Monday Magic – Inspiring Blogs for You!

Another week has passed, the heat wave in the UK has broken and students across the country have either just received exam results or are awaiting them this week.  In our house, the lovely girl will receive her GCSE results this week and remains very calm and level headed.  But she can’t get her head around the year group chat that is full of anxiety about grade boundaries and count downs to the “big day” – I agree with her that there is no point worrying about the grade boundaries when you have no idea what grades you have received yet!

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Photo by Pixabay on Pexels.com

The national press is of course feeding this anxiety with articles about the new exams – both GCSE and A level – are they harder, are the grade boundaries higher/lower, have more students done better?  I’m not sure we will be able to make head or tail of her results though as half will be the old style A-C grades, with the remainder bearing the new numerical grades 1-9!!

 

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Monday Magic Inspiring Blogs for You! 20 Aug

 

The politics student is currently taking exams – he was unwell earlier this year with chronic migraines so the university deferred exams until now.  I actually received a text after his first exam earlier!  Maybe it has finally dawned on him that although these first year exams don’t count towards the final degree, he does need to pass them all to go back for the second year……his sister would be horrified to find that both brothers were back home permanently! I’m not sure that my kitchen would cope either…..

I have spent another dislocated week vaping on my Medipen – I feel a review coming on – and adding to my “surgical appliances”.  Firstly I bought some physio kinesiology tape after reading Ali’s article last week – I thought that hubby might be able to learn how to tape my arm back in place, but the family consensus seems to be to mummify me in it! Hmmmm……..Then I sent hubby out to Lidl to buy some chicken and he came home with ankle supports.  Those of you who are Lidl or Aldi fans will know that the middle rows in the store are always very exciting and you never know what you might find nestling alongside the crisps and fruit juice!  This week it was various medical appliances from heat pads to raised loo seats seated next to petrol powered jet washers and lawn mowers.  I came home with a garden table on one occasion….

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So whilst sitting here watching youtube videos about applying sticky tape to my body (we will get our physio to teach us) and adding more velcro straps to my wardrobe, I have been perusing the blogosphere to find some more fab posts for you to read.  Who has heard of #BlogBattle:Moon?  Have a look at Gary’s post for this writing challenge. I’m excited to introduce you to Anna, a local artist who also happens to be a part of the We All Send Cards community (where my girl’s art can also be found on greetings cards).  She has been featured on the Women Talking website and discusses her career as an artist alongside her diagnoses of dyslexia, dyspraxia and ADHD.  Lily provides pointers for US residents navigating the benefits system at How To Get On blog.  The lovely girl is very pleased that I have included a post about “period poverty” – something that hasn’t been spoken about in the past.

So grab a glass of something nice, turn off the phone and sit back to indulge in some great reads…

https://fictionisfood.com/2018/08/09/blogbattle-moon/

https://writeintolife.com/2018/08/17/motivation-why-do-older-bloggers-blog/

https://kerrylifeandloves.com/2018/08/16/experience-boa-vista-cape-verde-choose-happy/

https://sarahsbrandnewchapter.com/2018/08/17/memories-of-my-grandma/

http://www.womentalking.co.uk/topics/lifestyle/intuitive-oils

https://www.meriahnichols.com/lorna-duff-howie/?utm_source=facebook&utm_medium=social&utm_campaign=SocialWarfare

https://howtogeton.wordpress.com/about-the-artist/social-security-disability/

www.lifeofpippa.co.uk/2018/08/16/periods-poverty-and-perceiving-empathy-walker-ya-blog-tour/

http://katethealmostgreat.com/is-chronic-illness-a-disability/

https://prettycouchpotato.com/2018/08/16/diy-tpn-backpack/

Please share, comment and like these posts!

Have a great week,

Claire x

intuitive oils

Monday Magic – Inspiring Blogs for You!

Black Friday has gone…although I suspect it will roll into the pre Christmas sales, my friends in the US have celebrated Thanksgiving and in our household we have celebrated my nephew’s 7th birhtday…and on St Andrew’s Day will celebrate my brothers’s birthday (no age, he might be reading!).  This must mean we are really starting the count down to Christmas!

