Midweek Magic – Inspiring Blogs for You!

Inspiring blogs has slipped to midweek again, but as I had already found the posts I really wanted to share them.  I didn’t get near my laptop on Monday as hubby was filling out the dreaded tax return online – this meant he had 2 laptops and the ipad spread out in front of him and he doesn’t even have a regular job!  Who knew that the tax office struggles to cope with zero hour contracts?!

Midweek Magic 16th May

The politics student has returned to university this week, but not before a trip to A&E to check out his knee.  I think that I mentioned last week that he had dislocated and then relocated his knee – the pain and terrible cracking continued and we were advised by the GP & a physio friend that he needed to go to hospital to have it checked.

Cartoon knee
image courtesy of clipart-library.com

So I duly packed off hubby and son, with flasks and sandwiches…..no, I didn’t but probably should have done as they were waiting for the best part of last Friday.  The wait we could understand – there were a lot of emergencies and the waiting room was full – but it was a shame about the attitude of the nurse specialist.  Son and hubby explained the problem and were slightly taken aback by the tone used to tell them that A&E is for really sick people!

They explained that the GP had sent them and were apologetic for taking up time…….but where does someone go with this sort of problem? No you are not seriously ill, but you do have something wrong that your GP can’t deal with……no wonder so many of us chronic bodies avoid going to hospital!

Enough moaning, yours truly has had an eventful week and managed several outings between the bouts of neck pain.  A curry with friends – a fellow zebra who made contact via this very blog, another reunion at my old school as Chair of the alumni group – a  group only 2 years behind me so I knew them which was great, and a National Theatre Live production of All My Sons at our local cinema.  If you get the chance to see this it is fantastic – Sally Field, Bill Pullman, Colin Morgan (aka Merlin!) and Jenna Coleman. Getting out of the cinema was a challenge as although the spinal cord stimulator helps with the pain it doesn’t help with the dead leg and immobility after sitting.  Good job I have a husband, eh? But it is no wonder I can hardly move today and am happy I have a new furry pal come to stay for a couple of days…….meet Jensen!

The posts encompass various things that have been happening this week – Mother’s Day in the USA (read Willow’s beautiful poem), ME/CFS awareness and mental health awareness. May is the awareness month for many conditions and I will put up a listing on another post – I don’t want to miss anyone out.  Don’t miss the inspiring ladies featured at Tea and Cake for the Soul. So grab yourself a drink, sit down and relax!

https://lifeattheintersection.com/2019/05/06/who-are-the-millions-missing/

https://willowdot21.wordpress.com/2019/05/12/song-lyric-sunday-mothers/

https://www.jolinsdell.com/2019/05/book-review-printed-letter-bookshop-by.html

https://pamecrement.com/2019/05/10/before-she-was-your-mother/

https://ablondeinthecrowd.wordpress.com/2019/05/13/confidence-help/

https://myloudwhispersofhope.com/2019/05/13/its-mental-health-awareness-week-in-the-uk-may-13th-19th/

http://jademarie.co.uk/positive-body-image/

https://father-hood.co.uk/2019/05/13/parents-subconsciously-sexist/

https://teaandcakeforthesoul.wordpress.com/2019/05/13/menopause-fab-at-50/

Please share some love and comment, like and share your favourites!

Have a great week,

Claire x

16th May MM

 

 

Midweek Magic – Inspiring Blogs for You!

Did you think that I’d forgotten about “IBFY” this week?  I had a blog tour spot for Monday and didn’t want to overdo the musings, so thought a midweek spot might do nicely to share these posts that I had found for you.

Midweek Magic Inspiring Blogs for You!

We survived our week with hubby away…..just!……..and more importantly he survived an activity week with 64 ten year olds.  The weather was really kind to them and he returned looking more like he had been to Spain rather than to Kent, the sun tan covering any signs of exhaustion!  At this end I continued to share drugs and my CBD vape with the politics student as he nursed, and continues to, his dislocated knee; there was one faint/fall/dislocation and only one set of plans cancelled. Not too bad going!  The lovely girl even managed to get out of bed every morning to do her paper round without her dad dragging her out of bed.

photo of person holding alarm clock
Photo by Acharaporn Kamornboonyarush on Pexels.com

As hubby arrived home, the eldest and a group of friends headed off for Snowdonia, North Wales….to go camping!  Pitching a tent in the dark on one of the coldest nights this year – not my idea of fun and I think the young engineer’s better half would have preferred a B&B.  They actually had snow and built the snowmen to prove it!

