A Little Winter Magic and some Chronic Illness Reflections with Inspiring Blogs for You!

Hello PainPals!  I did start an Inspiring Blogs for you last week, but life seemed to get in the way.  This leaves a couple of weeks in the PainPals house to catch up on, yet the brain fog is leaving me struggling to remember what happened yesterday let alone last week – but I will try.

Winter Magic & Chronic Illness Reflections

 

When chronic illness (CI) slowly creeps up on you, often the “patient” and the “nearest and dearest” don’t notice how life has changed because we are all too busy living it.  A couple of weeks back I was very proud that I managed to successfully make a 50th birthday cake for a friend’s Silver and Gold party.  The cake took all week as I painstakingly cut out icing stars, painted them, baked the cake,  iced the cake – taught hubby how to ice the cake! – and decorated it.  I am so slow now as my hand frequently spasms (when painting on hundreds of gold “stars”) and the dislocated right arm is not conducive to handling a heavy icing rolling pin! But I did it.

 

Dancing queen

 

The next challenge was to get to the actual party.  Before CI, dressing up in silver and gold sparkles and spending my night on the dance floor being the dancing queen would have been a great night out.  With CI it can be a struggle to actually get out in the evening before fatigue sets in, but an extra strength is needed to overcome not just the physical limitations but the psychological ones too.  Before I could get through the door of the party venue in my electric wheelchair, I had to break through the barriers that my own brain was throwing up as I came to terms with no longer being an able bodied dancing queen.  The words drowning queen often spring to mind as the body won’t behave in the way that the head wants it to.  I still struggle, yet live this daily – and it soon became clear that it wasn’t just me having to come to terms with these changes.

 

underwater photography of woman
Photo by Engin Akyurt on Pexels.com

 

Several different friends asked if I had seen another lady – a mum from the primary school, where we all used to meet at the school gates when our now young adults were little. The interest here was that she was walking with a stick and “something” had happened to her – they wondered if I knew what?  I didn’t know, but immediately recognised that there would be people looking at me in the same light “last time we saw Claire she was up and mobile – for some it would have even been pre walking stick – what has happened that she is in now in a wheelchair?”  But for anyone who hasn’t witnessed that event or that general decline, so often they feel they can’t ask.

 

ask blackboard chalk board chalkboard
Photo by Pixabay on Pexels.com

 

When this other lovely mum and I “bumped” into each other at the edge of the dance floor, I think that we immediately recognised kindred spirits and were also not afraid to ask “what happened?”.  She told me that she had suffered a stroke in her forties, I told her about my back surgeries and downward spiral with Ehlers Danlos Syndrome and chronic pain.  We discussed wheelchairs! When I later said to my friends that others (who hadn’t been with me over the last 10 years) would be wondering about me in the same way that my pals had mentioned the other lovely mum, at first they were taken aback and then realised this was true.  People who were not in the know were not “gossiping” about us, but rather were surprised to see such a huge change and I think this makes us think of our own frailties and indeed mortality. But I can assure you – a good time was had by all!

 

 

There has been a momentous event in the household – the young engineer has moved out! Hang out the bunting, change the locks……no, only kidding but I have to say that the household has used far less pasta and tuna in the weeks that he has been gone.  He has moved with a couple of friends into a swanky pad alongside the Queen Elizabeth park – home of the 2012 Olympics – in east London.  I did remind him that the new bedding would not only have to be put on the bed but also taken off the bed and put in the washing machine…..that gizmo sitting in the corner of the bright white new kitchen.  I wonder how long it will stay looking that way?!  This place is so smart that there is even a posh onsite gym for residents!  I am happy to report that he has not returned to the wrong address – at least not to this one, his better half may beg to differ!  Hubby and I have been sure to book our Christmas dinner at his place (we might be treated to tuna pasta).

 

 

The weather in the UK has been truly wet over the last fast weeks and with the changing of the clocks winter is arriving.  I have been reading some great wintery posts over the last few weeks so thought that I would share some before we enter December. So sit back with a cup/glass of something delicious and enjoy!

https://www.brainlesionandme.com/reasons-for-loving-winter/

https://chronicpainfighter.com/are-weighted-blankets-helpful-in-fibromyalgia/

https://chronicallyresilient.org/7-ways-to-beat-seasonal-affective-disorder-this-winter/

https://jademarie.co.uk/emetophobia-winter-coping-techniques/

https://crookedbearcreekorganicherbs.com/2019/11/25/the-herbs-and-spices-of-thanksgiving/

https://thecuriousfrugal.com/fall-soups/

http://www.paperseedlings.com/2019/11/wasted-snowflakes.html

https://www.momentsofpositivity.com/2019/11/believeing-in-yourself.html

https://mcwglenys.blogspot.com/2019/11/sex-isnt-everything.html

https://bysarahwhiley.wordpress.com/2019/11/26/peace/

Thank you for reading and please share/like/comment on the posts that you enjoy.

