The start of a new week and I wake up to yet another terrorist attack in London – following a dreadful week for our capital with the fire in Grenfell tower, west London. My thoughts go out to all involved.
Duncan has been away this week with 60 year 6 children, aged 10 & 11, on the annual French trip to Paris. I gather it was very hot and very busy. This has meant that the adult kids have had to be my carers – not sure who it is worse for. As anyone suffering with dysautonomia – malfunctioning of the autonomic nervous system – knows, this heat plays havoc with us. My breathing has been worse and the pooling of blood has turned my hands and feet to a delightful shade of blue/red every day. So yours truly managed a truly spectacular faint in the shower cubicle, from which I had to extracted by the student engineer and lovely girl. Not really what any mum wants her 21 year old son to have to do!! The bruises are stunning – Ehlers Danlos skin combined with steroids gives great results for all injuries!
Today is my birthday…we won’t count the years….and I can’t quite believe that another year has passed. I would write more but I am being called to get ready – my lovely parents are taking Duncan and me out for lunch. So in my usual Monday fashion, I invite you to make a cuppa, kick off your shoes, sit back and enjoy some more inspiring blog posts from my friends over at Chronic Illness Bloggers!
https://mymigrainelife.wordpress.com/2017/06/08/mile-for-migraine-charity-walkrun-2017/
http://blog.mighty-well.com/spoonie-community-self-love
http://gettingclosertomyself.blogspot.co.uk/2017/06/the-storm-after-years-of-calm.html?m=1
http://invisiblyme.com/2017/06/17/mini-me-update/
https://wheelchairvista.life/2017/06/10/5-more-ways-to-survive-being-disabled/
http://thethyroiddamsel.com/autoimmune-diseases/sickness-health/
http://lifesapolyp.blogspot.co.uk/2017/06/a-caregiving-father.html
http://www.travelbreatherepeat.com/lam-community-support/
Please remember to like, comment and share!
Claire x
PainPalsBlog 
Happy birthday, may your day be a good one wishing you wellness & less pain Xx 🙂
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Wishing you a Happy Birthday! Thank you for the inspiring blogs list. Sending a gentle hug.
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Thank you so much for sharing InvisiblyMe, it’s much appreciated.
The rare warm weather we’re getting in the UK is certainly a shock to my system too; I welcome it because I’m almost always cold (strange sensitivity in my hands and arms in particular), but then my body doesn’t know what to do when it’s strangely hot. You mentioned the colour of your hands and feet, I’m not entirely sure what always causes that, but my hands (left in particular) is always red/purple on the underside. People look horrified when I show them!
It sounds like you’re well looked after by the adult kids, who I’m sure are grateful for your company and like being able to help where they can. I do hope you’re able to get a little relief from the heat and, most importantly…. HAPPY BIRTHDAY!
Really pleased to have found this blog so I look forward to reading more 🙂
Caz x
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Sorry it has taken me a week to reply, this weather has done some really odd things to me including the purple hands and feet – I am delighted to connect with another chronic pal and look forward to chatting, Claire x
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Hello, Claire! I am thrilled I found your blog. I know nest to NOTHING about dysautonomia. I will definitely research. Look forward to hearing more from you. ~Kim
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Hi Kim – really pleased to meet you! I have followed you too and look forward to connecting, Claire x
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Happy belated birthday Claire! I hope you had a wonderful day, filled with all good things.
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Thank you xxx
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