June Link Up Party with A Chronic Voice

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I have been saying for months now that I would get my act together and join in with Sheryl’s Link Up Party over on A Chronic Voice…..so this is finally me getting my act together, just in time to sneak into June!  Sheryl provides prompts so that we bloggers can learn just a little bit about each other – and ourselves!

Prompts for the Month

  1. Reminding
  2. Pacing
  3. Surrendering
  4. Improving
  5. Flowing

 

Reminding

Over the last couple of weeks my kids lives have been galloping at  a great speed, reminding me that I really am that middle aged woman who stares out from the mirror!  The household exams came to a finish this week as our girl took her final GCSE – as a parent I have been through them 3 times and that is it, no more!  Then my baby went off with her bag containing a party dress, shoes and makeup to get ready with friends for their end of year party – I doubt that she will let me post a picture, so you will have to take my word for it that the girls looked beautiful.  Reminding me how long ago I was 16!

Lucy & Sharelle

I have been allowed to post – my lovely girl and her beautiful friend!

Son number 2 came home from his first year at university sporting a slightly shaggy, slightly ginger beard and looking skinnier and taller.  Last night the hall was suddenly full of very large shoes as a group of 19 year old males gathered for drinks and football before heading off to a party. “Don’t wait up!” reminding me yet again that my youthful days of partying are long behind me.

The final straw came in the form of a large white envelope addressed to son number 1 bearing the stamp of Companies House.  “This is really happening” said my girl at the realisation that her annoying big brother has finished university and is entering the big wide world with a tech Start-Up! Reminding me that I really do have adult kids!

Pacing

If yours truly had remembered all that I read on a regular basis and tell myself about pacing, perhaps today (Saturday) wouldn’t have been a “crash & burn” day.  It has been a major crash at that, meaning PJs and sofa all day.  But it is not every week that hubby goes away on a school trip to France and my birthday falls slap bang in the middle of said week.  Now of course hubby going away means that my new carers for the week are the kids, so pacing in the house goes out of the window immediately.  But add into the equation several lovely groups of friends wanting to take me out to celebrate and the kids actually arranging a meal out too, then there is the recipe for an epic failure at pacing.  It has been great though!

Surrendering

Recently I have recognised that “surrendering” to my diagnoses and accepting my limitations need not be a negative.  Too often we think of ill health in terms of “cure”, and with ever changing medical advances there can be an unrealistic expectation of the medical profession to be able to put everything right.  But the reality of many chronic conditions is that there is not a cure and the best that can be done is to manage symptoms and keep as healthy as possible.  I know that some people didn’t understand why I started to use a wheelchair when I can still walk, and they will view my surrendering as something very different.

Surrendering & liberating

June Link Up with A Chronic Voice

But for me surrendering to my conditions and accepting them has been liberating.  No, I’m not “giving in” and am definitely not negative, but rather acknowledging that to live my life in the best way possible way sometimes I need a bit of extra help.  If using a wheelchair means that I can still go round the shops, or on a family walk then so be it!  If I need to rest and binge watch on Netflix, I won’t feel guilty (that is a work in progress!).

Improving

Much to the disgust of my kids, I think that my computer and social media skills are really improving.  If you listened to them you would be forgiven for thinking that I am the mother who constantly posts pictures of my little darlings every move.  Get over your selves, kids – I have other things in life to tweet, post to Facebook and Instagram!!  I have finally swapped to a .com blog account with wordpress, I am now able to link up all the relevant SM sites on my book reviews, I have set up several Facebook pages and I am an admin to a group.  Of course when I asked the then student engineer to set me up a blog when I had my spinal cord stimulator, it was just laughable in the kids’ minds that anyone would want to read anything their dopey mum had to say.  But my followers have grown slowly and steadily from all walks of life, and this old girl is pleased to report ongoing, improving IT skills!

Flowing

I’m going in a completely different direction with this prompt and want to share some fun that we had a few weeks ago.  For the past couple of years I have made the birthday cakes for the daughters of a friend, varying from My Little Pony to Cat Woman to a magic unicorn tiered cake.  This year the brief was sent by the soon to be 8 year old in the form a photograph with attaching note – NO fondant or buttercream icing!  “OK, leave it with me” I said to mum, wondering on earth I would achieve anything vaguely resembling the finish on the picture.  Then I learnt about “Mirror glaze” cakes!!!

Cake suggestion

The picture I was sent!

So, with cake made and Youtube videos watched and admired, the lovely girl, hubby and I set to work creating.  The covering is made using a combination of gelatine, white chocolate, condensed milk and a few other goodies.  Then the colourings are added before pouring the icing over the cake until it is flowing down the sides and completely covers the cake.  Depending upon when the colouring is added and how many are added to one layer will alter the final cake covering.  It was great fun, the kitchen saw more flowing condensed milk than it has ever seen but for a first time I was pretty happy with our Mirror glaze galaxy cake!

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Our cake!

 

Hope you have enjoyed my prompts!

Claire x

 

 

Meet and Greet: 9/2/17

Meet n Greet courtesy of Danny on Dream Big blog!

Dream Big, Dream Often

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It’s Meet and Greet time everyone!!  Strap on your party shoes and join the fun!  

Ok so here are the rules:

  1. Leave a link to your page or post in the comments of this post.
  2. Reblog this post.  It helps you, it helps me, it helps everyone!
  3. Edit your reblog post and add tags.
  4. Feel free to leave your link multiple times!  It is okay to update your link for more exposure every day if you want.  It is up to you!

  5. Share this post on social media.  Many of my non-blogger friends love that I put the Meet n Greet on Facebook and Twitter because they find new blogs to follow.

See ya on Monday!!

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Currently….July 2017

I found this link up party when visiting Roseann on This Autoimmune Life – she has written a lovely post for the party being co hosted by Stephanie on Wife, Mommy, Me blog.  It is a monthly link up where you are given 5 prompts to answer – Stephanie says it is the easiest blog to write…ever, and Roseann thought it looked like fun.

So here goes with what I am CURRENTLY doing…..

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Documenting – My daughter finally has an appointment with a genetics consultant tomorrow having been turned down by paediatrics and rheumatology for consultations.  So in the hope that she will be recognised as having hypermobile Ehlers Danlos syndrome and have some more help at school, I am documenting her issues to date…mainly pain, dislocations, dizzy spells, lack of coordination….and on it goes along with the strong family history from yours truly and my mum before me.  Wish us luck!

Accomplishing – my initial response is very little, but then I look at my post on this blog “Magic Monday – Inspiring Blogs for You!” and can say that I am accomplishing a regular weekly feature…..thanks to all of your amazing blogs.

Enjoying – my daughter and I are currently enjoying the American teen TV series Awkward – it really has become a guilty pleasure.  The traditional teen drama is turned on its head with irony, role reversals and humour…..we laugh out loud!

Reading – I am currently reading The Devil’s Claw, a proof copy that I will review for author Lara Dearman, Sapiens: A Brief History of Humankind by Yuval Noah Harari and The Versions of Us: The Number One bestseller by Laura Barnett (our monthly book club read).  I read masses and belong to a local group, Netgalley and the fantastic “The Book Club on Facebook” run by Tracy Fenton from Compulsive Readers blog.

Spending – I seem to be spending more and more time visiting different hospital consultants.  I really have gone from being a medical professional to a professional patient!  Good job I don’t mind hospitals – can’t say the same for the waiting room times!

The school holidays have begun, which whilst it means that I have more mess in the house, less food in the cupboards and more stress, secretly I do enjoy having the kids about – even the 21 year old who is currently on a summer internship – but don’t tell them I said that!!

Claire x