Monday Magic – Inspiring Blogs for You!

I can never believe how quickly Monday Magic comes around, but what I do know is that week after week I find just how many fantastic blogs and bloggers there are in the blogosphere!

Monday Magic 25th Feb

The stand out story for me this week was that of Tony Foulds, the Sheffield pensioner who has cared for the memorial to 10 US airman who, as a child, he saw crash in his local park.  The crew of the Mi Amigo attempted to land their damaged aircraft in the Sheffield park where Tony and his friends were playing, but when the airman waved to the children to move, the youngsters merely waved back.  It remains the biggest regret of Tony’s life that as an 8 year old he thought the pilot was waving to him, not at him to move, and thus flew the craft into woods where the plane crashed.  When a BBC journalist heard that Tony’s greatest wish was to have a flag pole and a fly past on the 75th anniversary of the crash, he set about making it happen.  Relatives of the Mi Amigo crew joined thousands of local people as Tony watched the US and British airforces fly overhead – one plane for each airman.  Every time I have watched, Tony Foulds has reduced me to tears with his passion and his firm belief in caring for the memorial of the strangers he calls family. (See the full story here: https://www.facebook.com/bbcbreakfast/videos/642676716166370/)

In our household hubby went to Cambridge with my brother who had treated him for his birthday to a Prog Rock weekend….not my cup of tea, but they had a good time listening to loud music (Steve Rothery of Marillion fame) and visiting RAF Duxford.

 

So that left me in the capable hands of my lovely girl – yes, a girls’ weekend! I would love to be able to report a time of shopping and clubbing – once upon a time definitely! – but it was more like artwork (hers not mine) and a film.  The weather has been beautiful for February, so we managed to get ourselves to my parents’ house under our own steam.  Now I know that friends who know us in person are laughing now and yes, it is the same road…..but yours truly had the very tricky job of steering the new motorised chariot out of the patio doors, down the ramp, along the side entrance and out into the street.  Then the local council have seen fit to install temporary traffic lights at the roundabout that separates our end of the road from theirs, so I had an unexpected negotiation and a girl getting very worried her mum was going the wrong way in the road!  Fear not – my driving skills are improving and I was able to report to hubby that we had made it in one piece and then I used the headlight he had fitted to guide us home in the dark.  Well, ok it is a bike light and the street lights were on, but it still means that I can be seen coming!!  But to be serious, I really enjoyed the feeling of independence which I hadn’t quite expected!

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I mentioned above that I have found some fab blog posts for you and some of these are from a lovely facebook group that I belong to – Sharing, Inspiring, Promoting Bloggers.  The first on the list is giving a shout out to Rare Disease Day, later this week on 28th Feb – please have a look at the bloggers who have shared their stories in part one of Despite Pain’s series.  Yours truly will be featured in the next episode talking about cauda equina syndrome – I will share this with you later this week.  Meanwhile sit back, grab a cuppa and enjoy!

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https://despitepain.com/2019/02/18/why-we-need-to-support-rare-disease-day/

https://wheelescapades.com/2019/02/21/12-frustrations-of-being-a-wheelchair-user/

https://ginlemonade.com/2019/02/13/house-hunting-as-a-wheelchair-user-other-stories/

https://yesterdayafter.com/2019/02/19/art-for-music-series-aurora-portrait-new-release/

https://jumpstartpositivity.com/simple-things/

https://youcanalwaysstartnow.wordpress.com/2019/02/18/dont-be-rigid-and-brittle/

https://collinscrohns.wordpress.com/2019/01/04/top-chronic-illness-books-and-blogs-of-2018/

http://angelanoelauthor.com/guest-post/published-elsewhere/out-of-my-comfort-zone-why-i-wrote-an-essay-that-scares-me-a-little/

https://anhistorianabouttown.com/six-the-musical-review/

https://myblurredworld.com/2019/02/24/online-world-accessibility/

Please like, comment and share!

Have a great week,

Claire x

 

 

Monday Magic – Inspiring Blogs for You!

Monday Magic 18th Feb

It is half term break already – how did that happen? It feels like school has only just gone back!  Anyway we and the lovely girl are doggy sitting for friends this week, whilst our own old boy, Sam, has his holidays at his human grandparents.  I’m not sure if I have mentioned before but he was a rescue dog many years ago and the one foible we have never got him over is his dislike of other dogs.  So he will enjoy a quiet week in a calm house being spoilt with his favourite breakfasts and gravy on his grits!!