I have been party to several inspirational moments this week – no, not making the Ghostbusters birthday cake although I think it was pretty good considering the ongoing struggle to keep my shoulder in socket!  The first was a visit to see the film Unrest, made by Jennifer Brea about living with ME/CFS at a local theatre with my mum.  I’m not going to say much about the film here as I will write a review – but Jen introduced us to some really inspiring people across the globe, and then mum and I met some lovely people in the foyer after.  Naturally they assumed that I have ME, and I explained what I do have (EDS, POTS) and how there are many overlaps.  I was delighted to meet one gentleman who was there alone, but has a daughter with a new tentative diagnosis for hypermobility syndrome and possibly POTS.  He took my details, the blog, and information for EDS UK and I really hope that his daughter will get in touch.

As Chair of the KGS Friends, I am often invited to events at my old school and this week Duncan and I attended the senior school production.  We had no idea what to expect and I was slightly nervous when I realised that my wheelchair spot was virtually on the stage – if I had released the brakes I would have taken out a bale of hay and been centre stage.  But we need not have worried about having to applaud politely…..this production of “Nell Gwyn” was fantastic!  We were so impressed by the acting, the singing, costumes – everything!  It equalled a night out to any professional theatre – honestly.  As in every production there were several stand out performances – one from a young man playing the actor who always played the female role (remember this is Charles II time) and he was hilarious.  Comic timing that many pros would envy just oozed from him.  Then there was the young lady playing the lead role, Nell Gwyn.  Isobel Thom was superb!

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Isobel Thom (as tweeted by Izzy)

She never missed a beat with her speech, her singing or the comedy – I do hope that she continues to act when she leaves for higher education next year.  A truly inspiring group of teenagers – we had a wonderful night.

Finally the student engineer asked me yesterday about my nursing at the Middlesex Hospital, London as he had come across some articles about the first HIV unit and a photographer who took intimate pictures in the early 90s.  The photographer is Gideon Mendel and he has published a book called The Ward…..the wards in question being Broderip and Charles Bell.

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Photograph from collection by Gideon Mendel entitled The Ward

As student nurses working and living at The Middlesex, I believe that we were priviledged to witness some very special times.  They were not easy times and this was probably the first encounter that many of us would have with people our own age dying.  HIV and AIDS was a death sentence then and the majority of the patients were young gay men.  They were misunderstood and villified by certain elements of the press – they were blamed for this disease and feared by the general public.  I remember that there was a huge stigma attached to the unit even amongst other hospital staff in the early days, and haemophiliac HIV positive men did not want to be on the same ward.  Many of the young men had been disowned by family (for being gay) and their support network was from the gay community and the nurses. But I learnt so much about human nature, tolerance and love.  I still remember the first time I saw a Kaposi sarcoma lesion and a young man needing assisted breathing for pneumocystitis pneumonia – both AIDS defining illnesses then.  I believe that for many of us young nurses, we saw no distinction between these young men dying and others dying on the oncology wards.  We “grew up” in our nursing training knowing this terrible disease and the few retroviral drugs available at the time, but this was unusual.  Many of us went on to undertake a specialist course for Care of HIV and Aids once we had qualified (ENB 934 i believe!).  One of my friends also pointed out that it was very unusual for a partner to be allowed on the bed with a patient in those days – no matter sexuality.  The care was enlightened and a patient transfer to the AIDS hospice, The London Lighthouse, really stayed with me into my days as a hospice nurse.  It took years for other areas to catch up – I can still remember the first AIDS patient to be admitted to our hospice in approx 1997 and the ignorance (not intentional) amongst experienced staff.  The young men we cared for and those pictured in The Ward all died, but just several years later advances in pharmaceuticals meant that HIV was no longer a death sentence. As a former nurse and the mother of a young gay man, I am so thankful that times and attitudes have changed and must continue to.