IMG_46612A9C68B1-1

Meanwhile yours truly now has the results of my neck x ray and unsurprisingly it shows disc and degeneration problems in both the cervical and thoracic spine.  “Where shall we refer you?” pondered my GP……um, how about somewhere that can arrange new bodywork!  I think that my neurosurgeon might go off for a very long holiday when he sees my name on the Back Pain Clinic patient list again.  At the moment I have no expectations and want to avoid more surgery – be it on my shoulder or my spine……time will tell!!

 

plant branch spice alluaudia procera

 

I hope that you enjoy this mix of blog posts that I have found this week – I have finished with a short video to highlight pain in Ehlers Danlos Syndromes Awareness Month.  So sit back with a favourite cuppa and happy reading!

https://irishtwinsmomma.com/postpartum-depression/

https://sybrinapublishing.wordpress.com/2019/05/03/my-review-of-fatality-in-f-by-alexia-gordon/

https://www.musthikemusteat.com/lets-catch-up/

https://melissavsfibromyalgia.com/2019/05/02/my-gut-friendly-coffee-routine/

https://fullofgritandgrace.com/2019/05/01/mental-health-chronic-illness-why-its-critical-we-discuss-them-together/

https://michelevosberg.com/2019/04/30/what-are-you-afraid-of/

http://anordinarymom.site/who-are-you-forgetting-to-invite/

https://myideaofparadiseetc.blogspot.com/2019/05/mothers-day-around-world.html

https://channongray.com/kindness-an-elixir-for-body-and-soul-alike/

https://themighty.com/video/painting-our-pain-ehlers-danlos-syndrome/?utm_source=newsletter_eds&utm_medium=email&utm_campaign=newsletter_eds_2019-04-24&jwsource=cl

Please like, comment and share!

Have a great week,

Claire x

PS: Happy Birthday, Dad!

 

 

Monday Magic – Inspiring Blogs for You!

It is Easter Monday – hope you have had a great holiday weekend!  The weather has been just spectacular here in the south of Britain – the young engineer and friends have had a balmy weekend on Hayling Island (just off the south coast, near Chichester) where they donned shorts and enjoyed temperatures on the beach more akin to Club Med!

Monday Magic Inspiring Blogs for You! 22 April

A huge event for me this week was finally being visited and assessed by a community Occupational Therapist.  I can’t even tell you how long I have been on the waiting list, it has been that long!!  A big plus was that said OT, Johnny, has had one previous patient with EDS so he was familiar with the condition and knew a little about POTS too.  What a difference it makes when you don’t have to teach the medical professional from the word go…..although the spinal cord stimulator was something new to him.  It seems that maybe I am more in need than I thought – although the kids would tell you I am needy!! – or rather I might be deemed eligible for more help than I had anticipated.  Apparently it is possible for the assessment to recommend a need for a Japanese style loo – you know, one that washes and dries before it flushes (it may even play music….joke!!).

bathroom cabinet candles faucet
Photo by Joey on Pexels.com

So if the OT recommends it AND the local authority agree it, I might be able to get my electric wheels out of the house via the front door in the not too distant future…..the dog will appreciate a ramp, and a walk in shower to replace the bath and a stair lift might be on the cards too.  Watch this space!!

Chocolate has invaded the house this weekend.  The kids might be young adults now, but they have still been given a “healthy” supply of chocolate in the shape of eggs, bars and rabbits.  I have a complete new shelf of ornaments!