Have a great weekend,

Claire x

Midweek Magic – Inspiring Blogs for You!

Regular readers will have realised that Monday isn’t working out too well for the regular blog share post.  Maybe yours truly isn’t organised enough (yes, Mum, I know!), maybe I prioritise my admin role for scheduling within a Facebook group (Chronic Illness Bloggers, I love you all), maybe the day to day fluctuations of my own chronic illness just take over.

Monday Magic Inspiring Blogs for You!

One of the most frustrating aspects of chronic illness – chronic pain, Ehlers Danlos Syndrome, POTS etc etc – for me is being robbed of the ability to make plans.  Don’t get me wrong, I do still make plans but I hate having to cancel and at times it does feel easier just not to make those plans in the first case.  It would be so easy to slide into an oblivion of constant sofa days without ever having to worry about keeping an appointment.  But this is too often the reality for the chronically ill with regular flare days and once very active people find themselves unable to keep up with life – certainly true for me.  So I must still try to make arrangements and to get out and about when I can.  I won’t be running any marathons soon, but this week I have managed a couple of trips to the park (between rain days) and a cinema visit to watch a recording of Matthew Bourne’s ballet Romeo and Juliet from Sadlers Wells. Different, controversial, inspiring, beautiful, dark, amazing…..just some of the words to describe it.

woman sleeping on sofa with throw pillows
                                   “SOFA DAYS”                                          Photo by bruce mars on Pexels.com

 

The beginning of half term was dominated by A level English Literature course work, as the lovely girl battled to complete her comparison of two self chosen novels.  With hindsight – that wonderful thing! – I think that maybe she bit off rather too much in choosing A Little Life (Hanya Yanagihara) and The Goldfinch (Donna Tartt), both weighty tomes.  The first deadline came and went, as did the second.  Meanwhile a Whatsapp group gaggle was regularly checking in as they all struggled to complete their pieces on their respective books.  By the following morning the lovely girl’s piece was complete but needed to be cut by 1500 words!!!  Hubby and I were called in to help with proof reading/editing, which was hard enough for me as I have only read one of the books, but hubby has read neither!  We were both sent packing pdq, but we do feel that we know the books inside out now (I have read A Little Life and thoroughly recommend it – warning not a happy read!!).  Finally, 24 hours after the original school deadline, her piece was submitted…..now it is on to the Extended Project and the art coursework. I may not be physically doing the work, but I feel like I am (ha, ha, ha).

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I think that I have found some great new blogs for you this week and hopefully will brighten your day as we step well and truly into Autumn – the rain in my part of the UK has been horrendous.  Grab yourself a cuppa, sit back and enjoy!

 

https://debs-world.com/2019/10/19/want-to-know-what-you-said-here-are-your-responses-to-the-question-how-do-you-blog/

http://chronicallyhopeful.com/exploring-the-garden-and-our-first-family-bbq-in-years/

http://calminsights.com/come-lets-sit-and-heal-each-other/

https://teaandcakeforthesoul.wordpress.com/2017/10/20/apple-coconut-squares/

https://beingandniceness.com/2019/10/21/subjectivity-narcissism-and-self-psychology-freud-and-beyond-part-5/

https://novelisteer.wordpress.com/2019/10/18/i-wish-you-all-the-best-by-mason-deaver/

https://moriganna.com/work/starting-to-stress-out-practical-tips-to-prevent-spiralling/

https://lifewithspinabifida.com/2019/10/21/the-job-search-has-ended-why-am-i-relieved/

https://thereluctantspoonie.com/2019/10/21/3-pots-advocates-to-make-friends-with-today-dysautonomia-awareness-month-2019/

https://crookedbearcreekorganicherbs.com/2019/10/21/october-herb-of-the-month-safflower/

https://www.thecurvaceousvegan.com/2019/09/19/am-i-ever-going-to-be-enough-in-the-blogging-world/

Please comment, like and share – make a blogger’s day!

