Fibromyalgia Awareness – by Caz at Invisibly Me

This is a blog post from Caz at Invisibly Me blog marking:

International Awareness Day – ME/CFS // Fibromyalgia // MCS – 12th May 2018

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Today I’d like to do my own little tribute for the International Awareness Day for Fibromyalgia. It’s a little in advance as I’m sure that come Saturday there will be many posts on this.

Fibromyalgia has long been looked upon with scepticism, with many individuals and medical professionals doubting its existence. Some have regarded it as an umbrella term for lack of an officially recognised diagnosis, while others have intimated it to be psychological. Recent years have thankfully begun to shed light on this condition. Tireless campaigning has helped to raise awareness, increase understanding and has worked towards official recognition. But the fight isn’t over yet. There’s a long way to go to reduce stigma and improve both diagnosis and treatment for those dealing with fibromyalgia.

I was officially diagnosed with fibro by my rheumatologist last year after dealing with symptoms for years, initially thought of as being due to other conditions, that there was nothing wrong with me or perhaps that it was in my head (which they also said about my stomach issues, and here I am now, with a stoma!) For a while, I had asked to avoid labels and ‘umbrella terms’, mostly for fear it would signal the end of the road. I didn’t want them to stop looking for causes and the root of the problem, leaving me forever feeling worse and with no real way to get any better. I wanted them to keep looking, to figure out what was wrong, how my life has taken such a turn so quickly and left me like this for so long. The official diagnosis is to be reviewed in the near future due to overlapping symptoms between fibro & ME and the query over whether it’s both.

For full post visit Invisibly Me – and please share!

Calling all Mums and Mums to be who have experienced #Fibromyalgia in #Pregnancy

This post comes from Melissa v Fibromyalgia

Pregnancy and Fibromyalgia Survey, Book and Page

After being disappointed at the lack of information about pregnancy with Fibromyalgia when I had Nu four years ago, I set about writing up my experiences and researching as new information became available.

On my Fibro Mama Pregnancy Diaries page I include my journals from my second pregnancy last year, which I edited and posted over this past year.

Now I’m writing a book!
On my new Fibro Mama Pregnancy & Fibromyalgia page I include the links to the ebook I’m writing as I publish the posts. When it is complete (and edited) it will be available for purchase, with extra content.
For now, could I ask you a favour?
Would you fill in a survey so I can add to the research available (limited) and my experience (two pregnancies makes me an expert in my experience not collective experience)?
Please take the time to visit Melissa’s blog,  her page that includes links to her coming book and the survey.

Adrenal Fatigue – Pin review from Cathy, Ty Siriol Ceramics & Crafts

Cathy at Ty Siriol Ceramics and Crafts recently posted a short review for this book on pinterest which I thought I would share with you.

The “blurb” from Amazon reads “This is an incredibly informative and reader-friendly book about a common debilitating medical condition that goes largely undiagnosed and untreated. ADRENAL FATIGUE: The 21st Century Stress Syndrome is a very empowering work cram-packed with vital information about a condition that very likely affects millions of people”

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Cathy writes “I’ve recently read this book to try to get to the bottom of why I’m so exhausted, among other things. It’s a really good read and helps you to assess if this could be a problem for you as well as giving really thorough advice….” Remainder of her short review is here:

http://pin.it/tyWipX2

On Amazon the book has received 151 reviews with an average 4.5 stars out of 5.

Fibromyalgia – mystery finally solved?

This is worth a read for those of you with fibromyalgia.  It can be found on the site Liberty Voice (link below) and was written by Rebecca Savastio in 2013.  Whilst a couple of years old, it it still receiving many views and opinions – decide for yourself:

“Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand…….”

Fibromyalgia Mystery Finally Solved!