IMG_0485

The blog posts for you this week include a mixture of spring and Easter posts, recipes, Earth day and health topics. Grab yourself a cuppa, sit back and enjoy!

https://www.abalancedbelly.co.uk/glutenfreeeastercakes/

https://www.style-yourself-confident.com/spring-lifestyle.html

https://www.baileyleah.com/2019/04/mini-egg-cheesecake.html

http://www.kayleighrvr.co.uk/2019/04/what-i-wish-i-knew-when-i-was-younger.html

https://darlenefoster.wordpress.com/2019/04/12/understanding/

https://decorcraftdesign.com/2019/04/15/love-our-earth-day-in-pillows-tote-bags-and-t-shirts/

https://www.chronillicles.com/disability-blogger-award/

https://dinosaursdonkeysandms.com/yoga-with-dizzy-dizzys-delightful-yoga-poses/

https://notesfromtheuk.com/2019/04/19/is-an-excess-of-money-clogging-up-your-life/

https://chronicallydrained.info/chronic-asthma-allergies-lupus-hashimotos-diabetes-and-more-all-lead-to-a-lifetime-of-medication-for-kristin/

Please remember to comment, like and share posts you enjoy – voting closes for the Annual Bloggers’ Bash Awards this week, so it would be great if you would consider voting for me in the Best Lifestyle Blog and many other super bloggers – vote here.

Have a great week,

Claire x

 

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Monday Magic – Inspiring Blogs for You!

Here I am, already running a day late this week – but as I had already found some blog posts for Monday Magic I thought I’d go ahead and share them today.  The shoulder and neck are feeling a little easier and the amount of opioid floating around my system is considerably smaller so I can put pen to paper…….well fingers to laptop!

Pin for later

Monday Magic Inspiring Blogs for You! 15 April

 

So what have we been up to in the PainPals house this week?  I mentioned in my last post that hubby made a trip to his parents and left me in the not so capable hands of the oldest and youngest children/young adults!  We survived to tell the tale although the crumbs in the kitchen drove me to distraction.  On Saturday the three of us joined my parents and various other cousins for a family lunch and I was so pleased to actually make it there.  The most exciting thing was being told that my cousin and her partner have booked to be married next year on a cruise aboard the Queen Mary to New York.  The funniest thing was that her other half made an announcement, whilst she sat there all embarrassed saying that “it really isn’t a big deal”…….well in that case cousin, I will go to New York on the Queen Mary with your fiance, and then on to Washington and Niagara Falls!!  Ha, ha, ha.  She doesn’t want to make a big fuss at their “time of life” – mid 50s and 60.

Rachel and Claire
Having fun with cousin Rachel last year!

 

The young engineer was slightly on edge during said meal as hubby was home, but he was taking advantage of a friend’s season tickets to a London football match (Fulham v Everton for you footie fans!) and had taken the young engineer’s better half with him.  Would dad show him up? Would he say something really outrageous?  No, son – they are both football fans (both support Chelsea actually!) and will have far too much to talk about that will not include you!! Our friend was in Paris supporting his boys in the marathon and was gutted that having lost several matches in a row, Fulham actually won!!

Fulham cake
Fulham Football Club cake that I made a couple of of years ago

The house is back up to full capacity as the politics student arrived home last night for the Easter break – after false start at the weekend when he was struck down with a migraine (he promises migraine and not hangover!) after finishing an essay….early.  I haven’t investigated the bags yet, but there is only so much dirty washing that can be transported on a coach trip…..I think that I might leave a trail of arrows to the washing machine.

I hope that you have had a good week and are ready to sit back with a cuppa and enjoy some fantastic blog posts.  The beef and ham cheese roll looks amazing, “Getting Older” made me laugh out loud and Christie Hawkes’s post really gives food for thought.  Enjoy!

https://italiangoodness.net/2015/02/15/beef-and-ham-cheese-roll/

https://hopehikesandhealing.com/2019/04/11/how-to-be-with-the-suffering-of-loved-ones/

https://www.niamhgabrielle.co.uk/emergency-red-cord-cards-by-euans-guide/

https://meditationsinmotion.wordpress.com/2019/04/14/fixing-the-fixer/

https://www.jtouchofstyle.com/dementia-training-for-caregivers-jill-lorentz/

https://ohmrstucker.com/getting-older/

https://msbrensays.com/2019/04/11/just-when-you-think-you-cant-you-can/

https://sewprettyinpink.com/2019/04/16/a-unicorn-onesie-for-recovery/

https://christiehawkes.com/the-power-of-words-and-mindful-speaking/

https://www.momshomerun.com/2019/04/wherever-i-run-there-i-am.html

 

Please like and share the posts that you love – make a blogger’s day……and if you would vote for me in the Annual Bloggers’ Bash Awards you would make mine!  Please vote here.