Have a great week!

Claire x

Midweek Magic 24th Oct

 

Monday Magic – Inspiring Blogs for You!

It is Easter Monday – hope you have had a great holiday weekend!  The weather has been just spectacular here in the south of Britain – the young engineer and friends have had a balmy weekend on Hayling Island (just off the south coast, near Chichester) where they donned shorts and enjoyed temperatures on the beach more akin to Club Med!

Monday Magic Inspiring Blogs for You! 22 April

A huge event for me this week was finally being visited and assessed by a community Occupational Therapist.  I can’t even tell you how long I have been on the waiting list, it has been that long!!  A big plus was that said OT, Johnny, has had one previous patient with EDS so he was familiar with the condition and knew a little about POTS too.  What a difference it makes when you don’t have to teach the medical professional from the word go…..although the spinal cord stimulator was something new to him.  It seems that maybe I am more in need than I thought – although the kids would tell you I am needy!! – or rather I might be deemed eligible for more help than I had anticipated.  Apparently it is possible for the assessment to recommend a need for a Japanese style loo – you know, one that washes and dries before it flushes (it may even play music….joke!!).

bathroom cabinet candles faucet
Photo by Joey on Pexels.com

So if the OT recommends it AND the local authority agree it, I might be able to get my electric wheels out of the house via the front door in the not too distant future…..the dog will appreciate a ramp, and a walk in shower to replace the bath and a stair lift might be on the cards too.  Watch this space!!

Chocolate has invaded the house this weekend.  The kids might be young adults now, but they have still been given a “healthy” supply of chocolate in the shape of eggs, bars and rabbits.  I have a complete new shelf of ornaments!

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The blog posts for you this week include a mixture of spring and Easter posts, recipes, Earth day and health topics. Grab yourself a cuppa, sit back and enjoy!

https://www.abalancedbelly.co.uk/glutenfreeeastercakes/

https://www.style-yourself-confident.com/spring-lifestyle.html

https://www.baileyleah.com/2019/04/mini-egg-cheesecake.html

http://www.kayleighrvr.co.uk/2019/04/what-i-wish-i-knew-when-i-was-younger.html

https://darlenefoster.wordpress.com/2019/04/12/understanding/

https://decorcraftdesign.com/2019/04/15/love-our-earth-day-in-pillows-tote-bags-and-t-shirts/

https://www.chronillicles.com/disability-blogger-award/

https://dinosaursdonkeysandms.com/yoga-with-dizzy-dizzys-delightful-yoga-poses/

https://notesfromtheuk.com/2019/04/19/is-an-excess-of-money-clogging-up-your-life/

https://chronicallydrained.info/chronic-asthma-allergies-lupus-hashimotos-diabetes-and-more-all-lead-to-a-lifetime-of-medication-for-kristin/

Please remember to comment, like and share posts you enjoy – voting closes for the Annual Bloggers’ Bash Awards this week, so it would be great if you would consider voting for me in the Best Lifestyle Blog and many other super bloggers – vote here.

Have a great week,

Claire x

 

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Monday Magic – Inspiring Blogs for You!

Here I am, already running a day late this week – but as I had already found some blog posts for Monday Magic I thought I’d go ahead and share them today.  The shoulder and neck are feeling a little easier and the amount of opioid floating around my system is considerably smaller so I can put pen to paper…….well fingers to laptop!

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Monday Magic Inspiring Blogs for You! 15 April

 

So what have we been up to in the PainPals house this week?  I mentioned in my last post that hubby made a trip to his parents and left me in the not so capable hands of the oldest and youngest children/young adults!  We survived to tell the tale although the crumbs in the kitchen drove me to distraction.  On Saturday the three of us joined my parents and various other cousins for a family lunch and I was so pleased to actually make it there.  The most exciting thing was being told that my cousin and her partner have booked to be married next year on a cruise aboard the Queen Mary to New York.  The funniest thing was that her other half made an announcement, whilst she sat there all embarrassed saying that “it really isn’t a big deal”…….well in that case cousin, I will go to New York on the Queen Mary with your fiance, and then on to Washington and Niagara Falls!!  Ha, ha, ha.  She doesn’t want to make a big fuss at their “time of life” – mid 50s and 60.

Rachel and Claire
Having fun with cousin Rachel last year!

