Category: Blogging

Monday Magic – Inspiring Blogs for You

On By Claire Saul (PainPalsBlog)In Blogging, chronic illness4 Comments

Monday Magic

Good morning!

Another week, so time for some more great blog posts for you and this week includes a couple of ladies who are new to the Chronic Illness Blogger community.  I have spent this weekend catching up with blogs, finding some new ones through others posting on mine and visiting meet & greets.  I have also been introduced to Stumble Upon, (which my eldest tells me is really old fashioned!) – but apparently is a great way to generate interest and find different blogs – quite proud I actually managed to work out how to add the social media button which has been met with hilarity from the tech savvy generation in this house.

Anyway time to make that cuppa, put your feet up and enjoy some new posts from some of the amazing people over at Chronic Illness Bloggers!

http://www.colormelyme.net/why-lyme-disease-awareness-is-important/

http://www.notstandingstillsdisease.com/2015/09/11-health-care-mistakes-you-dont-know.html

http://themigrainediva.blogspot.co.uk/2017/04/conversations-how-to-speak-about.html

https://www.anchoredinhealth.com/home/2017/4/11/why-being-uncomfortable-is-ok

http://emilylofgren.com/resting-well-chronic-illness/

https://ohdessa.com/2017/04/17/a-week-in-the-life-aka-telling-the-stories-i-usually-dont/

http://caseythecollegeceliac.blogspot.co.uk/2017/03/respect-me-respect-chronic-disease.html

https://silentiousdreamer.com/2017/04/18/pills-pills-and-more-pills/

I’m still a good mom

Trying out a beach vacation on Ko Lanta

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Stunning picture from Travel Breathe Repeat Blog

 

Claire x

Monday Magic- Inspiring Blogs for You

On By Claire Saul (PainPalsBlog)In Blogging, chronic illness9 Comments

Hello!  I hope that everyone is enjoying a fantastic Easter  long weekend.  I am still finding new blogs to share with you from the Chronic Illness Bloggers group and this week we have a mixture from art to crafts to our loved ones.  So go make yourself a cuppa, pull up a seat and enjoy getting to know some more fantastic inspiring people,

Claire x

Monday Magic

  1.  http://thethyroiddamsel.com/autoimmune-diseases/losing-friends-and-alienating-people/
  2. https://chronicallycomposed.wordpress.com/2017/04/14/knitter-natter/
  3. https://illness-to-wellness.com/2017/04/15/what-to-say-when-someone-doesnt-know-what-to-say-in-response-to-your-suffering/
  4. http://superpooped.blogspot.co.uk/2017/04/spoonies-artist-problems.html?m=1
  5. http://mysurvivalcollective.com/thank-you-for-my-chronic-condition
  6. https://www.consciouscrafties.com/dealing-with-a-large-order/
  7. https://thegirlwiththefiveladsandfibro.blogspot.co.uk/
  8. http://mystripylife.blogspot.co.uk/2017/02/9-reasons-school-causes-stress-eds-cmt.html
  9. http://countingmyspoons.com/2017/04/when-your-partner-is-struggling-with-chronic-illness-and-pushing-you-away/
  10. http://fedupwithfatigue.com/april-14-2017-fibromyalgia-news/

 

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Beautiful picture from Ness’s post on The Girl with the Five Lads and Fibro

Monday Magic – Inspiring Blogs for You

On By Claire Saul (PainPalsBlog)In Blogging, chronic illness11 Comments

Monday Magic

 

Good evening and apologies for the delay in today’s MONDAY MAGIC.  I have been otherwise engaged in Accident and Emergency following a Potsie faint yesterday afternoon – my Smart crutches held onto my arms as I fell leaving me with dislocated shoulders, elbow alongside a hip, knee and ankle.  One shoulder was not playing ball and by this morning my hand was swollen and resembling navy cottage cheese, my neck and pec muscles were in spasm and my arm was twitching like a paper fortune telling fish.

An xray confirmed what we already knew – and more as it was a particularly “odd” dislocation according to the consultant.  A dose of IV fentanyl & paracetamol, midazolam to relax the muscles and knock me out and 2 burly doctors did the trick.  We did smile though when told to go back to fracture clinic in 10 days – it will be out several times by then!  Feel like I’ve been hit by a truck tonight – I hurt so many bits in the grand collapse that Duncan is banning all walks now!!

This week’s blogs for you to get your teeth into are:

  1. http://www.ggmandy.com/2017/04/07/life-interruption/
  2. https://morespoons.com/time-change-physician-done-part/
  3. http://www.fibrofantastic.com/yogaforfibromyalgia/
  4. http://girlinhealing.com/carrot-cake-w-cream-cheese-frosting-grain-refined-sugar-free-dairy-free-option/
  5. http://asouthernceliac.com/chronic-coffee-chat-living-grace/
  6. https://medium.com/@KirstenSchultz/a-roundup-of-posts-against-autism-speaks-5dbf7f8cfcc6
  7. https://robertmgoldstein.com/2017/04/09/broken/
  8. http://edsjour.blogspot.co.uk/2017/04/health-update-blogging-from-my-hospital.html
  9. http://www.thisspooniespeaks.com/2017/04/my-experience-with-liberty-lotion.html
  10. http://itoldyouiwassick.info/2017/04/10/how-accessible-is-the-internet-for-people-with-disabilities-infographic/SONY DSC

Are you a Chronic Illness Blogger?

On By Claire Saul (PainPalsBlog)In Blogging, chronic illness18 Comments

Calling all bloggers – do you write about chronic illness?  Have you found the Chronic Illness Bloggers yet?  We are a group of like minded individuals who link up and support each other on our blogs, Facebook pages, Twitter, Pinterest, Instagram….you get the idea.

Our blogs range from posts on individual illnesses – pain, fibromyalgia, EDS, mental health, migraine, Lyme disease, to name but a few – to reviews of products, books etc., coping mechanisms, recipes, blogging tips and living life!  Come and join us.

cibloggersinvite

So, here goes……

On By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic pain, Spinal cord stimulator16 Comments

“Why do you want to write a blog?” was my teenage son’s reply when I asked him to set this up.  That’s as good a place to start as any.

On Friday, tomorrow, I am due at Guy’s hospital brightand early for a neuromodulation trial – the implantation of a spinal cord stimulator (a  sophisticated internal TENS!) to help combat the chronic pain that I am suffering. I have read and watched various accounts online of other people’s experiences, but I want to try to put into words how this experience feels for me.  I would like to share my journey (at risk of sounding like I’m on X Factor) with my friends and other fellow chronic pain bods – you know who you are – all to be known as my Pain Pals!

I will try to update you on my progress regularly, as well as adding elements of my history and the often strange and laugh out loud moments of a body disabled by pain.

So back to my son’s question……I think that I am writing as much for me as for the rest of you.  To help to inform my friends and family, to get my own thoughts and feelings out and, if I can, to help anyone else out there who is living with chronic pain.

Nil by mouth shortly, early start tomorrow morning.

Thanks for joining me,

your pain pal,  Claire