A Helping Hand – or Stick, or Crutch

I was getting ready to go out the other day, and as every self respecting girl (well girl in my head!) attempts to do I was trying to coordinate my wardrobe.  T shirt – check; jeans – check; jacket – check; shoes & handbag – check; nearly there…..walking stick – hang on a minute!  No blue walking stick!

I remember clearly a few years ago when a mum at the school told me that her daughter, a friend of my then “little” girl, had drawn a picture of a girl with a pink stick and declared “I want to have a pink sparkly stick when I grow up just like Lucy’s mummy!”.  If I’m honest at the time I didn’t know whether to laugh or cry.  My dad had thought it would be funny to buy me my first walking stick for my 40th birthday and I still wasn’t too sure just how hilarious this was – life begins at 40….but not sure a stick is every woman’s dream gift!!  But on the other hand how great that a little girl didn’t see me as some old crock who couldn’t walk properly, but rather she saw the pink, sparkly stick as a desirable item.  Well, what little girl wouldn’t covet something covered in pink & purple glitter and sparkle??

Since then my collection has grown, and I figure that if you need a walking stick at my age then it really should be snazzy…..and match your outfit.  Vanity? Definitely. Essential? Sadly these days, yes!  Over recent weeks the pain in my hip has become more troublesome and I am using the stick in the house now as well as outside – I have been a very proficient furniture walker.  I’m sure that my right side has been compensating for the nerve and chronic pain issues in my left side – resulting in a flare of EDS & dodgy collagen in my subluxing right hip joint.  This brings me full circle to my first point – that is that I am missing a blue themed walking stick in my collection!

For some fun I’ll show you the canes that I do have – please note that this is just my opinion of a brand that I own and I have not been paid to promote any manufacturer.  My walking sticks are manufactured by Switch sticks, a firm based in London, and are folding adjustable, stylish & affordable. They advertise as ” Switch Sticks are the range of award winning stylish walking sticks, crutches, seat sticks and accessories that keep you moving and looking good. They are tough, durable, lightweight aluminium and are height adjustable making them the perfect fit for most people.  With new designs twice a year Switch Sticks are the designer walking aids to be seen with and suitable for both men and women.”

The Switch stick folds up neatly for those who just need it for occasional use or wish to take an extra in a suitcase…..to colour coordinate, of course…..and comes with a wrist strap and carry pouch.  I’ll have a look and list some other similar makes too.  I really like the Switch because it is sturdy and has a great rubber foot, which can be renewed…..but I guess the greatest draw is the fab range of colours and patterns!!  They retail in the UK for £39.99 – https://www.switchsticks.co.uk

My range……

 

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When my body parts are really failing to synchronise and play ball, I use forearm crutches.  This particular brand was recommended to me by a friend who had seen a review on an EDS site.  They are manufactured in the UK and are aptly named the “smartcrutch”, as they have such obvious features for comfort that our good old NHS crutches lack.  A great rubber non slip foot, adjustable height, but also a good supporting forearm rest that is adjustable.  For those of us with dodgy wrists, elbows and/or shoulders this is a godsend to help relieve the pressure on joints and ligaments.  The forearm rest is padded and can be adjusted from a vertical angle through to a horizontal at 90 degrees to the floor, and is finished with an easy to grip rubberised handle which is also adjustable for different arm lengths.  Finally…..yes, they too come in a great range of colours!!  £89.99, but if registered disabled they will be VAT free.  What’s not to like??

http://smartcrutch.co.uk/

Whilst I don’t use the crutches all the time, and my physio feels that they can actually put additional stress on the shoulder/pec major ligaments, when I do need extra support they are great and I do stand up straighter with them…..of course the tonne of titanium and electrode leads help with that too!!  I’ve given up explaining that the reason I’m so upright now is in order to get maximum contact between my scs electrode and my spinal cord.

Some other websites that I’ve found:

http://www.james-smith.co.uk/product-categories/walking-sticks

http://www.classiccanes.co.uk/catalogue/Fashionable_Canes.html

www.walkingsticksonline.co.uk/

http://www.fashionablecanes.com/

Meanwhile, I’m off to do a bit of colour coordinating…..where did I put my husband’s credit card??

 

 

I May Not Look Ill – Poem About Living With Chronic Pain

I May Not Look Ill – Everyone needs to read this heart felt poem written by a man suffering with chronic pain. Please share!

Source: I May Not Look Ill – Poem About Living With Chronic Pain

Chronic Pain & Its Affects on Declining Health

Today you can hardly pick up a newspaper without hearing of the doom and gloom hanging over America – the “Heroin epidemic” caused by the doctors’ over-prescribing of pain medication. I’ll sa…

Source: Chronic Pain & Its Affects on Declining Health

Perspective & disability – what disability??