 

The young engineer was slightly on edge during said meal as hubby was home, but he was taking advantage of a friend’s season tickets to a London football match (Fulham v Everton for you footie fans!) and had taken the young engineer’s better half with him.  Would dad show him up? Would he say something really outrageous?  No, son – they are both football fans (both support Chelsea actually!) and will have far too much to talk about that will not include you!! Our friend was in Paris supporting his boys in the marathon and was gutted that having lost several matches in a row, Fulham actually won!!

Fulham cake
Fulham Football Club cake that I made a couple of of years ago

The house is back up to full capacity as the politics student arrived home last night for the Easter break – after false start at the weekend when he was struck down with a migraine (he promises migraine and not hangover!) after finishing an essay….early.  I haven’t investigated the bags yet, but there is only so much dirty washing that can be transported on a coach trip…..I think that I might leave a trail of arrows to the washing machine.

I hope that you have had a good week and are ready to sit back with a cuppa and enjoy some fantastic blog posts.  The beef and ham cheese roll looks amazing, “Getting Older” made me laugh out loud and Christie Hawkes’s post really gives food for thought.  Enjoy!

https://italiangoodness.net/2015/02/15/beef-and-ham-cheese-roll/

https://hopehikesandhealing.com/2019/04/11/how-to-be-with-the-suffering-of-loved-ones/

https://www.niamhgabrielle.co.uk/emergency-red-cord-cards-by-euans-guide/

https://meditationsinmotion.wordpress.com/2019/04/14/fixing-the-fixer/

https://www.jtouchofstyle.com/dementia-training-for-caregivers-jill-lorentz/

https://ohmrstucker.com/getting-older/

https://msbrensays.com/2019/04/11/just-when-you-think-you-cant-you-can/

https://sewprettyinpink.com/2019/04/16/a-unicorn-onesie-for-recovery/

https://christiehawkes.com/the-power-of-words-and-mindful-speaking/

https://www.momshomerun.com/2019/04/wherever-i-run-there-i-am.html

 

Please like and share the posts that you love – make a blogger’s day……and if you would vote for me in the Annual Bloggers’ Bash Awards you would make mine!  Please vote here.

Annual Bloggers Bash Awards Nominee Best Lifestyle Blog

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

Welcome pain pals and apologies for the lack of interaction this last week.  Just prior to last week’s Monday Magic I managed to remove my humerus from its glenoid cavity…..or rather my shoulder had dislocated, yes I know…..again! Honestly my right shoulder is out more than in these days, but this last week has been particularly bad causing a few sleepless nights, much knocking back of morphine and generally feeling pretty low.  It really is unusual for me to want to do nothing – to not even be able to use my computer…..

Monday Magic Inspiring Blogs for You! (5)

 

Then I woke up Sunday morning with a beautiful eyeliner applied perfectly to one eyelid in a fetching shade of rose red.  You could not draw such a perfect line, although the lovely girl offered to try to match it on the opposite eye.  By the time my GP saw it this morning it had changed shade to a purple edged with yellow which now looks more like eyeshadow over the whole lid.  She says it is an infection in the lid, but I still think hubby had something to do with it after I poked him for snoring!! (Joke!)  However he has banned me from opening certain drawers as that is how the latest “joint parting of the ways” came about, and it is still falling out of socket every time I move.  Good excuse not to cook or clean though!

closeup photography of woman red lipstick
Photo by Julia K on Pexels.com

The week hasn’t been all bad for yours truly, as I had tickets to see the sixties inspired West End show “Rip It Up” with my mum.  I was worried as I was still feeling pretty rough, but with plenty of cushions for the car journey and then in my wheelchair when we got there, I survived.  I feel very fortunate to be able to secure both a wheelchair space and a free seat for my carer – in this case mum had a much more comfortable stand alone arm chair – situated in this theatre in the back row of the dress circle.  The show stars former Strictly Come Dancing stars : Harry Judd of McFly, Jay McGuiness of The Wanted, Aston Merrygold of JLS and Olympic gymnast Louis Smith MBE.  These boys sing, dance, drum and flip their way through the show.  The rest of the cast are such talented singers and dancers – Jill Marie Cooper’s voice blew me away – and there are some surprise turns on screen from sixties icons!