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Sharing a chronic moment!

 

Last night, feeling slightly energetic, I walked Sam up the road to my mum’s house.  I say walked….I’m not sure who was the slower, me or the dog.  If we had been going any slower we would be stationary and hubby was alternately pushing and pulling us.  We dropped Sam off and then continued the slow amble around the block heading back home.  Now when we had left home I was quite spritely – for me – so pooh-poohed the need for my wheelchair, taking just my stick and feeling quite invincible.  Big mistake!!  Half way back (it really isn’t far), and whilst going downhill, one foot was completely numb and the kneecap on the other side had dislocated….double whammy!  By this point I had a fit of the giggles but hubby, who was inelegantly hauling me along the road, did not see the funny side.  No more outings for me without wheelie back up!!

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Photo by Charry Jin on Pexels.com

Talking of which the new car should be arriving soon, thanks to Motability agreeing to take back our current model so that we can have something that has a hoist fitted to take my new wheelchair.  Once I have figured out how to get it out of the house we will be sorted!!!  I am still waiting for an OT assessment which I hope will highlight the need for ramp access to the front door (amongst other things) – meanwhile we continue to encourage Sam to use the ramp outside the patio door rather than attempting, and failing, to jump off the side of it!

The young engineer is in San Francisco – a little bit of work, but mainly play.  I had a message to say that the Air b&b is “OK but doesn’t have a kitchen” to which my response was well he only knows how to prepare tuna with pasta so doesn’t really need one!  We have been introduced to the Forbes magazine lists this week – no I didn’t realise that they do the rich lists.  Anyway the young engineer and his business partner have somehow made it onto the Forbes 30 under 30 Europe Manufacturing and Industry list – the lovely girl is just staggered that her brother features on the same series of lists that Jess Glynn and George Ezra feature on (yes, yes..different category!).  Maybe one day it will be the rich list and he can keep his mother in the manner to which she would like to be accustomed….dream on, Claire!

 

Before I go I must introduce you to our fur babies for the week….Fred and Honey

 

and some fantastic blog posts from a variety of bloggers covering so many subjects.  So grab a drink, relax and enjoy!

https://www.achronicvoice.com/2019/02/13/twitter-tips/

http://theinsiderviews.com/2019/02/is-pilates-for-you.html/

https://www.radiantnubeginnings.com/one-size-doesnt-fit-all/

https://thechronictraveller.com/2019/02/06/chronic-illness-and-the-well-of-despair/

https://www.cbdhacker.com/cbd-for-inflammation/

https://esmesalon.com/2019-wednesday-interview-series/

https://pamelajessen.com/2019/02/17/fibromyalgia-and-loneliness/

https://justmuddlingthroughlife.co.uk/2019/02/17/children-again-poetry-challenge/

https://www.healthyeatingexperts.com/top-12-spring-superfoods/

https://theinspirationlady.com/self-care-ideas-for-highly-sensitive-people/

Please like, comment and share – spread some love!

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

This is the week of love with Valentine’s Day fast approaching – red hearts, champagne, velvet wrapped boxes of chocolates and of course red roses.  The shops are adorned and the internet is overflowing with suggestions of how to spoil your loved one.  The thing that I would just love for myself is a week of sleep.  Forget being wined and dined, fancy foil balloons or expensive flowers…..the secret to unlocking my heart is to give me sleep!!

Valentine Monday Magic

Seriously I need to find some self love this week after a week of sleep deprivation.  I never sleep brilliantly, but this week has felt like working night shifts again.  I no longer panic in the night, but read from a dimly lit kindle or listen to dramas on the BBC radio iplayer or play soothing sleep mixes on Youtube.  The problem comes half way through the next day when jet lag hits and after 3 sleepless nights this week it has well and truly hit!!  Thursday night was one of these nights, but I didn’t drop off to sleep until Friday afternoon.  By the time hubby woke me at nearly 7pm it was time to go out to play…..a takeaway with some close neighbours.  Curry for breakfast – can’t remember the last time I did the equivalent!  We had been tasked with taking liqueurs and wine – easy.  Unpacking the bag when we arrived we had red wine, white wine, limoncello, espresso liqueur, coffee cream, sambucca, oxynorm……what???  Oh no, don’t panic, just a little something for Claire and her pain!

