Monday Magic – Inspiring Blogs for You

On Oct 16, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness17 Comments

Welcome back to Pain Pals for what I hope will be a great week following a fantastic weekend! Those of you who have read my previous couple of posts will know that our lovely girl has her German exchange partner staying – an equally lovely young man of 15 and about 6 feet 3!! We had a house full on the first night as we hosted all the English girls and German boys & girls to help break the ice; and then when hubby arrived home Saturday evening having collected from ice skating & bowling, I couldn’t help thinking “Bloody hell, my new car really is big” as the front door opened and a stream of teens came in.

There were 16 in total – and no it turns out that the car isn’t really a Tardis – but they were followed by a steady stream of takeaway deliveries from 5 outlets. I can’t remember when, if ever our doorbell has rung so many times on a Saturday night! I just commented on an EDS Facebook group that a huge positive for us this week has been to see our normally angst ridden teen turn into a group organiser and hostess. We had only been expecting 6 back on Saturday, but in order to avoid some breakdowns within the group our girl sorted them all (and took over our lounge ha, ha, ha) with tact and diplomacy to ensure everyone had a good evening. Teenage relationships can be so tricky at the best of times, but throw in different languages, exchange partners paired who ordinarily wouldn’t be in the same friendship groups, one all girls school & one mixed sex, and the probability for issues is huge! It has been interesting to see that the mixed sex pairings – like our lovely girl and lovely German boy – have been less problematic than the all girls – teenage girls and friendships equals another blog post entirely methinks! The mixed sex group – 4 couples – went to Thorpe Park Fright Night on Friday and had a fantastic time. Not my cup of tea but they loved it.

As for me I am officially exhausted, typing one handed whilst in a sling again, but am officially one very proud mum having watched my girl blossom before my eyes. Some might say turning into a chip off the old block – and even her eldest brother commented that the social awkwardness she professes to have is just not evident for the rest of us. Today they have all gone to Brighton – the Pavilion, fish and chips, the beach and the lanes. Whilst the fatigue and dislocation have taken their toll, I have found some more fabulous blog posts for you to enjoy.

So grab a cuppa, kick you heels up and sit back to read some fab pieces, all very different but all inspiring. I particularly love the Lush products review from Katie Cupcake and the beautiful piece about friendship from Happiness and Food. Enjoy!

20171004_132155 — Photo from Katie Cupcake Life With ME

https://fictionisfood.com/2017/10/14/thoughts-on-nannowrimo/#more-4179

https://www.sp-bx.com/rick-and-morty-season-3-review-the-best-season-so-far/

https://clockworkclouds.wordpress.com/2017/10/09/can-you-overthink-an-idea/

http://katiecupcakelifewithme.com/review-with-me/lush-karma-spa-treatment-event-review/

https://www.happinessandfood.com/name-happy/

https://zebratalez.com/2017/10/15/10-social-security-disability-tips/

http://invisiblenotbroken.com/blog/2017/10/4/best-podcasts-to-listen-to-when-stuck-in-bed-with-chronic-pain

http://withoutacrystalball.com/2017/10/12/day-found-family-chronically-ill/

http://www.healthyeatingexperts.com/holistic-therapist-kicked-depression-said-bye-bloat-chronic-digestive-issues-naturally/

https://livingwithme.blog/2017/10/12/all-time-low/

Please comment, share and spread some love for your fellow bloggers.

love Claire x

Monday Magic - Inspiring Blogs for You! (1)

Monday Magic – Inspiring Blogs for You!

On Oct 9, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness1 Comment

Hello friends! Welcome to another week on Pain Pals Blog.

It has been a busy week in our house with wedding anniversary celebrations, my last governance meeting at our local primary school, a quiz night and all the usual comings and goings. To say that I am feeling low on spoons would be an understatement, but I never have been very good at pacing myself or saying no! However our lounge currently resembles a florist shop having been bought some beautiful flowers – 2 bouquets contain lilies which are just opening and are simply stunning. The downside is the pollen getting up noses and on clothes.

IMG_20171009_162108926

We are currently living in a state of mixed emotions as we await the arrival of the lovely girl’s German exchange partner later this week. On the one hand she is very excited to see the whole group again and the next minute she is completely stress Eau de teen ed as to how they will all get on, will they have a good time…So – this is another fab example of me not being able to say no! – we are hosting the first evening that the German students arrive, that is 26 teens (half British, half German) in our lounge becoming reacquainted over music and pizza. Our girl and her best friend happened to be paired with 2 young men who are also best friends – very handy! They spent most of their time in Germany together and I think that we will have a house full over the weekend as they visit Thorpe Park Fright Night & plan trips to London and Brighton! I have spent this morning fumigating the politics student’s bedroom so that our guest can use it without catching anything. Why do the rooms of adolescent males all have the same aroma? Eau – de – teen!!