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

Welcome back to another Monday Magic!  What a morning it has been with a visit to the local hospital for an”ology” appointment.  Today it was gastroenterology and things didn’t bode well from the moment the nurse said they were running a little late.  There is a huge white board with the various doctors names and details of the clinic.  We sat and watched as nurses came out regularly and increased the waiting time for each different doctor – waiting time 45 mins, 1 hour, 1 hour 15 mins…until the registrar I saw was running about an hour and a half behind.

Pin for later

Monday Magic Inspiring Blogs for You! ology

Is it me, or is the waiting room always too hot when the clinic runs late? People start to become agitated, staff don’t have the right answers and tempers become frayed.  Staying calm is a must – so send hubby out for some coffees and breaaaaathe!  I was in and out in no time with an increased iron level, no major changes and am happy to report another young doctor seen who knew about Ehlers Danlos Syndrome, POTS and the related gut issues!  Now all I feel fit for is a long siesta…….

A much more exciting event that we went to this week was an Engineering and IT careers event – where the young engineer and his business partner gave a presentation – well the talented business partner spoke and the young engineer clicked the computer slides!  I am now a step nearer to understanding what their business is…..cybersecurity was mentioned more than once!  The robotics Professor from the local university had a little, but incredibly expensive robot with him which was fascinating.  His main interest of study is using the robot for teaching both SEND children, who respond well to the consistency in information given by a robot, but also in mainstream education.  It was quite unnerving when the robot was fired up and ready as his eyes were able to track you across the room and his face really did seem to be expressive.  Another exciting topic was a “plasma” tool that a group of scientific engineers have created for a plastic surgeon friend.  The tool is available for both hot and cold plasma surgery and can potentially be used to aid cell and skin regeneration, tattoo removal and may help reduce the growth of resistant bacteria strains such as MRSA.  My head was simply spinning when we left….and I’m not even one of the students it was aimed at!

action android device electronics
Photo by Matan Segev on Pexels.com

This weekend the celebrations reached fever pitch in Wales as the Six Nations rugby was won, but also in all corners of the earth where there is a touch of the shamrock needing little excuse to celebrate St Patrick’s Day.  With a nod to the emerald isle, I have found you several St Patrick’s posts, along with some travel, health and beauty pieces.  Sit back and enjoy with a cuppa!

St Patrick

https://www.jenniferalambert.com/celebrating-st-patrick/

https://freshvintagebylisas.blogspot.com/2019/03/vintage-printables-for-st-patricks-day.html

https://fancypaperblog.com/2016/03/17/movie-gems-for-st-patricks-day-treats/

https://fightingwithfibro.com/2019/03/15/22-lesser-known-facts-about-fibro/

https://awandafulthing.com/2019/03/11/simple-things-4/

https://borninacar.com/moscow-russia-5-minute-guide/

https://cliveblogs.wordpress.com/2019/03/09/im-still-me/

http://anordinarymom.site/librarians-changing-the-world-one-book-at-a-time/

https://midsummerlifedream.com/life-with-endometriosis/

https://www.beautyobsesseduk.com/2019/03/my-blush-collection.html?m=1

Please share some love for these bloggers and their writing – like, comment and share!

Have a great week,

Claire x

Monday Magic Inspiring Blogs for You! (6)

Monday Magic – Inspiring Blogs for You!

Welcome pain pals and apologies for the lack of interaction this last week.  Just prior to last week’s Monday Magic I managed to remove my humerus from its glenoid cavity…..or rather my shoulder had dislocated, yes I know…..again! Honestly my right shoulder is out more than in these days, but this last week has been particularly bad causing a few sleepless nights, much knocking back of morphine and generally feeling pretty low.  It really is unusual for me to want to do nothing – to not even be able to use my computer…..