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Photo by Pixabay on Pexels.com

Something that did cheer me up this week was reading that chocolate shaped as hearts is calorie free…well, who knew?  This is something that I am totally believing for the whole week, so come on hubby remember how the lovely girl and I have always woken up to a chocolate heart on February 14th?  I promise never  to say again that snoring from the other side of the bed requires noise cancelling headphones!

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Photo by Vlad Bagacian on Pexels.com

 

I haven’t given you a list of lovey, dovey red heart posts, but rather a diverse selection of blog posts.  They range from the breakfast pizza, to giving empowering compliments to girls to random acts of kindness.  My favourite has to be the slow cooker fudge brownies – there is a situation where the stomach rules the heart.  So sit back with a cuppa, or maybe a glass of something bubbly and enjoy some great blog posts.

 

https://www.theworldseesnormal.com/the-world-sees-normal/10-things-to-remember/

https://www.samsplaces.com/2019/02/bacon-egg-cheese-breakfast-pizza-recipe.html

https://justmuddlingthroughlife.co.uk/2019/02/08/10-tips-help-ease-stress-children-being-mum/

https://sweatpantsandcoffee.com/empowering-compliments-girls/

https://catchyourbreath60.com/february-is-heart-month-copd-and-heart-failure/

https://passionfruitpawsandpeonies.com/9-books-for-a-more-positive-2019/

https://lifeattheintersection.com/2019/02/11/practice-for-random-acts-of-kindness-day/

https://esmesalon.com/how-to-actually-chill-so-you-dont-burnout/

http://www.looneyforfood.com/slow-cooker-fudge-brownies/

https://www.unboundroots.com/my-heart/

 

Please share, like and comment to show how much you appreciate these bloggers!

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You

So  you have probably already noticed that this is a day late, but somehow after reading and scheduling posts as admin for a Facebook group (Chronic Illness Bloggers – there are some seriously talented writers over there!), finishing a book review and just family life, I ran out of time yesterday.  But I have found some great posts so thought I’d share them today!

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Photo by rawpixel.com on Pexels.com

This last week I have taken advantage of the cold weather and being sofa bound by catching up with reading blogs – I have managed lots of sharing but have been a bit rubbish at posting comments, so I apologise to my fellow bloggers.  Do you know that the nominations for the 2019 Bloggers’ Bash Awards are now officially open?  There are some great new categories this year so take a look and make sure you nominate your favourites!! You may even decide on someone in the list below – there is a great variety and some are new to me.  I particularly enjoyed the Verve View post about the good side of social media and the post from Sonja “Shh – don’t tell” made me laugh out loud….I think that all parents will be able to relate to it.  If anyone is in need of some pampering have a look at Brooke’s beauty product favs, or if like me you need to declutter then Shelley’s post about the Marie Kondo way might be better…..it would be so much easier if only the rest of the family understood what I’m trying to achieve!!

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Monday Magic -5:2:19

 

A high and low point of the week was the last part of the BBC adaptation of Victor Hugo’s Les Miserables – high as the series has been fantastic, low as it was the final instalment.  How will Sunday night measure up now?!  If you have access to the BBC iplayer and haven’t seen it yet….it is well worth watching.  The actors, costumes, set designs, make up (how did they make the beautiful Lily Collins look so awful?) are all wonderful.  Those of you thinking “I hate musicals” be assured that there is not a song to be heard – unless you count young Gavroche’s odd little ditty here and there.

Les Miserables - Generic Portraits
Les Miserables cast – from Radio Times

 

I’m keeping the preamble short today, having given you a long book review yesterday, so grab a cuppa, sit back and enjoy some great reads!

 

https://ginlemonade.com/2019/01/11/my-wedding-dress-my-wheelchair-me/

https://mymedmusings.com/2019/01/26/my-key-to-living-well-with-chronic-illness/

https://verveview.com/2019/01/30/sunflowers-and-social-media/

https://brookeclarke.com/beauty/my-favourite-beauty-products-of-2018/

https://jumpstartpositivity.com/refresh-your-mindset/

https://ohmrstucker.com/how-to-like-who-you-are/

https://holdmamashand.com/2019/02/03/shh-dont-tell/

https://darlenefoster.wordpress.com/2019/02/01/ghosts-in-the-attic/

https://lifeatno22.com/2019/01/31/what-happened-to/

https://motivatemenow.co.uk/theme-of-the-month-de-cluttering-the-marie-kondo-way/

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

There have been two big events in our household this week.