Enough of my ramblings – I shall report back on exchange progress as the week unfolds! Before I share my pick of inspiring posts for the week, I am going to shamelessly plug my book review that I published yesterday for Shelley Wilson’s book “How I Motivated Myself to Succeed” – please take a look and keep an open mind. There are some great tips to be found. But now find yourself a comfy corner and curl up to enjoy a really wide variety of posts this week.

https://marriedcatladysite.wordpress.com/2017/10/05/lets-do-something/

https://croneconfidence.com/2017/10/05/communicate-is-the-word/

https://wellsbaum.blog/2017/10/08/the-chemicals-between-us/

http://angelanoelauthor.com/guest-post/love-letter-memories-of-the-grandadest-of-grandads/

https://moderngypsy.in/2017/10/04/mindful-break-2017/

https://thechangeplace.com.au/product/diy-option-freedom-to-choose-self-paced-coaching-program-special-offer-copy/

http://www.balancedespitethechaos.com/blog/mecfs-exercise

https://findingmymiracle.com/2017/10/05/undiagnosed-chronic-illness-fire/

https://strengthandsunshine.com/gluten-free-vegan-chickpea-nuggets-allergy-free-grain-free/

https://achronicspoonful.wordpress.com/2017/10/07/a-new-neurologist/

Please like, comment and share these posts – support your fellow bloggers!

love Claire x

Monday Magic 2

Monday Magic – Inspiring Blogs for You!

On Oct 2, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness9 Comments

October is here! Autumn, the nights drawing in, the beautiful colours outside, digging out the winter warmers, Strictly Come Dancing (huge fan here!) and Halloween…..not quite such a big thing here in the UK as for some of my virtual pals across the pond, but it is growing! It also brings a special anniversary in our house tomorrow….more of that to come! Monday Magic - Inspiring Blogs for You!

If you saw my post yesterday, you will already know that I haven’t been too well this last week as my autonomic nervous system went into melt down…..causing severe dysautonomia with me unable to stand up, fainting, ear pain (anyone else get this?) and severe brain fog. Unfortunately this coincided with a call from Ofsted for the school where I am a governor for an inspection that we have been expecting and wanting for some time. Whilst I managed to get to the school the evening before to meet with the head, the chair and my co-vice chair, I became so aware of the effects of brain fog as I couldn’t recall any recent figures or information that may be necessary for the inspection. Of course stress often exacerbates illness symptoms – whether chronic or otherwise – and as a bit of a worrier/internaliser (typical of EDS anxiety) I struggled more than usual to sleep and then on the morning of the “big day” I was unable to even sit up without snow vision and nausea. Great – just when I needed to use my brain, which was once OK despite what my kids may say, it was full of enormous balls of cotton wool and opiate sized holes. My colleagues were of course just fine without me…..but once again I am left with that feeling that I have let other people down. The loss of clarity and independence drives me bananas! 9c1efbf4cd9c5c62d212584a665278e1

So once I was able to read a computer screen again – the light can make the visual disturbance so much worse – I have spent some hours over the weekend looking for some more great blog posts for you. I am mindful that not everyone who follows my ramblings has a chronic illness, so this week I have found a mixture of posts from cookery to a podcast.

I have my coffee in my hand, so I invite you to sit down and join me for a virtual cuppa whilst enjoying reading some fantastic posts.

https://cookandenjoyrecipes.wordpress.com/2017/09/30/caashifas-apple-crumble/

https://blondewritemore.com/2017/10/01/how-to-survive-blogging-with-a-small-following-sundayblogshare-blogs-bloggers/

https://orianasnotes.com/2017/09/28/5-monthly-favorites-september/

https://www.beecontentyoga.com/aqua-yoga-for-arthritis-research/

warrior-III — Image from BeeContentYoga Blog

https://upbeatliving.net/12-tips-chronic-pain-care-despite-changing-laws/

https://makinglol.com/is-blogging-right-for-you/

https://lifeofstones.com/index.php/2017/09/22/how-changing-your-mindset-can-improve-your-life/

https://cityskippergal.com/2017/10/02/klosterman-welcomes-pink-in-october/

https://poisoninlethaldoses.wordpress.com/2017/10/02/follow-your-gut-because-it-doesnt-lie/

https://makeitultrapsychology.wordpress.com/2017/10/01/negative-core-beliefs-podcast/

Please remember to comment, share, like and make a blogger’s day!

