OBSERVE our stripes – we are rare – we are zebras – we have a genetic connective tissue disorder – we have Ehlers Danlos Syndrome!
#EhlersDanlosAwarenessMonth #FragilebutUnbreakable
OBSERVE our stripes – we are rare – we are zebras – we have a genetic connective tissue disorder – we have Ehlers Danlos Syndrome!
#EhlersDanlosAwarenessMonth #FragilebutUnbreakable
Someone opened the door today
And out I went into the world.
The sky was grey and the earth was wet
A chill in the air permeated my bones.
Nerves and joints hurt so bad
The titanium inside felt icy cold,
Pains misfiring and doing battle
With the pulses of current sent
To stop them in their tracks
From the electrode sleeping
Against my spinal cord.
Someone fought the cold today
As the park cafe beckoned,
A small alcove housed my wheels
And provided shelter.
Whilst an external heater,
At the lightest touch of a switch,
Spilt a glimmer of light and warmth
To wrestle with the cold world.
How can I explain to you my brain fog, dear friend?
Come with me and explore the opiate shaped holes in my mind
Move inside my skull, around my head and explore
The maze of cotton wool corridors.
Think of what you have just left behind you,
Explore around the next corner,
And then turn back.
But the fog has enveloped that last thought
And we are lost,
To explore no more.
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