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monday magic 28th jan

The first has been the lovely girl having braces fitted, following the removal of a couple of teeth the week before.  A common problem associated with hypermobile Ehlers Danlos Syndrome is dental overcrowding due to a high arched and narrow palate.  I had 6 teeth removed as a teen and for a while sported a lovely pair of fangs as teeth erupted from the wrong place.  Both my boys have inherited my narrow face and dental overcrowding – the young engineer required surgery to open his gums to expose teethe and apply chains to them which were then attached to braces, the politics student had teeth removed and braces.

With her different bone structure we thought the lovely girl had missed this particular joy of EDS, but it was not to be.  Her last trip to the dentist resulted in a “dental emergency” as he said she needed baby teeth removed urgently and orthodontist treatment asap……oh and Merry Christmas.  This rather extreme reaction (I mean I didn’t know there was such a thing as an orthodental emergency!!) was probably down to the fact that the dental surgery had forgotten to make a referral 18 months ago, but I just assumed she was still on on the waiting list.  So the lovely girl is about 2 years late at 16 to be having braces and will need the same surgery as her eldest brother.  She has made little fuss, but was ashen the following morning and is now sporting a very sore mouth.  Her lovely brother of course fed her lots of horror stories!!

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The second big event was Burn’s night and the annual celebration of all things Scottish at the lovely girl’s school.  This year we took mum and her friend, along with two other couples to add to our number and swell the tartan brigade.

A wee dram of whisky sour started the night of nicely followed by the piping in of the haggis and the traditional Robbie Burn’s toast  – delivered beautifully by a Scottish teacher fully decked out in kilt and sporan.  Now hubby was half decked out, having borrowed a jacket and bow tie from our friends’ son…..he wasn’t brave enough to try the kilt though!

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Whisky Panna Cotta with raspberries

Haggis with tatties and napes, followed by whisky panna cotta went down very well to be swiftly followed by a Scottish reel or two!!  This is the part of the evening that brings mixed feelings as once upon a time I would have been the first on the dance floor, but must now be content to watch…….but the best part is sitting and watching everyone go the wrong way, bump into each other and screech with laughter.  At one point I swear that the group mum and hubby were dancing in were doing a completely different dance to the rest of the hall.

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Confused??

Granted it was nigh on impossible to hear what the caller was telling them to do…..but at times there was not a dry eye in the house with all the laughter.  Maybe next year I will have my motorised wheelchair sorted and be able to literally run rings around them – can’t transport it until our new Motability car arrives!

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Got it! Hubby with friend

I think that the majority of these blog posts are new bloggers to Monday Magic this week and vary from recipes to writing tips to self care/health posts.  There is even a post for all you introverts out there.  I really hope that you enjoy these as much as I have – so grab a cuppa, sit back and read some great posts!

http://theseatedview.com/2019/01/from-helplessness-to-hope-with-chronic-illness-5-strategies-to-push-back-depression.html

https://chronicmomlife.com/things-you-should-not-say-to-a-special-needs-parent/

https://www.autonomicrn.com/2019/01/20/a-little-nursing-therapy/

https://jumpstartpositivity.com/introvert/

https://khmerkronicle.blogspot.com/2019/01/3-things-i-learnt-in-2018.html

https://glutenfreecuppatea.co.uk/2019/01/23/oven-baked-gluten-free-arancini-recipe/

https://www.writerscookbook.com/how-to-stop-overthinking-your-writing/

https://bloggerstrafficcommunity.com/take-to-be-a-successful-blogger/

https://thrivewithjanie.com/steps-to-attaining-your-health-goals-in-2019/

https://www.heatherleguilloux.ca/blog/review-gratitude-guide-7-days-to-a-grateful-heart/

https://bestwishestaylor.com/healthy-lifestyle-affirmations/

Please comment on, like and share these blogs!

