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15Feb2016

Ehlers Danlos Syndrome for Dummies (and orthopaedic/rheumatology consultants)

Posted in Ehlers Danlos Syndrome, Uncategorized by Claire Saul (PainPalsBlog)

Just wanted to re publish this great post describing EDS – some of you who know me might recognise the descriptions!

Source: Ehlers Danlos Syndrome for Dummies (and orthopaedic/rheumatology consultants)

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Blogger, 💜mum of 3 & one mad dog 🐶, cake baker 🍰, book lover, reviewer, living with Ehlers Danlos syndrome👐🏻POTS, back ops, chronic pain, spinal cord stimulator & disability♿️ A nurse in a previous life!

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Latest body part displaced! Not sure how!! Joys of being a zebra #ehlersdanlossyndrome #zebra #chronicillness #chronicpain #spoonie #ankle #dislocation
This evening we lit candles and remembered with people all over those little lives never lived marking the end of #babylossawarenessweek. 💕
Oops! On the floor again....this is what POTS/dysautonomia looks like! Hubby dropped me home before running mum up the road - tried to take my coat off and next thing I know my “not service” dog is licking me to bring me round. So- let’s check the joints.....hip dislocated ✅ knee out ✅ ankle out ✅ both shoulders dislocated ✅ ✅ lump on head ✅- maybe I will wait for hubby before moving 🤪 (I was only on floor for 5 mins) #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #POTS #chronicillness #dislocations #EDSUK #zebra #chronicblogs #spoonies
Chester found 2 girlfriends in the park - Violet and Sadie! #vizsla #vizslasofinstagram #hungarianvizsla #dogsofinstagram @vizsla_chester
Happy birthday @emma_neceda Latest creation -Carrot cake with choc glaze and art work! 🙃 #birthday #birthdaycake #carrotcake
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