Monday Magic Inspiring Blogs for You! (5)

 

Then I woke up Sunday morning with a beautiful eyeliner applied perfectly to one eyelid in a fetching shade of rose red.  You could not draw such a perfect line, although the lovely girl offered to try to match it on the opposite eye.  By the time my GP saw it this morning it had changed shade to a purple edged with yellow which now looks more like eyeshadow over the whole lid.  She says it is an infection in the lid, but I still think hubby had something to do with it after I poked him for snoring!! (Joke!)  However he has banned me from opening certain drawers as that is how the latest “joint parting of the ways” came about, and it is still falling out of socket every time I move.  Good excuse not to cook or clean though!

closeup photography of woman red lipstick
Photo by Julia K on Pexels.com

The week hasn’t been all bad for yours truly, as I had tickets to see the sixties inspired West End show “Rip It Up” with my mum.  I was worried as I was still feeling pretty rough, but with plenty of cushions for the car journey and then in my wheelchair when we got there, I survived.  I feel very fortunate to be able to secure both a wheelchair space and a free seat for my carer – in this case mum had a much more comfortable stand alone arm chair – situated in this theatre in the back row of the dress circle.  The show stars former Strictly Come Dancing stars : Harry Judd of McFly, Jay McGuiness of The Wanted, Aston Merrygold of JLS and Olympic gymnast Louis Smith MBE.  These boys sing, dance, drum and flip their way through the show.  The rest of the cast are such talented singers and dancers – Jill Marie Cooper’s voice blew me away – and there are some surprise turns on screen from sixties icons!

Rip It Up
Google images

Enough…I’m making up for my lack of typing this past week.  I have a selection of very varied posts for you from a cheeky look at middle names to several health posts to concert and book reviews to an interesting smoothie with a twist for my spoonie pals.  So grab a drink, sit back and enjoy!

http://scaleitsimple.com/2019/03/11/the-7-stages-of-a-taking-a-vacation/

https://www.radiantnubeginnings.com/menopause-the-final-stage-in-a-womans-life-does-it-frighten-you-too/

http://catherineinthecity.com/2019/03/10/drink-your-greens/

https://hotmessmemoir.com/2019/03/10/happy-middle-name-pride-day/

https://thecuriousfrugal.com/my-attempt-at-the-complaint-free-challenge-month-1-update/

https://ohmrstucker.com/perfect-oatmeal-cookies-with-dried-apricots/

https://rachaelstray.com/george-ezra/

https://dgkayewriter.com/sunday-book-review-20-learned-patients-olga-nunez-miret/

http://www.bbhwithms.com/ms-cannabis-recipe-for-my-medicated-smoothie/

https://dinosaursdonkeysandms.com/rainy-raspberry-relapses/

Please spread some joy and comment, like and share these posts.

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

March is here and the weather has been so mild that it has felt like near summer some days, and definitely spring.  The spring flowers are in bud, the trees are starting to change colour….and hay fever has raised its sneezy head in our house!  Hubby and the lovely girl both have runny noses and itchy eyes, probably from tree pollen and moulds so out with the nasal sprays and antihistamines again.

monday magic 4 th march

It has been a busy week – well at least for my limited world – with several consecutive nights out.  I saved my spoons by doing very little during the day and had a lovely night at the theatre to see Rock of Ages, followed by a mums’ night out and being taken to dinner by the young engineer and his better half!  The theatre trip was exciting as my favourite from Strictly Come Dancing, the wonderful Kevin Clifton, was appearing – not as a dancer, but as a singer.  Boy can he belt out a song!! The show is very slapstick and certainly made me laugh – and I must shout out for the New Wimbledon theatre making it a very easy and accessible visit for this wheelchair user.  There is a special entrance with a lift to take those with mobility difficulties directly to the stalls and this is where the wheelchair and carer spaces are.  We were able to order our interval ice-cream in advance to be delivered directly to us, and the accessible toilets were huge and well equipped.  How can I go from talking about the lovely Kevin from Grimsby to the loos?!