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

How often do you have those weeks when life seems to have sped by and yet you’re not sure what you have done in that time?  I made a birthday cake with a robin theme – birds that is…..not Batman or Bristol City football club (me to hubby: “why on earth would I make a 7 year old little girl a Bristol City football club cake? She’s not a football fan and lives nowhere near Bristol” – he supported them as a child and still does!).  img_0349We went out for a family Chinese for hubby’s birthday as my brother and nephew were here – this birthday rolls on and on. I started another blog post – wrote the majority of it in fact, but never quite got it finished (one for later this week) – and I cancelled plans a couple of times. Oh….and I had several sleepless nights.

alarm clock analogue bed bedroom
Photo by Pixabay on Pexels.com

It never fails to amaze me just what sleep deprivation can do and when that insomnia is down to pain the resulting fatigue and drain is even worse.  Now I look back at the many sets of night shifts and then a period working continuous nights when the kids were young and wonder how I did it….much like any other shift worker.  The constant tiredness must be akin to constant jet leg, but without any promise of far off sunny climes!  I did get phone calls from school on more than one occasion back in the day when I had slept through my alarm and failed to pick my kids up from school.  It is one thing dropping off at 8.30am in your PJs and boots, but quite another thing picking up inn your dressing gown at 3.30pm!

monday magic inspiring blogs for you! (4)

 

My own blog may have failed to spring any new writing over the week, but I have managed to read some great posts that did make the light of day.  I have found some great new and very different bloggers on a couple of meet and greets (Danny’s Dream Big Dream Often and Esme’s Senior Salon) as well as some familiar faces.  So sit back, enjoy some you time and get stuck into some fabulous reads.

https://tinybuddha.com/blog/how-going-offline-for-10-days-healed-my-anxiety/

https://michelemorin.wordpress.com/2019/01/17/standing-on-the-edge-of-inside/

http://www.christafairbrother.com/my-word-for-the-year-courage/

https://pinkfortitude.com/random-acts-of-kindness/

https://italiangoodness.net/learning-how-to-cook-italian-food/perfect-risotto/

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Photo by Pixabay on Pexels.com

https://treesmendus.com/4-unexpected-tips-for-living-longer-with-chronic-disease-i-want-trees-please/

https://amykinsblog.wordpress.com/2019/01/20/dust-of-snow/

https://lifeattheintersection.com/2019/01/21/what-can-white-people-do-to-support-racial-justice/

https://everydayaspie.wordpress.com/2019/01/21/a-stranger-in-my-home/

https://spiritualdragonfly.wordpress.com/2019/01/19/growth-%F0%9F%8C%B1/

Please like, comment and share!

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

We are already half way through January and in the PainPals house this means that a significant birthday has been celebrated by the hubby.  I couldn’t say anything in my last post as I had booked a surprise weekend away and he reads these blog posts!

monday magic inspiring blogs for you! (3)

For those of you who know me or live with a chronic health condition yourself, you will know that planning any sort of trip away is tricky.  The variability and unpredictability of symptoms and general wellbeing can make it difficult on a day to day basis – so it felt like a risk to book a trip away and I wasn’t confident enough to look too far afield.  We haven’t taken a holiday abroad since before I was disabled from work, and an annual holiday is a thing of the past for many reasons.  So it was with some trepidation that I plotted with the family and arranged a couple of nights away in a haunted 15th century inn on the coast in East Sussex.

Hubby had no idea!  We all managed to keep it a surprise and let nothing slip, only letting on the night before we left.  I had seen a review on the Mermaid Inn, Rye on Kerry’s blog Kerry’s Life and Loves and fell in love with the history and photographs of this historic hotel and town.  “How on earth will you manage on the cobbles and all those hills?” asked my mum, alongside a nagging little voice saying the same in the back of my head, but the bloodyminded side of me was determined to enjoy just a couple of days.  Sometimes it is so important to throw caution to the wind and let the chronic illness take a back seat, whilst “normal” life takes over! The inn is everything that Kerry promised – steeped in history, former residents include Elizabeth I, Shakespeare and Elizabeth the Queen Mother to name but a few, and the beams, low doorways and open fires are all other worldly.  The maze of tunnels beneath and around the inn were thought to have been used by smugglers and it is rumoured that several inhabitants are of the ghostly variety!  No strange happenings on our watch….

Hubby was in for another surprise as we were shown to our room – he was not going to be allowed to forget his special age with the enormous helium balloons that the young engineer had arranged.  With the low beamed ceilings they took up nearly the whole room….did I mention that he had also arranged for a bottle of champagne to be chilling?!

