a household of zebras!!! (Why the zebra?)

images (4)

 

I started saying what a beautiful day it has been and this led me to a big achievement, namely my first solo trip out in my electric wheelchair.  It has been a while coming, but today I was due to visit my friend for a haircut and whilst mum waled there with me, I came home alone.  I know that it sounds crazy for a woman of a certain age to be excited to get home under her own steam, but having that little bit of independence back after so long was both exciting and terrifying in equal measures.  Fingers crossed that over the next few months my joystick control and pavement driving improves – it is very hilly here, but I have good brakes!!

1069398__safe_solo_oc_simple+background_transparent+background_earth+pony_wheelchair_handicapped_artist-colon-sketchydesign78_oc-colon-melody+shine

 

There is a great selection of spring blog posts here and one in particular is close to my heart, as I was a specially trained head and neck cancer nurse in a previous life.  The final listing is from Angela, and I think will strike a chord with all bloggers as she explains to her nearest and dearest that it is ok either way if they read her writing or not.  So sit back with your favourite tipple and enjoy!

 

https://youcanalwaysstartnow.wordpress.com/2019/04/15/soul-sunday-i-did-it/

https://fullofgritandgrace.com/2019/04/20/self-care-ideas-that-are-also-earth-friendly/

http://www.denysewhelan.com.au/denyse-blogs/new-normal-for-me-with-head-neck-cancer-43-2019/

https://crunchandcream.com/single-serving-brownie-in-a-jar/

https://retirementtransition.blog/2019/04/22/how-do-you-listen-respond/

https://www.crestingthehill.com.au/2019/04/where-to-from-here.html

https://veroniiiica.com/2019/04/29/ten-odd-things-i-do-with-double-vision/

https://tayler.silfverduk.us/the-best-way-to-heal-your-gut/

https://jboccupationaltherapy.co.uk/hypnot-session-1/

https://angelanoelauthor.com/inspiration-motivation/read-this-or-dont-either-way-i-still-love-you/

Please share some love and comment, like and share these posts.

Have a great week,

Claire x

May Day Magic

Monday Magic – Inspiring Blogs for You!

It is Easter Monday – hope you have had a great holiday weekend!  The weather has been just spectacular here in the south of Britain – the young engineer and friends have had a balmy weekend on Hayling Island (just off the south coast, near Chichester) where they donned shorts and enjoyed temperatures on the beach more akin to Club Med!

Monday Magic Inspiring Blogs for You! 22 April

A huge event for me this week was finally being visited and assessed by a community Occupational Therapist.  I can’t even tell you how long I have been on the waiting list, it has been that long!!  A big plus was that said OT, Johnny, has had one previous patient with EDS so he was familiar with the condition and knew a little about POTS too.  What a difference it makes when you don’t have to teach the medical professional from the word go…..although the spinal cord stimulator was something new to him.  It seems that maybe I am more in need than I thought – although the kids would tell you I am needy!! – or rather I might be deemed eligible for more help than I had anticipated.  Apparently it is possible for the assessment to recommend a need for a Japanese style loo – you know, one that washes and dries before it flushes (it may even play music….joke!!).

bathroom cabinet candles faucet
Photo by Joey on Pexels.com

So if the OT recommends it AND the local authority agree it, I might be able to get my electric wheels out of the house via the front door in the not too distant future…..the dog will appreciate a ramp, and a walk in shower to replace the bath and a stair lift might be on the cards too.  Watch this space!!

Chocolate has invaded the house this weekend.  The kids might be young adults now, but they have still been given a “healthy” supply of chocolate in the shape of eggs, bars and rabbits.  I have a complete new shelf of ornaments!

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The blog posts for you this week include a mixture of spring and Easter posts, recipes, Earth day and health topics. Grab yourself a cuppa, sit back and enjoy!

https://www.abalancedbelly.co.uk/glutenfreeeastercakes/

https://www.style-yourself-confident.com/spring-lifestyle.html

https://www.baileyleah.com/2019/04/mini-egg-cheesecake.html

http://www.kayleighrvr.co.uk/2019/04/what-i-wish-i-knew-when-i-was-younger.html

https://darlenefoster.wordpress.com/2019/04/12/understanding/

https://decorcraftdesign.com/2019/04/15/love-our-earth-day-in-pillows-tote-bags-and-t-shirts/

https://www.chronillicles.com/disability-blogger-award/

https://dinosaursdonkeysandms.com/yoga-with-dizzy-dizzys-delightful-yoga-poses/

https://notesfromtheuk.com/2019/04/19/is-an-excess-of-money-clogging-up-your-life/

https://chronicallydrained.info/chronic-asthma-allergies-lupus-hashimotos-diabetes-and-more-all-lead-to-a-lifetime-of-medication-for-kristin/

Please remember to comment, like and share posts you enjoy – voting closes for the Annual Bloggers’ Bash Awards this week, so it would be great if you would consider voting for me in the Best Lifestyle Blog and many other super bloggers – vote here.

