Good morning and welcome to another Monday Magic with some more great inspiring blog posts for you. I have just returned from a GP appointment and my head is spinning with the various specialist appointments I have on the agenda….endocrinology this week, cardiology, rheumatology, hip x ray and then orthopaedics…..
This is without the referrals for the kids! University College, London where I was diagnosed no longer accept direct referrals so the kids need to be referred by another consultant. Initially this was to be a paediatrician, but the A level student has turned 18 and the paediatric department decided that they really don’t know enough about EDS to take my lovely girl on, so she has been referred to a paediatric geneticist. We are going to try to get an appointment for my son with the same rheumatologist that I see…….I think that we just have to go with the saying “don’t hold your breath”!
So I am going to sit down with a coffee and enjoy some tips, some yoga and some stories from some of my fellow chronic illness bloggers – if you look and listen really hard, you might spot yours truly in the You tube film from Invisible Girl!!
https://1nvisibl3girl.wordpress.com/2017/05/05/living-with-ehlers-danlos-syndrome-edsawarenessmonth/
https://howtogeton.wordpress.com/2017/05/07/how-to-answer-15-tricky-disability-questions/
http://www.satonmybutt.co.uk/more-flare-ups-than-good-days/
https://brainlesionandme.com/2017/05/07/self-care-happy-distraction/
http://www.health-hats.com/golden-rule/
https://weartearandcare.com/2017/05/02/meeting-the-neurometrix-team-and-seeing-the-quell-up-close/
http://glasshalffull.online/accessible-yoga-for-all/
http://dystonialiving.blogspot.co.uk/2017/05/my-4-favorite-self-help-tools-for-pain.html
http://www.makeitbakeitfakeit.com/2017/05/my-body-my-prison-my-life-with-mecfs.html
http://upbeatliving.net/downsizing-emotional-work-tips/
http://dadhasaheadache.com/2017/03/22/shattered-dishes/
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