 

 

We had a wonderful meal in the restaurant and the staff were all friendly and accommodating – even if they did wonder why this woman who was struggling to walk had booked to stay in really old building with steep stairs and no lifts!!  I managed though….even walking for some of the day in Rye on Saturday.  A word of warning – Rye with its cobbles and hills really is not wheelchair friendly!

 

I still find it frustrating that I couldn’t manage a whole day out and we spent Saturday afternoon watching a film in our room, but pacing is the name of the game.  This allowed me to go out for dinner Saturday night – to a lovely new restaurant called The Devil in Rye, which overlooked the gardens and walls of the ancient monastery – and then we spent the rest of the evening listening to jazz in a neighbouring Champagne & Jazz bar.  So grown up, nearly sophisticated and great fun.

 

It is a shame that I then slept for long periods on Sunday and all this morning, but sometimes it is worth using up all those spoons in one go.  So Monday Magic is teetering into Tuesday as I catch up from my slumbers……but I have found some blogs for you (even one about Elizabeth I) and hope that you will sit back and enjoy!

https://www.radiantnubeginnings.com/smile/

https://helensjourneysite.wordpress.com/2019/01/09/wellbeing/

https://despitepain.com/2019/01/11/how-to-help-doctors-listen-and-understand-better/

https://invisiblyme.com/2019/01/10/12-life-changing-reads-2019/

https://playdatesparties.com/how-to-get-motivated-to-clean-when-overwhelmed-by-mess/

https://www.eclecticevelyn.com/include-yourself-in-your-schedule/

https://notesfromtheuk.com/2019/01/11/professional-hazards-of-being-a-virgin-queen/

https://christiehawkes.com/forgiveness-starting-2019-with-a-clean-slate/

https://wehavekids.com/parenting/Encouraging-Children-to-be-Independent

https://www.momfever.com/2019/01/a-positive-way-to-look-at-january.html

Please follow, like and share these bloggers! By the way we somehow managed to wedge the balloons in the back of the car, around the wheelchair, and they are now adorning the lounge!

Have a great week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

monday magic 7th jan

Today is the last day of the school holidays in our house and the last week of the uni holidays.  So whilst the lovely girl prepares to return to school (in not the greatest of humour it has to be said but with a new haircut – 4 inches of her lovely blonde hair cut off!), the politics student is allegedly revising for exams and the young engineer has become an employer today.  I can’t quite believe that our little boy, the young adult who acts so daft at home, is now an IT entrepreneur with a business partner and an employee….I guess all parents must feel this at some time.

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Photo by Pixabay on Pexels.com

For our house, a sign that the new year is well and truly under way is when we reach the birthday of my best friend’s daughter on the 10th and hubby’s birthday on 11th January.  We went to the Pizza Express part of the 9th birthday party yesterday, deciding to skip the ice skating at Hampton Court Palace to avoid  the cold – and yours truly was the “best auntie ever” for the cake. This year I was tasked with “A Series of Unfortunate Events” for the theme, and fortunately my mob have all read the books and watched some of the Netflix show.  My lovely girl helped with painting the decorations on the sides and we were very pleased with our efforts, particularly when all the party guests recognised the characters.  This year is a big one for hubby (and me too later in the year – yes, 21 again) but more of that next week!

I wrote a long post for the Versatile blogger award yesterday and tagged various bloggers (who I thought hadn’t been nominated before) so I’m sharing one of each of their posts with you today. So grab a cuppa, relax and enjoy!

https://ginlemonade.com/2019/01/06/disabled-parenting-problems-this-might-become-a-series/

https://fancypaperblog.com/2018/12/01/the-band-when-theatre-causes-time-travel/

https://mydailyjournalonline.com/my-2018-journal-expectations-vs-reality/

https://debs-world.com/2018/04/08/what-ive-learnt-from-surviving-a-school-trip-that-went-terribly-wrong/

https://www.awalkandalark.com/exploring-hyogo-kinosaki-onsen/

https://www.ajourneythroughthefog.co.uk/2019/01/the-personal-hygiene-challenges-i-face-living-with-me-cfs/

https://www.brainlesionandme.com/embracing-the-warrior-inside/

https://mymedmusings.com/2019/01/07/little-things-do-matter-especially-when-living-with-chronic-illness/

https://trend-able.com/roll-on-face-masks/

https://www.sizzlingtowardssixty.com.au/new-year-evolution-not-resolutions/

https://kerrylifeandloves.com/2019/01/02/my-european-travel-wish-list-2019-edit/

https://pamelajessen.com/2019/01/05/chronic-pain-post-holiday-blues/

https://trippingthroughtreacle.com/chronically-strong-music-to-give-you-strength/

https://libertyonthelighterside.com/why-is-world-environment-day-important/

https://jaipurthrumylens.com/2018/12/08/jaipur-sunrise-winters-nahargarh-fort/

Have a great week,

Claire x

 

