It has been a momentous week for several reasons. Hubby and I were planning a trip to visit his parents and true to form I was so unwell at the beginning of last week that it was looking like we would have to cancel….yet again. I am ashamed to say that it has been over 3 years since I last managed the 4 hour journey, in fact it was when I stayed with them after my spinal cord stimulator surgery. Please believe me when I say that it is not that I don’t love my in laws but rather that every time we have planned a visit my body has disagreed. There have been shoulder dislocations, POTS flares and neck problems – not forgetting that my chronic back pain prevents me from sitting still for long periods.
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Something that goes hand in hand with a chronic illness is unpredictability and then the inability to make plans – and the guilt at having to break plans. So when Tuesday morning dawned and I couldn’t sit upright, I felt that I had let everyone down yet again. Wednesday arrived and we decided to give it a go. The electric wheelchair was hoisted into the car, I was settled in surrounded by cushions, an Audible series was downloaded and we were away. It wasn’t an easy journey, but I made it even if I did have to swap one sofa for another!
I had a different furry friend to keep me company following a faint – Lexi the pug – and I enjoyed the freedom that my electric wheels gave me during a trip into Hereford city centre. My driving skills are improving! With the weather breaking in the UK my symptoms are more manageable now and the fainting is under control – would you believe though that the wet, clammy, stormy weather causes as many problems with this body barometer of mine as the really hot days?!
This week the lovely girl started work experience with big brother, the young engineer. How I wish I could have been a fly on the wall!! He wants her to help with design elements of…….um, I wish I knew or understood!
It seems to have gone well, but she laughed in the change in her big brother as soon as they got home reverting from boss to twit! The whole family has enjoyed playing with my latest toy that arrived this week – a recliner chair which has already saved me during a POTSie episode today as it will lay me almost flat. The young engineer was so excited by the integral USB port that he almost face planted on the floor when lifting himself to standing too far!! I will give you a chair review when I have had it for a couple of weeks.
So back to business and sharing some great blog posts with you. I have found a couple of posts about writing – for lovely Ritu the publication of her novel is in sight (if it is as good as her cakes it will be fab) – tips to boost your family’s health, and some lovely posts from chronic illness pals. So sit back with a cuppa and enjoy!
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Have a great week,
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