Rip It Up
Google images

Enough…I’m making up for my lack of typing this past week.  I have a selection of very varied posts for you from a cheeky look at middle names to several health posts to concert and book reviews to an interesting smoothie with a twist for my spoonie pals.  So grab a drink, sit back and enjoy!

http://scaleitsimple.com/2019/03/11/the-7-stages-of-a-taking-a-vacation/

https://www.radiantnubeginnings.com/menopause-the-final-stage-in-a-womans-life-does-it-frighten-you-too/

http://catherineinthecity.com/2019/03/10/drink-your-greens/

https://hotmessmemoir.com/2019/03/10/happy-middle-name-pride-day/

https://thecuriousfrugal.com/my-attempt-at-the-complaint-free-challenge-month-1-update/

https://ohmrstucker.com/perfect-oatmeal-cookies-with-dried-apricots/

https://rachaelstray.com/george-ezra/

https://dgkayewriter.com/sunday-book-review-20-learned-patients-olga-nunez-miret/

http://www.bbhwithms.com/ms-cannabis-recipe-for-my-medicated-smoothie/

https://dinosaursdonkeysandms.com/rainy-raspberry-relapses/

Please spread some joy and comment, like and share these posts.

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

March is here and the weather has been so mild that it has felt like near summer some days, and definitely spring.  The spring flowers are in bud, the trees are starting to change colour….and hay fever has raised its sneezy head in our house!  Hubby and the lovely girl both have runny noses and itchy eyes, probably from tree pollen and moulds so out with the nasal sprays and antihistamines again.

monday magic 4 th march

It has been a busy week – well at least for my limited world – with several consecutive nights out.  I saved my spoons by doing very little during the day and had a lovely night at the theatre to see Rock of Ages, followed by a mums’ night out and being taken to dinner by the young engineer and his better half!  The theatre trip was exciting as my favourite from Strictly Come Dancing, the wonderful Kevin Clifton, was appearing – not as a dancer, but as a singer.  Boy can he belt out a song!! The show is very slapstick and certainly made me laugh – and I must shout out for the New Wimbledon theatre making it a very easy and accessible visit for this wheelchair user.  There is a special entrance with a lift to take those with mobility difficulties directly to the stalls and this is where the wheelchair and carer spaces are.  We were able to order our interval ice-cream in advance to be delivered directly to us, and the accessible toilets were huge and well equipped.  How can I go from talking about the lovely Kevin from Grimsby to the loos?!

RockOfAges_Kevin_Clifton
Current Strictly champion Kevin Clifton in Rock of Ages

 

Our mums night out had been arranged and was the height of embarrassment to our 16 and 17 year old daughters who can’t understand why their mothers might possibly want to go out and socialise.  We ate, drank and chatted so well – not all about the girls! – that we were the last ones in the restaurant.  Speaking of restaurants, the young engineer took us to a well respected London steak establishment just off Regent Street at the weekend.  We drove and used the Westminster “Park Right” app to find a blue badge parking space – parking spaces of all types have a sensor to detect if they are occupied and this connects live to the app.  It worked! I’m not sure what I had expected, but finding an empty blue badge spot just off Piccadilly Circus seemed too good to be true!  The staff in the steak house were all helpful with the wheelchair and even said that they would put a ramp at the steps so that I could use the disabled toilet.  Everything was going so well until I got to the top of the ramp and then couldn’t open the heavy door into the toilet corridor…..oh well, they tried!

Of course since yesterday  I have found myself all out of spoons and the weather changed back to cooler conditions.  So a perfect day to find some interesting blog posts for you and I hope you’ll agree that there are some great reads here.  Enjoy!

 

https://migrainemantras.com/2019/03/03/voices-from-the-hill/

https://rachdowsonwilliams.blogspot.com/2019/02/exploring-town-i-love-so-much.html

https://www.beautifulmindlifecoach.com/2019/01/always-3rd-wheel.html

https://lisaorchard.wordpress.com/2019/02/24/are-we-the-indoor-generation/

https://carolcooks2.com/2019/03/04/pancake-day-5th-march-aka-shrove-tuesday-mardi-gras-or-fat-tuesday/

https://beetleypete.com/2019/03/04/the-right-thing/

https://ablondeinthecrowd.wordpress.com/2019/03/04/a-letter-to-me/

https://topladytalks.com/2019/03/04/to-retreat-or-not-retreat-a-review-of-our-accessible-meditation-weekend/

https://noreenlace.com/2019/03/01/special-needs-authors-and-readers-an-interview-with-patty-fletcher/

https://www.sizzlingtowardssixty.com.au/the-importance-of-downtime/

Please like, comment and share the posts you enjoy!