Old Year, New Year and being a Versatile Blogger

A few weeks back I was nominated for the Versatile Blogger Award by the wonderful Nikki, the Brainless Blogger.

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I met her on the “chronic illness” circuit – have a look at her site The Brainless Blogger here – but she also writes fantasy fiction and you can find some of her work under her pen name Lil Hamilton.  I think you will agree her own Versatile Blogger award is very well deserved.  Thank you, Nikki, so much for nominating me!

THE RULES:

1. If you are nominated, congratulations – you have been awarded the Versatile blogger award! 

2. Thank the person who gave you the award and include a link to their blog.

3. Select 15 blogs/bloggers that you’ve recently discovered or follow regularly. 

4. Nominate those 15 bloggers for the Versatile Blogger Award.

 5. Tell the person who nominated you 7 things about yourself. 

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At the beginning of the New Year many bloggers reflect on the year that has just gone before and think ahead to set goals and/or resolutions for the year to come.  I thought that I would try to do something slightly different and incorporate my seven Versatile blogger answers with my New Year post!  So here goes…….

  1. I have a chronic genetic condition, Ehlers Danlos Syndrome, which means that rather than producing connective tissue that is elastic, mine is more akin to chewing gum.  It can affect any body part that has collagen/connective tissue.  I can’t remember a time when I didn’t dislocate one joint or another, or experience a pain free day but my first major problem came aged 21 resulting in major back surgery, nerve root damage and chronic pain.  Whilst a consultant picked up that I had a “syndrome” when I worked in his theatre as a student nurse, ironically it wasn’t until 20 years later that I was formally diagnosed at my old training hospital, University College London!
  2. I was a nurse in a former life.  It still hurts to say “was” rather than “am” – one of my greatest sadnesses to come with chronic health and disability has been losing my career and registration.  My passion was “head and neck” cancer nursing and later Palliative care – I was privileged to work in both specialities for many years.  2018 marked 30 years since the start of my nurse training and I was so fortunate to be well enough to spend a weekend with some friends from my nursing set, to visit the hospital and a few of our old haunts! img_1650
  3. I am a book worm! Remember the days before mobile phones using a torch under the bed covers to read? I was one of those kids! I still prefer proper books really, but will admit to reading nearly everything on my Kindle as easier for dodgy joints – but I remain a bit OCD with my books as I can’t stand for anyone to crease the spine let alone fold down a page corner! These days I write the odd review, belong to  book clubs and will read just about anything.  I go into 2019 pleased that I made my personal 2018 reading challenge (on goodreads) and hopeful that I can continue reading and reviewing.
  4. I am a mum to 3 young adults aged 22, 19 and 16.  This last year I have felt the most pride as a mum and also the most stress and angst as a mum to date – these kids don’t come with a manual and it definitely doesn’t get easier as they get older.  I guess my parents would agree!!  Let’s hope that the next 12 months are less of a rollercoaster….
  5. I love dogs.  All shapes, sizes and colours.  I am currently broody for a pup but our old (16 years) collie cross Samson is not in agreement with his mum.  He is my constant companion – a completely batty boy with special needs who we rescued aged 6 – and has seen me through the years since I was forced to retire.  He is completely in tune with my bad days and is very protective of me.  We also have a surrogate boy, the beautiful viszla Chester, who we have looked after for friends a couple of times a week since he was 6 months (Sam goes to Grandma on those days!) – we love him to bits.  Being at home, sometimes for long stretches, I couldn’t imagine being without a furry friend at my side!