RockOfAges_Kevin_Clifton
Current Strictly champion Kevin Clifton in Rock of Ages

 

Our mums night out had been arranged and was the height of embarrassment to our 16 and 17 year old daughters who can’t understand why their mothers might possibly want to go out and socialise.  We ate, drank and chatted so well – not all about the girls! – that we were the last ones in the restaurant.  Speaking of restaurants, the young engineer took us to a well respected London steak establishment just off Regent Street at the weekend.  We drove and used the Westminster “Park Right” app to find a blue badge parking space – parking spaces of all types have a sensor to detect if they are occupied and this connects live to the app.  It worked! I’m not sure what I had expected, but finding an empty blue badge spot just off Piccadilly Circus seemed too good to be true!  The staff in the steak house were all helpful with the wheelchair and even said that they would put a ramp at the steps so that I could use the disabled toilet.  Everything was going so well until I got to the top of the ramp and then couldn’t open the heavy door into the toilet corridor…..oh well, they tried!

Of course since yesterday  I have found myself all out of spoons and the weather changed back to cooler conditions.  So a perfect day to find some interesting blog posts for you and I hope you’ll agree that there are some great reads here.  Enjoy!

 

https://migrainemantras.com/2019/03/03/voices-from-the-hill/

https://rachdowsonwilliams.blogspot.com/2019/02/exploring-town-i-love-so-much.html

https://www.beautifulmindlifecoach.com/2019/01/always-3rd-wheel.html

https://lisaorchard.wordpress.com/2019/02/24/are-we-the-indoor-generation/

https://carolcooks2.com/2019/03/04/pancake-day-5th-march-aka-shrove-tuesday-mardi-gras-or-fat-tuesday/

https://beetleypete.com/2019/03/04/the-right-thing/

https://ablondeinthecrowd.wordpress.com/2019/03/04/a-letter-to-me/

https://topladytalks.com/2019/03/04/to-retreat-or-not-retreat-a-review-of-our-accessible-meditation-weekend/

https://noreenlace.com/2019/03/01/special-needs-authors-and-readers-an-interview-with-patty-fletcher/

https://www.sizzlingtowardssixty.com.au/the-importance-of-downtime/

Please like, comment and share the posts you enjoy!

Have a great week,

Claire 

Monday Magic – Inspiring Blogs for You!

I can never believe how quickly Monday Magic comes around, but what I do know is that week after week I find just how many fantastic blogs and bloggers there are in the blogosphere!

Monday Magic 25th Feb

The stand out story for me this week was that of Tony Foulds, the Sheffield pensioner who has cared for the memorial to 10 US airman who, as a child, he saw crash in his local park.  The crew of the Mi Amigo attempted to land their damaged aircraft in the Sheffield park where Tony and his friends were playing, but when the airman waved to the children to move, the youngsters merely waved back.  It remains the biggest regret of Tony’s life that as an 8 year old he thought the pilot was waving to him, not at him to move, and thus flew the craft into woods where the plane crashed.  When a BBC journalist heard that Tony’s greatest wish was to have a flag pole and a fly past on the 75th anniversary of the crash, he set about making it happen.  Relatives of the Mi Amigo crew joined thousands of local people as Tony watched the US and British airforces fly overhead – one plane for each airman.  Every time I have watched, Tony Foulds has reduced me to tears with his passion and his firm belief in caring for the memorial of the strangers he calls family. (See the full story here: https://www.facebook.com/bbcbreakfast/videos/642676716166370/)

In our household hubby went to Cambridge with my brother who had treated him for his birthday to a Prog Rock weekend….not my cup of tea, but they had a good time listening to loud music (Steve Rothery of Marillion fame) and visiting RAF Duxford.

 

So that left me in the capable hands of my lovely girl – yes, a girls’ weekend! I would love to be able to report a time of shopping and clubbing – once upon a time definitely! – but it was more like artwork (hers not mine) and a film.  The weather has been beautiful for February, so we managed to get ourselves to my parents’ house under our own steam.  Now I know that friends who know us in person are laughing now and yes, it is the same road…..but yours truly had the very tricky job of steering the new motorised chariot out of the patio doors, down the ramp, along the side entrance and out into the street.  Then the local council have seen fit to install temporary traffic lights at the roundabout that separates our end of the road from theirs, so I had an unexpected negotiation and a girl getting very worried her mum was going the wrong way in the road!  Fear not – my driving skills are improving and I was able to report to hubby that we had made it in one piece and then I used the headlight he had fitted to guide us home in the dark.  Well, ok it is a bike light and the street lights were on, but it still means that I can be seen coming!!  But to be serious, I really enjoyed the feeling of independence which I hadn’t quite expected!