Wow…bit longer than I intended so I will launch straight in and hope that you will indulge my first choice which is a post about Broderip ward.  There is some cookery and stress relief for the holiday season and something called “The Single Woman syndrome” – intriguing. So grab a cuppa and enjoy some new blogs!

https://news.fitzrovia.org.uk/2017/10/15/life-on-middlesex-hospitals-aids-wards-revealed-in-book-and-exhibition/

https://lightscameracrohns.com/2017/11/27/10-tips-for-those-who-dont-have-ibd/

https://www.anchoredinhealth.com/home/2017/11/24/holiday-recipe-series-cranberry-crumble-bars

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Image from Anchored in Health blog

https://www.mecfsselfhelpguru.com/2017/11/spoonies-saving-the-world-our-value-as-the-canaries-in-the-coal-mine.html

http://chronicallyhopeful.com/shaking-trembling-mecfs//shaking-trembling-mecfs/

https://katiejunesmedley.wordpress.com/2017/11/23/update-blogmas/

https://kedawithani.wordpress.com/2017/11/11/the-single-woman-syndrome/

https://mashaellman.com/2017/11/26/did-you-know-you-have-endless-possibilities/

https://iwillnotliveinvain.wordpress.com/2017/11/26/until-then-bye-dane/

https://lisaorchard.wordpress.com/2017/11/25/looking-for-some-stress-relief-for-the-holidays/

 

Please give these lovely people some feedback – it makes it all worthwhile!  Have a fab week,

 

Claire x

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Monday Magic - Inspiring Blogs for You!

 

Monday Magic – Inspiring Blogs for You!

Another week has flown by, there have been yet more storms – why did ours in the UK get the name Brian? – more Brexit and the increasing #MeToo campaign.  In our house we saw the end of the German exchange as our lovely girl and her friends’ student partners returned home.  Absolutely exhausted!  The girls are now coming down off a high and the start of half term is a bit of an anticlimax, particularly with mock exams looming.

Our girl is studying art – you probably know already as this proud mum has posted pictures, much to the disgust of my girl – and has a portfolio to work on and also a sketchbook for an interview.  The house is destined to filled with paints, charcoals, paper and panic!  I am doing something this week that I don’t normally, but I’d like to shamelessly introduce you to some other talented youngsters – the triplet daughters of an old school friend.

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Art By Three

They have  been featured on Sky Landscape Artist of the Year, and are currently working with the UK’s National Trust on the Scotney Old Castle campaign. Whilst not strictly a blog post, I have included both their website and the campaign site as I strongly believe we should support and nurture young talent – I am not asking you to donate but to take a peek, maybe follow them on Facebook and Instagram…..

The other posts are all fantastic and range from an article that fits with the #MeToo campaign but stems from a personal story of surviving from Illness to Wellness, to acupuncture at My Migraine Life to social well being from a new blog to me Little Adventures NZ.  There are a couple here that are particularly great reads for you ladies – I love the look at Envy on Wendy Fairy Art – and all you mums and dads must read “My Husband Doesn’t Help” from the Coffee Mom.  It is not what you think it is!!!  Add in some OCD at The Thyroid Damsel and what more diversity could you want?!

So it is that time to grab a cuppa, turn your mobile to silent and spoil yourself with some great reads.  Please comment, share and follow some of these lovely people if you enjoy their work.

https://www.jumblebee.co.uk/scotneyoldcastle1010campaignwithartbythree

http://www.artbythree.co.uk/

https://littleadventuresnz.com/puzzle-piece-series-social-well-being/

https://wendyfairyart.com/fairieartblog/sistership-wound-called-envy-deal/

 

https://www.thecoffeemom.net/2017/10/20/husband-doesnt-help/

http://notebooksandglasses.com/sitting-disability/

http://coffeeandcarpool.com/be-less-stressed-as-a-special-needs-mom/

http://thethyroiddamsel.com/?p=310

https://mymigrainelife.wordpress.com/2017/10/22/does-acupuncture-work-for-migraine/

https://illness-to-wellness.com/2017/04/07/showing-up-for-sexual-assault-survivors/

https://thepainfreelife.com/life-interrupted/the-death-of-a-marriage-the-year-that-changed-everything-part-1/

Have a great week,

Claire x

Monday Magic - Inspiring Blogs for You! 23 Oct