When I read Amy’s post I couldn’t stop laughing – except the breathlessness did stop me!! Katie Perry is singing about my temperature control this morning……
I found our anthem. It speaks to so many of the conditions of this syndrome including body temperature regulation issues, inability to commit to showing up somewhere due to symptoms and flares, being upright one second then passed out another, fighting with your body one moment and loving it another, and the frustrations of having to stay home while knowing that going out will only cause more problems.
That’s right, I found a song that encompasses all of these symptoms. Would you be surprised to hear that Katie Perry sings our song?
Check out the chorus of Hot N Cold:
‘Cause you’re hot then you’re cold
You’re yes then you’re no
You’re in then you’re out
You’re up then you’re down
You’re wrong when it’s right
It’s black and it’s white
We fight, we break up
We kiss, we make up
(You) You don’t really want to stay, no
(You) But you don’t really…
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