Have a great week,

Claire 

Monday Magic – Inspiring Blogs for You!

I can never believe how quickly Monday Magic comes around, but what I do know is that week after week I find just how many fantastic blogs and bloggers there are in the blogosphere!

Monday Magic 25th Feb

The stand out story for me this week was that of Tony Foulds, the Sheffield pensioner who has cared for the memorial to 10 US airman who, as a child, he saw crash in his local park.  The crew of the Mi Amigo attempted to land their damaged aircraft in the Sheffield park where Tony and his friends were playing, but when the airman waved to the children to move, the youngsters merely waved back.  It remains the biggest regret of Tony’s life that as an 8 year old he thought the pilot was waving to him, not at him to move, and thus flew the craft into woods where the plane crashed.  When a BBC journalist heard that Tony’s greatest wish was to have a flag pole and a fly past on the 75th anniversary of the crash, he set about making it happen.  Relatives of the Mi Amigo crew joined thousands of local people as Tony watched the US and British airforces fly overhead – one plane for each airman.  Every time I have watched, Tony Foulds has reduced me to tears with his passion and his firm belief in caring for the memorial of the strangers he calls family. (See the full story here: https://www.facebook.com/bbcbreakfast/videos/642676716166370/)

In our household hubby went to Cambridge with my brother who had treated him for his birthday to a Prog Rock weekend….not my cup of tea, but they had a good time listening to loud music (Steve Rothery of Marillion fame) and visiting RAF Duxford.

 

So that left me in the capable hands of my lovely girl – yes, a girls’ weekend! I would love to be able to report a time of shopping and clubbing – once upon a time definitely! – but it was more like artwork (hers not mine) and a film.  The weather has been beautiful for February, so we managed to get ourselves to my parents’ house under our own steam.  Now I know that friends who know us in person are laughing now and yes, it is the same road…..but yours truly had the very tricky job of steering the new motorised chariot out of the patio doors, down the ramp, along the side entrance and out into the street.  Then the local council have seen fit to install temporary traffic lights at the roundabout that separates our end of the road from theirs, so I had an unexpected negotiation and a girl getting very worried her mum was going the wrong way in the road!  Fear not – my driving skills are improving and I was able to report to hubby that we had made it in one piece and then I used the headlight he had fitted to guide us home in the dark.  Well, ok it is a bike light and the street lights were on, but it still means that I can be seen coming!!  But to be serious, I really enjoyed the feeling of independence which I hadn’t quite expected!

1069398__safe_solo_oc_simple+background_transparent+background_earth+pony_wheelchair_handicapped_artist-colon-sketchydesign78_oc-colon-melody+shine

I mentioned above that I have found some fab blog posts for you and some of these are from a lovely facebook group that I belong to – Sharing, Inspiring, Promoting Bloggers.  The first on the list is giving a shout out to Rare Disease Day, later this week on 28th Feb – please have a look at the bloggers who have shared their stories in part one of Despite Pain’s series.  Yours truly will be featured in the next episode talking about cauda equina syndrome – I will share this with you later this week.  Meanwhile sit back, grab a cuppa and enjoy!

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View at Medium.com

https://despitepain.com/2019/02/18/why-we-need-to-support-rare-disease-day/

https://wheelescapades.com/2019/02/21/12-frustrations-of-being-a-wheelchair-user/

https://ginlemonade.com/2019/02/13/house-hunting-as-a-wheelchair-user-other-stories/

https://yesterdayafter.com/2019/02/19/art-for-music-series-aurora-portrait-new-release/

https://jumpstartpositivity.com/simple-things/

https://youcanalwaysstartnow.wordpress.com/2019/02/18/dont-be-rigid-and-brittle/

https://collinscrohns.wordpress.com/2019/01/04/top-chronic-illness-books-and-blogs-of-2018/

http://angelanoelauthor.com/guest-post/published-elsewhere/out-of-my-comfort-zone-why-i-wrote-an-essay-that-scares-me-a-little/

https://anhistorianabouttown.com/six-the-musical-review/

https://myblurredworld.com/2019/02/24/online-world-accessibility/

Please like, comment and share!

Have a great week,

Claire x

 

 

Monday Magic – Inspiring Blogs for You!

There have been two big events in our household this week.