1069398__safe_solo_oc_simple+background_transparent+background_earth+pony_wheelchair_handicapped_artist-colon-sketchydesign78_oc-colon-melody+shine

I mentioned above that I have found some fab blog posts for you and some of these are from a lovely facebook group that I belong to – Sharing, Inspiring, Promoting Bloggers.  The first on the list is giving a shout out to Rare Disease Day, later this week on 28th Feb – please have a look at the bloggers who have shared their stories in part one of Despite Pain’s series.  Yours truly will be featured in the next episode talking about cauda equina syndrome – I will share this with you later this week.  Meanwhile sit back, grab a cuppa and enjoy!

Twitter banner

View at Medium.com

https://despitepain.com/2019/02/18/why-we-need-to-support-rare-disease-day/

https://wheelescapades.com/2019/02/21/12-frustrations-of-being-a-wheelchair-user/

https://ginlemonade.com/2019/02/13/house-hunting-as-a-wheelchair-user-other-stories/

https://yesterdayafter.com/2019/02/19/art-for-music-series-aurora-portrait-new-release/

https://jumpstartpositivity.com/simple-things/

https://youcanalwaysstartnow.wordpress.com/2019/02/18/dont-be-rigid-and-brittle/

https://collinscrohns.wordpress.com/2019/01/04/top-chronic-illness-books-and-blogs-of-2018/

http://angelanoelauthor.com/guest-post/published-elsewhere/out-of-my-comfort-zone-why-i-wrote-an-essay-that-scares-me-a-little/

https://anhistorianabouttown.com/six-the-musical-review/

https://myblurredworld.com/2019/02/24/online-world-accessibility/

Please like, comment and share!

Have a great week,

Claire x

 

 

Monday Magic – Inspiring Blogs for You!

Monday Magic 18th Feb

It is half term break already – how did that happen? It feels like school has only just gone back!  Anyway we and the lovely girl are doggy sitting for friends this week, whilst our own old boy, Sam, has his holidays at his human grandparents.  I’m not sure if I have mentioned before but he was a rescue dog many years ago and the one foible we have never got him over is his dislike of other dogs.  So he will enjoy a quiet week in a calm house being spoilt with his favourite breakfasts and gravy on his grits!!

E8930077-5F14-4566-9947-798252524C3C
Sharing a chronic moment!

 

Last night, feeling slightly energetic, I walked Sam up the road to my mum’s house.  I say walked….I’m not sure who was the slower, me or the dog.  If we had been going any slower we would be stationary and hubby was alternately pushing and pulling us.  We dropped Sam off and then continued the slow amble around the block heading back home.  Now when we had left home I was quite spritely – for me – so pooh-poohed the need for my wheelchair, taking just my stick and feeling quite invincible.  Big mistake!!  Half way back (it really isn’t far), and whilst going downhill, one foot was completely numb and the kneecap on the other side had dislocated….double whammy!  By this point I had a fit of the giggles but hubby, who was inelegantly hauling me along the road, did not see the funny side.  No more outings for me without wheelie back up!!

man riding bicycle with woman sitting in front
Photo by Charry Jin on Pexels.com

Talking of which the new car should be arriving soon, thanks to Motability agreeing to take back our current model so that we can have something that has a hoist fitted to take my new wheelchair.  Once I have figured out how to get it out of the house we will be sorted!!!  I am still waiting for an OT assessment which I hope will highlight the need for ramp access to the front door (amongst other things) – meanwhile we continue to encourage Sam to use the ramp outside the patio door rather than attempting, and failing, to jump off the side of it!

The young engineer is in San Francisco – a little bit of work, but mainly play.  I had a message to say that the Air b&b is “OK but doesn’t have a kitchen” to which my response was well he only knows how to prepare tuna with pasta so doesn’t really need one!  We have been introduced to the Forbes magazine lists this week – no I didn’t realise that they do the rich lists.  Anyway the young engineer and his business partner have somehow made it onto the Forbes 30 under 30 Europe Manufacturing and Industry list – the lovely girl is just staggered that her brother features on the same series of lists that Jess Glynn and George Ezra feature on (yes, yes..different category!).  Maybe one day it will be the rich list and he can keep his mother in the manner to which she would like to be accustomed….dream on, Claire!

