Read a fellow zebra’s dealings with her local MP – and the positive results
A while back I wrote to my local MP, Kirsty Blackman. I wanted to bring to her attention the complete lack of knowledge of Ehlers-Danlos Syndrome among medical professionals. Not just because I have a bee in my bonnet about it, but because If I didn’t have such an amazing support network, I’m not sure I’d still be here and I don’t see any need for more people to go through the same process due to nothing more than medical ignorance. This illness in itself is enough to push most people right to the edge. We don’t need medical professionals dismissing us as attention seekers or malingerers on top of the daily pain and struggles we face. We need doctors who can see that something is wrong and to look for answers – not try and get us out of their office by any means possible.
Then this popped up…
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