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monday magic 28th jan

The first has been the lovely girl having braces fitted, following the removal of a couple of teeth the week before.  A common problem associated with hypermobile Ehlers Danlos Syndrome is dental overcrowding due to a high arched and narrow palate.  I had 6 teeth removed as a teen and for a while sported a lovely pair of fangs as teeth erupted from the wrong place.  Both my boys have inherited my narrow face and dental overcrowding – the young engineer required surgery to open his gums to expose teethe and apply chains to them which were then attached to braces, the politics student had teeth removed and braces.

With her different bone structure we thought the lovely girl had missed this particular joy of EDS, but it was not to be.  Her last trip to the dentist resulted in a “dental emergency” as he said she needed baby teeth removed urgently and orthodontist treatment asap……oh and Merry Christmas.  This rather extreme reaction (I mean I didn’t know there was such a thing as an orthodental emergency!!) was probably down to the fact that the dental surgery had forgotten to make a referral 18 months ago, but I just assumed she was still on on the waiting list.  So the lovely girl is about 2 years late at 16 to be having braces and will need the same surgery as her eldest brother.  She has made little fuss, but was ashen the following morning and is now sporting a very sore mouth.  Her lovely brother of course fed her lots of horror stories!!

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The second big event was Burn’s night and the annual celebration of all things Scottish at the lovely girl’s school.  This year we took mum and her friend, along with two other couples to add to our number and swell the tartan brigade.

A wee dram of whisky sour started the night of nicely followed by the piping in of the haggis and the traditional Robbie Burn’s toast  – delivered beautifully by a Scottish teacher fully decked out in kilt and sporan.  Now hubby was half decked out, having borrowed a jacket and bow tie from our friends’ son…..he wasn’t brave enough to try the kilt though!

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Whisky Panna Cotta with raspberries

Haggis with tatties and napes, followed by whisky panna cotta went down very well to be swiftly followed by a Scottish reel or two!!  This is the part of the evening that brings mixed feelings as once upon a time I would have been the first on the dance floor, but must now be content to watch…….but the best part is sitting and watching everyone go the wrong way, bump into each other and screech with laughter.  At one point I swear that the group mum and hubby were dancing in were doing a completely different dance to the rest of the hall.

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Confused??

Granted it was nigh on impossible to hear what the caller was telling them to do…..but at times there was not a dry eye in the house with all the laughter.  Maybe next year I will have my motorised wheelchair sorted and be able to literally run rings around them – can’t transport it until our new Motability car arrives!

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Got it! Hubby with friend

I think that the majority of these blog posts are new bloggers to Monday Magic this week and vary from recipes to writing tips to self care/health posts.  There is even a post for all you introverts out there.  I really hope that you enjoy these as much as I have – so grab a cuppa, sit back and read some great posts!

http://theseatedview.com/2019/01/from-helplessness-to-hope-with-chronic-illness-5-strategies-to-push-back-depression.html

https://chronicmomlife.com/things-you-should-not-say-to-a-special-needs-parent/

https://www.autonomicrn.com/2019/01/20/a-little-nursing-therapy/

https://jumpstartpositivity.com/introvert/

https://khmerkronicle.blogspot.com/2019/01/3-things-i-learnt-in-2018.html

https://glutenfreecuppatea.co.uk/2019/01/23/oven-baked-gluten-free-arancini-recipe/

https://www.writerscookbook.com/how-to-stop-overthinking-your-writing/

https://bloggerstrafficcommunity.com/take-to-be-a-successful-blogger/

https://thrivewithjanie.com/steps-to-attaining-your-health-goals-in-2019/

https://www.heatherleguilloux.ca/blog/review-gratitude-guide-7-days-to-a-grateful-heart/

https://bestwishestaylor.com/healthy-lifestyle-affirmations/

Please comment on, like and share these blogs!

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

How often do you have those weeks when life seems to have sped by and yet you’re not sure what you have done in that time?  I made a birthday cake with a robin theme – birds that is…..not Batman or Bristol City football club (me to hubby: “why on earth would I make a 7 year old little girl a Bristol City football club cake? She’s not a football fan and lives nowhere near Bristol” – he supported them as a child and still does!).  img_0349We went out for a family Chinese for hubby’s birthday as my brother and nephew were here – this birthday rolls on and on. I started another blog post – wrote the majority of it in fact, but never quite got it finished (one for later this week) – and I cancelled plans a couple of times. Oh….and I had several sleepless nights.