Have a great week,

Claire x

 

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Monday Magic – Inspiring Blogs for You!

Here I am, already running a day late this week – but as I had already found some blog posts for Monday Magic I thought I’d go ahead and share them today.  The shoulder and neck are feeling a little easier and the amount of opioid floating around my system is considerably smaller so I can put pen to paper…….well fingers to laptop!

Pin for later

Monday Magic Inspiring Blogs for You! 15 April

 

So what have we been up to in the PainPals house this week?  I mentioned in my last post that hubby made a trip to his parents and left me in the not so capable hands of the oldest and youngest children/young adults!  We survived to tell the tale although the crumbs in the kitchen drove me to distraction.  On Saturday the three of us joined my parents and various other cousins for a family lunch and I was so pleased to actually make it there.  The most exciting thing was being told that my cousin and her partner have booked to be married next year on a cruise aboard the Queen Mary to New York.  The funniest thing was that her other half made an announcement, whilst she sat there all embarrassed saying that “it really isn’t a big deal”…….well in that case cousin, I will go to New York on the Queen Mary with your fiance, and then on to Washington and Niagara Falls!!  Ha, ha, ha.  She doesn’t want to make a big fuss at their “time of life” – mid 50s and 60.

Rachel and Claire
Having fun with cousin Rachel last year!

 

The young engineer was slightly on edge during said meal as hubby was home, but he was taking advantage of a friend’s season tickets to a London football match (Fulham v Everton for you footie fans!) and had taken the young engineer’s better half with him.  Would dad show him up? Would he say something really outrageous?  No, son – they are both football fans (both support Chelsea actually!) and will have far too much to talk about that will not include you!! Our friend was in Paris supporting his boys in the marathon and was gutted that having lost several matches in a row, Fulham actually won!!

Fulham cake
Fulham Football Club cake that I made a couple of of years ago

The house is back up to full capacity as the politics student arrived home last night for the Easter break – after false start at the weekend when he was struck down with a migraine (he promises migraine and not hangover!) after finishing an essay….early.  I haven’t investigated the bags yet, but there is only so much dirty washing that can be transported on a coach trip…..I think that I might leave a trail of arrows to the washing machine.

I hope that you have had a good week and are ready to sit back with a cuppa and enjoy some fantastic blog posts.  The beef and ham cheese roll looks amazing, “Getting Older” made me laugh out loud and Christie Hawkes’s post really gives food for thought.  Enjoy!

https://italiangoodness.net/2015/02/15/beef-and-ham-cheese-roll/

https://hopehikesandhealing.com/2019/04/11/how-to-be-with-the-suffering-of-loved-ones/

https://www.niamhgabrielle.co.uk/emergency-red-cord-cards-by-euans-guide/

https://meditationsinmotion.wordpress.com/2019/04/14/fixing-the-fixer/

https://www.jtouchofstyle.com/dementia-training-for-caregivers-jill-lorentz/

https://ohmrstucker.com/getting-older/

https://msbrensays.com/2019/04/11/just-when-you-think-you-cant-you-can/

https://sewprettyinpink.com/2019/04/16/a-unicorn-onesie-for-recovery/

https://christiehawkes.com/the-power-of-words-and-mindful-speaking/

https://www.momshomerun.com/2019/04/wherever-i-run-there-i-am.html

 

Please like and share the posts that you love – make a blogger’s day……and if you would vote for me in the Annual Bloggers’ Bash Awards you would make mine!  Please vote here.

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Have a great week,

Claire x

 

I’ve been nominated! Best Lifestyle Blog – Voting Open! #AnnualBloggersBashAwards

It has been several weeks since I was here writing – another dodgy dislocation of both shoulder and neck leaving me out of action.  I feel so guilty that I have been unable to visit my lovely in laws once again and hubby had to head of for Hereford without me. He left me in the “capable” hands of the lovely girl and even the young engineer has worked at home for a couple of days – I think a fall last week freaked him out and certainly did the dog who broke my fall!  Fear not, old Sam is fine!

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During my blogging silence I was delighted to receive an email telling me I have been nominated for an Annual Bloggers’ Bash Award (ABBA) – hubby and I attended our first bash last year, met some wonderful bloggy pals and have already bought our tickets for the 5th Annual Bloggers Bash in June.  But I never dreamt that I would make it onto the nominee list – thank you!

I am honoured to be nominated and to be in the company of some fabulous writers!

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

I have been nominated in the Best Lifestyle Blog category along with some seriously good writers.  Although my blog has a chronic illness focus, I am also keen to appeal to my readers who don’t have health conditions and sometimes getting the balance right is tricky.  So to be recognised as  a lifestyle blog is praise indeed.

It would be wonderful if you would consider voting for me – the voting is now open!  Please take a look at all the blogs and categories and vote here – Annual Bloggers Bash Awards

Voting closes at 9pm (BST) on 24th April, 2019.

Monday Magic normal service will resume next week and I have some great reviews to share (written in my head!!)

Have a great weekend,

Claire x