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    My old boy Samson
  6. I make celebration cakes. Not professionally, but for friends and family.  I have always made birthday cakes for my kids, but when I had to stop working I started to play about with some more ideas and experiment with icing.  The strangest request was from a friend wanting a “Tesco” carrier bag for her husband!!  The icing is becoming more and more difficult though as my joints deteriorate – rolling out a sheet is nigh on impossible with a dislocated shoulder, so I’m trying to teach hubby!  Fingers crossed that I will be able to make a few masterpieces (ha, ha, ha) in 2019.
  7. My guilty pleasure is binge watching box sets – Netflix and Prime have become my best friends in recent years and I blame my daughter for the binge watching!  These days it is much harder to join in with family activities, so it is great to be able to spend time on the sofa with my lovely girl…..some favourites for us in 2018 were the finale of Sense 8, the German series “Dark” and “You are Wanted”, “Travelers” and “Anne with and E”.  We are both looking forward for the next season of Dark to be released in March!250px-darknetflixposter

There you have it – seven things about me, with a bit of looking back and looking forward thrown in.  Maybe I should have said that I don’t make resolutions – I’ve never been able to stick to them beyond the first week of January so years ago I just thought why set myself up to fail?!  I am happy if I can go into the new year with some positivity and hope!

Tagged Bloggers who are versatile and interesting – great if you take part, no problem if you don’t.  You are all still versatile!

Lorna at Gin & Lemonade

Orla at Fancy Paper Blog

Anindya at My Daily Journal

Debbie at Debs World

Josy at A Walk and A Lark

Jo at A Journey Through the Fog

Rhiann at My Brain Lesion and Me

Sam at My Medical Musings

Lainie at Trend-Able

Sue at Sizzling Towards Sixty

Kerry at Kerry, Life and Loves

Pamela at There is Always Hope Blog

Jen at Tripping through Treacle

Liberty at Liberty on the Lighter Side

Arv at Jaipur Thru My Lens

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I could have tagged so many blogging friends here – some are other chronic illness bloggers, others I have met in groups or follow.

Enjoy and have a very Happy New Year!

Monday Magic – New Year Inspiring Blogs for You!

New Year’s Eve 2018….how did this happen?  The year has flown by.   I remember as a child hearing my grandmother and her sister saying that the older they got the quicker time flew, and I didn’t have a clue what they were talking about.  Now with each passing year, I understand them more and more – I even sound like them!

New Year Blogs

This last week of 2018 hasn’t gone quite to plan – just the usual faints, dislocations, pain and kids! – but does any festive season?  A highlight to kick off Christmas was a visit to watch the Bolshoi ballet performing The Nutcracker – Mum and I might have been watching in our local Odeon cinema, but the joy of live streaming meant that we were able to watch as events unfolded live direct from the Bolshoi theatre in Moscow.  We were blown away by the host who skipped from Russian to French to Spanish to English without drawing breath, I was exhausted just trying to keep up with her but the dancers were something else as they twisted and turned to the classic Tchaikovsky score.

This year a first in our house happened as Santa got fed up with waiting for the last of the youngsters to arrive home, probably getting into bed at the time that they would have been getting up only a few years ago and so the stocking delivery was made at 8am Christmas morning.  IMG_0311It comes to something when mum and dad are sat sipping coffee and waiting for the kids to emerge!  Another first was the grand outing of the new power wheelchair to make the trip to my parents’ for our Christmas meal.

There was much hilarity, particularly on the way home as my joystick skills left a bit to be desired……

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Here I sit on New Year’s Eve in my PJs watching Madness on the BBC and the fireworks along the Thames in London and although I may have had to miss a party, I can still raise a glass of bubbly with hubby (kids all out!), find some great blog posts to see you into 2019 and wish you all a very Happy New Year!

https://ifitbringsyoujoy.com/make-life-better/

https://ginlemonade.com/2018/12/16/the-christmas-cow-year-in-review/

https://mymedmusings.com/2018/12/09/loving-moments-of-life/

https://trend-able.com/cocktail-party-survival-tips/

https://a30minutelife.com/resolution-new-year-2019/

https://www.novemberschild.com/2018/12/13/dreams/

https://www.realmomlife.com/my-word-for-2019-happier/

https://retirementtransition.blog/2018/12/16/unrealistic-expectations/

https://www.mycupofcocoa.com/favorite-reads-2018-edition

http://liferedesign101.com/2018/12/18/how-to-get-a-week-of-happiness/

Have a great 2019,

Claire x