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Photo by Pixabay on Pexels.com

It never fails to amaze me just what sleep deprivation can do and when that insomnia is down to pain the resulting fatigue and drain is even worse.  Now I look back at the many sets of night shifts and then a period working continuous nights when the kids were young and wonder how I did it….much like any other shift worker.  The constant tiredness must be akin to constant jet leg, but without any promise of far off sunny climes!  I did get phone calls from school on more than one occasion back in the day when I had slept through my alarm and failed to pick my kids up from school.  It is one thing dropping off at 8.30am in your PJs and boots, but quite another thing picking up inn your dressing gown at 3.30pm!

monday magic inspiring blogs for you! (4)

 

My own blog may have failed to spring any new writing over the week, but I have managed to read some great posts that did make the light of day.  I have found some great new and very different bloggers on a couple of meet and greets (Danny’s Dream Big Dream Often and Esme’s Senior Salon) as well as some familiar faces.  So sit back, enjoy some you time and get stuck into some fabulous reads.

https://tinybuddha.com/blog/how-going-offline-for-10-days-healed-my-anxiety/

https://michelemorin.wordpress.com/2019/01/17/standing-on-the-edge-of-inside/

http://www.christafairbrother.com/my-word-for-the-year-courage/

https://pinkfortitude.com/random-acts-of-kindness/

https://italiangoodness.net/learning-how-to-cook-italian-food/perfect-risotto/

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Photo by Pixabay on Pexels.com

https://treesmendus.com/4-unexpected-tips-for-living-longer-with-chronic-disease-i-want-trees-please/

https://amykinsblog.wordpress.com/2019/01/20/dust-of-snow/

https://lifeattheintersection.com/2019/01/21/what-can-white-people-do-to-support-racial-justice/

https://everydayaspie.wordpress.com/2019/01/21/a-stranger-in-my-home/

https://spiritualdragonfly.wordpress.com/2019/01/19/growth-%F0%9F%8C%B1/

Please like, comment and share!

Have a great week,

Claire x

Monday Magic – New Year Inspiring Blogs for You!

New Year’s Eve 2018….how did this happen?  The year has flown by.   I remember as a child hearing my grandmother and her sister saying that the older they got the quicker time flew, and I didn’t have a clue what they were talking about.  Now with each passing year, I understand them more and more – I even sound like them!

New Year Blogs

This last week of 2018 hasn’t gone quite to plan – just the usual faints, dislocations, pain and kids! – but does any festive season?  A highlight to kick off Christmas was a visit to watch the Bolshoi ballet performing The Nutcracker – Mum and I might have been watching in our local Odeon cinema, but the joy of live streaming meant that we were able to watch as events unfolded live direct from the Bolshoi theatre in Moscow.  We were blown away by the host who skipped from Russian to French to Spanish to English without drawing breath, I was exhausted just trying to keep up with her but the dancers were something else as they twisted and turned to the classic Tchaikovsky score.

This year a first in our house happened as Santa got fed up with waiting for the last of the youngsters to arrive home, probably getting into bed at the time that they would have been getting up only a few years ago and so the stocking delivery was made at 8am Christmas morning.  IMG_0311It comes to something when mum and dad are sat sipping coffee and waiting for the kids to emerge!  Another first was the grand outing of the new power wheelchair to make the trip to my parents’ for our Christmas meal.

There was much hilarity, particularly on the way home as my joystick skills left a bit to be desired……

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Here I sit on New Year’s Eve in my PJs watching Madness on the BBC and the fireworks along the Thames in London and although I may have had to miss a party, I can still raise a glass of bubbly with hubby (kids all out!), find some great blog posts to see you into 2019 and wish you all a very Happy New Year!

https://ifitbringsyoujoy.com/make-life-better/

https://ginlemonade.com/2018/12/16/the-christmas-cow-year-in-review/

https://mymedmusings.com/2018/12/09/loving-moments-of-life/

https://trend-able.com/cocktail-party-survival-tips/

https://a30minutelife.com/resolution-new-year-2019/

https://www.novemberschild.com/2018/12/13/dreams/

https://www.realmomlife.com/my-word-for-2019-happier/

https://retirementtransition.blog/2018/12/16/unrealistic-expectations/

https://www.mycupofcocoa.com/favorite-reads-2018-edition

http://liferedesign101.com/2018/12/18/how-to-get-a-week-of-happiness/

Have a great 2019,

Claire x