A Change in Season, a Change in Symptoms and Foodie Memories!

The weather has turned – my joints and dodgy bits of body are telling me it is colder, even if the sun has been shining.  Last night we went to a posh do at The Oval cricket ground and there was a drinks reception on the roof terrace before the meal.  On arrival it was suggested to guests that they left their coats on the second floor before ascending to the fourth floor.  It was lovely looking over the stunning cricket green (it really was very green) as the sun went down – but it was freezing!!  There was a blustery breeze that left many of the ladies’ bare shoulders blue and goose pimpled in their strappy evening gowns.  I had kept my outer layers on – a cape that looks a bit posh due to a fur collar – but my spinal cord stimulator and chronic nerve pain were doing battle with each other as to which could out do the cold air!

Earlier this week hubby and I were out shopping and again I was caught out by the sunshine!  Something that you don’t realise when you are up, mobile, walking and running is just how cold it can get sitting in a wheelchair.  My legs and feet were freezing and the cape (not the one from last night – one that Dad calls my “old lady blanket”) I usually tuck around me was safely in the car.  It is time to change the clothes, pack the summer shoes away and accept a different set of symptoms as the POTS faints decline as the temperature drops, and the chronic pain flares.

A change in season pin

 

This is the autumn term now and when I saw Lorna’s writing prompt (Autumnal food memories) on Gin & Lemonade it got me thinking to times in the past when I could go out without constant chronic pain.  I’m not moaning, looking for sympathy, just merely reminiscing!  My memories of autumnal food takes me back to the Halloween/Guy Fawkes nights of my primary school days and the bonfire celebration that we would attend as a family held by my brother’s school.  It was in the rugby field and the big treat would be toffee apples – hard, crunchy, golden toffee casing over soft red apples.  Dreadful for our teeth Mum would tell us every year!  But then as the evening temperature dropped and feet started to go numb inside wellie boots, there would be polystyrene cups of hot tomato soup – Heinz in those days of course! – and never has soup tasted so good.

appetizer bowls cream creamy

Photo by Pixabay on Pexels.com

Thinking back there were aches and pains in some of my joints even then, but all put down to me being bendy (correct!) or growing pains (wrong!).  But the memories of that tomato soup, sticky toffee apples and not forgetting the fireworks and bonfire, will always makes me smile.

heart shaped fireworks

Photo by Kartik Gupta on Pexels.com

 

Make your own toffee apples with this simple recipe from the BBC Good Food site

Living with Ehlers Danlos Syndrome – film for #EDSAwarenessMonth

I am really pleased to have contributed, in a small and rather quiet way, to this video that Jenni has put together for EDS Awareness month.  Jenni is a vlogger/blogger and goes by the name 1nvisibl3Girl – please have a look at her channel & blog and the social media sites of the other great (very young!!) EDSers on this short film!!

“This video is all about living with Ehlers Danlos syndrome (EDS) as the zebras I have been lucky enough to get to know, and I, share our own experience of this chronic, invisible illness. We talk about what EDS is to us, how we manage our symptoms, how EDS has changed our lives, why we started our own EDS based blog or vlog and our hopes and dreams for the future. We hope this is shared as much as possible this May as it is #EDSawarenessmonth so people can learn what it is really like to live with EDS but also to support those also living with the disease. I know it is long but please watch it all if you can. There are some amazing people describing some very difficult things in their own words. This is a project I am very proud of.” Jenni Pettican