File 23-06-2016, 22 00 11It was my birthday at the weekend.  A day of very mixed emotions.  You are supposed to feel happy and enjoy the day aren’t you, but I couldn’t shift a low.  Maybe it was the realisation that I never dreamt on my 40th that 7 years later I would be experiencing even tougher difficulties.  Or maybe it was trying to push the thought to the back of my mind that I might have to live another couple of decades like this and “this” was not part of the game plan.

But then Sunday night as I nursed a dislocated shoulder and kneecap, I got to thinking about the events of the past 10 days and was forced to gain some perspective.  You may have seen the post that I blogged as a result.  My children still have a mother.  My gay child is still alive.  My child taking his mocks may not have done any revision….and he lives to see another exam!!  Mum had cooked us a lovely meal and my daughter had made me a birthday cake – I usually make them for other people.  Duncan has been away this last week on a school trip to Paris with fifty 11 year olds – yes, I did say 50!  He said himself that he is helping at our kids’ old primary school more now than he did when they were there.  It was a challenging week for us both, but in very different ways….

For Duncan, his biggest challenge was probably being in Paris and yet not a football game in sight.  I believe Parc Asterix had more twists and turns than any of the matches to date though!! ClELdAHWIAEFF1B Does it sound awful to say that I was looking forward to having some time alone?  Do you think that happened?  How quickly does 5 days fly by, particularly when one child goes down with a migraine?  For me I needed to prove to myself that I can still manage alone – or at least attempt to.  I know that I have spoken before about the loss of independence being something that I have really struggled with.  I had a meeting at the school and had to ask the head if he would be able to drop me home after.  I knew that he wouldn’t have a problem with it – in fact another teacher dropped me back, and I only live across the road – but I still have a problem with it!  Somehow the feeling of being unable to stand on my own two feet – literally at times – makes me feel deskilled.   I waited until I knew that my 17 year old son was home one morning to help me out of the shower before I had a scrub and hairwash, and I promised Duncan that I would not walk about the house without a phone in case I had another fall and/or faint.

I managed though.  Each morning my son and daughter got me up with tea and a lift up the bed, and I actually got up to see them off – a huge step forward since stopping the oxycontin as whilst on it I couldn’t open my eyes, let alone get out of bed by 8am!!  The weather hasn’t been on the side of us spoonies as the damp increases pain, both nerve and joint in my case, and also places havoc with dizzy spells,POTS & hypotension for us EDS zebras.  See this information sheet provided by the Ehlers Danlos support group (http://www.ehlers-danlos.org/about-eds/medical-information/autonomic-dysfunction/autonomic-dysfunction-sheet/),   An ordinary shopping trip with my mum, to choose my birthday present, saw me almost on the floor in the M&S fitting rooms with dizziness and the attendant probably thinking I was boozy but too polite to say!  I really could have done with that wheelchair that day….

I really missed Duncan and I do lose my confidence these days without him – I can’t believe that I am even admitting this as it is just not how I have ever been.  I suppose that no one else really sees me at my best and my worst in the same way, can cope with my sudden loss of mobility or sudden uncontrollable pain surges – the kids do come a close second, but I don’t want them to.  But I appreciated having an opportunity to try to be me again, although I am learning to accept the new me.  Something I have done, on the back of my last post and the lovely positive messages I received, is to call the Red Cross and arrange to hire a wheelchair for our holiday.  The next thing is to take advice from you guys about the best lightweight, portable wheelchair to purchase…please!

Meanwhile my oldest pal Karen saw this clip and thought of me!!  Disability, what disability??

In memory…..Do you remember?

A short post following a tough week – the gunning down of innocent lives in Orlando, the thuggish behaviour of football fans at the Euros from a variety of nations,  2 young contestants from TV talent shows gunned down in separate incidents in USA, the stabbing & shooting of a young mother who happened to be a Member of Parliament.  Our own problems suddenly swing sharply back into focus – maybe this dislocated shoulder that I’m nursing isn’t so bad afterall, or the pain at my implant site, or the falls & faints.

So many young lives have actually been lost over the past days, and many more are blighted by chronic illness – I want to share this poem that I wrote for a close friend who died young.  I hope that the sentiments will resonate for the lives we have lost, including Jo Cox, Christina Grimmie, Mexican  Jano Fuentes & the 50 in Orlando nightclub Pulse, and also the lives struggling to come to terms with chronic illness, whilst remembering the lives that they have also lost.

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Please share and remember.

A full post next time!

Nobody is ‘too pretty’ to be in a wheelchair – Sarah

Please check this out for an inspirational young lady – also find Sarah at http://www.sarahinwonderland.co.uk and on Twitter Sarah Alexander @wonderlandblogs

The Optician’s Wife book review

A new 5 star book review is ready on the Books page  or via Goodreads – the book is due for publication 15th June 2016. Enjoy!51BCwmb4GYL._SX322_BO1,204,203,200_