 

Before I go I must introduce you to our fur babies for the week….Fred and Honey

 

and some fantastic blog posts from a variety of bloggers covering so many subjects.  So grab a drink, relax and enjoy!

https://www.achronicvoice.com/2019/02/13/twitter-tips/

http://theinsiderviews.com/2019/02/is-pilates-for-you.html/

https://www.radiantnubeginnings.com/one-size-doesnt-fit-all/

https://thechronictraveller.com/2019/02/06/chronic-illness-and-the-well-of-despair/

https://www.cbdhacker.com/cbd-for-inflammation/

https://esmesalon.com/2019-wednesday-interview-series/

https://pamelajessen.com/2019/02/17/fibromyalgia-and-loneliness/

https://justmuddlingthroughlife.co.uk/2019/02/17/children-again-poetry-challenge/

https://www.healthyeatingexperts.com/top-12-spring-superfoods/

https://theinspirationlady.com/self-care-ideas-for-highly-sensitive-people/

Please like, comment and share – spread some love!

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

This is the week of love with Valentine’s Day fast approaching – red hearts, champagne, velvet wrapped boxes of chocolates and of course red roses.  The shops are adorned and the internet is overflowing with suggestions of how to spoil your loved one.  The thing that I would just love for myself is a week of sleep.  Forget being wined and dined, fancy foil balloons or expensive flowers…..the secret to unlocking my heart is to give me sleep!!

Valentine Monday Magic

Seriously I need to find some self love this week after a week of sleep deprivation.  I never sleep brilliantly, but this week has felt like working night shifts again.  I no longer panic in the night, but read from a dimly lit kindle or listen to dramas on the BBC radio iplayer or play soothing sleep mixes on Youtube.  The problem comes half way through the next day when jet lag hits and after 3 sleepless nights this week it has well and truly hit!!  Thursday night was one of these nights, but I didn’t drop off to sleep until Friday afternoon.  By the time hubby woke me at nearly 7pm it was time to go out to play…..a takeaway with some close neighbours.  Curry for breakfast – can’t remember the last time I did the equivalent!  We had been tasked with taking liqueurs and wine – easy.  Unpacking the bag when we arrived we had red wine, white wine, limoncello, espresso liqueur, coffee cream, sambucca, oxynorm……what???  Oh no, don’t panic, just a little something for Claire and her pain!

artistic blossom bright clouds
Photo by Pixabay on Pexels.com

Something that did cheer me up this week was reading that chocolate shaped as hearts is calorie free…well, who knew?  This is something that I am totally believing for the whole week, so come on hubby remember how the lovely girl and I have always woken up to a chocolate heart on February 14th?  I promise never  to say again that snoring from the other side of the bed requires noise cancelling headphones!

turned on black samsung smartphone between headphones
Photo by Vlad Bagacian on Pexels.com

 

I haven’t given you a list of lovey, dovey red heart posts, but rather a diverse selection of blog posts.  They range from the breakfast pizza, to giving empowering compliments to girls to random acts of kindness.  My favourite has to be the slow cooker fudge brownies – there is a situation where the stomach rules the heart.  So sit back with a cuppa, or maybe a glass of something bubbly and enjoy some great blog posts.

 

https://www.theworldseesnormal.com/the-world-sees-normal/10-things-to-remember/

https://www.samsplaces.com/2019/02/bacon-egg-cheese-breakfast-pizza-recipe.html

https://justmuddlingthroughlife.co.uk/2019/02/08/10-tips-help-ease-stress-children-being-mum/

https://sweatpantsandcoffee.com/empowering-compliments-girls/

https://catchyourbreath60.com/february-is-heart-month-copd-and-heart-failure/

https://passionfruitpawsandpeonies.com/9-books-for-a-more-positive-2019/

https://lifeattheintersection.com/2019/02/11/practice-for-random-acts-of-kindness-day/

https://esmesalon.com/how-to-actually-chill-so-you-dont-burnout/

http://www.looneyforfood.com/slow-cooker-fudge-brownies/

https://www.unboundroots.com/my-heart/

 

Please share, like and comment to show how much you appreciate these bloggers!

Have a great week,

Claire x