Claire x

Monday Magic – Inspiring Blogs for You!

On Sep 25, 2017Sep 26, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness9 Comments

Welcome to another week and to some more great blog posts! It has been a busy week in our household and some of you might have seen my post about moving one son home and the other off to university. Funny how Duncan and I have both woken up with splitting headaches this morning…..the only extra comment today on the move to Nottingham, is how can a supposedly bright young man arrive in his room at university and have not packed a single pen in his luggage??

File_000 (4)

We have also celebrated my daughter’s birthday this week and we did wonder what we were letting ourselves in for when we agreed that she and her friends could have an evening at home….pizza, popcorn, films. Eleven girls, aged 15 & 16, on a school night – how hard could it possibly be? Actually it was easy….but extremely loud! The girls restored my faith in teen friendships, having heard about various fallings out in girls’ groups and bitching recently. My girl is always very concerned about her friends and tends to be the problem solver in the group, quietly trying to keep the status quo between the more vocal characters. There have been some subtle changes in the group dynamics recently, but I can honestly say that this particular group is kind and caring. They had made her a wonderful “Pride striped” birthday cake and arrived with a personalised balloon. Long may it continue. File_000

Last night I watched the opening of the Invictus Games in Canada, and yet again I was unable to stop the tears. How can we not be moved by these service men & women from across the globe, who have been so badly physically and mentally injured serving, yet have pulled themselves back from the brink to represent their countries again? A very different theatre undoubtedly, but the courage, strength and sheer bloody mindedness is inspirational. It does make me wonder what I have to complain about…..am I trying hard enough….but it is all relative. However I was inspired to get some physio done in next door’s gym this morning! Monday Magic - Inspiring Blogs for You!

So whilst we are on subject of inspiration, I hope that you will enjoy this selection blog posts that I have put together this week…..a mixture of chronic illness, motivation and even preparing your own coconut oil (the photos on this post are fanatastic!). So time to get that drink, sit down and enjoy!

https://motivatemenow.co.uk/2017/09/18/how-to-create-a-more-fulfilling-future-blog-series/

https://blondieaka.wordpress.com/2017/03/24/how-to-make-your-own-coconut-oil/

http://thedailymanic.com/manage-life-change-future-unknown/

http://xofaith.com/3-epic-reduce-stress/

https://www.mymeenalife.com/surprising-things-diagnosed-with-lupus/

http://alifewellred.com/3-ridiculously-easy-ways-save-money-holiday-season/

http://coffeeheartmind.com/meet-ivy/

http://mini2z.com/after-the-storm/

https://alifelessphysical.com/2017/09/24/perfect-presents-for-people-with-chronic-pain/

http://www.jennavon.com/?p=584

Please comment, like & share these posts, and support your fellow bloggers,

Claire x

Monday Magic – Inspiring Blogs for You!

On Sep 18, 2017Sep 18, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness14 Comments

I am shattered today, PainPals and those pals not in pain! Saturday was the day for the big reunion – that is 3 decades – 30 years since we left school. I’m not quite sure which timescale sounds better! How did that time pass so quickly? I remember my grandma telling me to value every day as the older you get the faster the time flies…but as a youngster I never took any notice. Put together a group of people, some who haven’t seen each other for said 30 years, but who grew up together during those important teenage years….and it will feel like yesterday. Similar theme to last week!

Food, drink, friendship!

Hard core – last men standing!

Still Messing!

I was worried on Saturday morning for 2 reasons – firstly would anyone turn up and secondly I was feeling extremely POTSIE with the shakes and snow vision and forgot to take my midodrine pills with mine! But on the up side about 20 people turned up over the course of the day/evening….and whilst I spent the first part of the day in my wheelchair the adrenalin seemed to kick in and I was able to stand for periods in the pub, sent out for my pills (good old Duncan) and was still in the pub for dinner in the evening. It is amazing how you can push yourself when you need to and when you want to. I find that it is about picking the occasions wisely to use your spoons, as it isn’t possible to live like this every day when a chronic illness is your constant companion.

The feedback has been fantastic – we had a great day renewing old friendships, reminiscing (being thrown out of choir, altering the wording on the carol service leaflet, sending Valentine cards, hockey, rowing, detentions for pranks…..the teachers) but also learning how everyone’s lives have moved on. We had doctors, a headmistress, lawyers, an acupuncturist, a sports coach, a teacher, a horticulturist, an entrepreneur….the list goes on. Families have grown..and shrunk. Life goes on!

So whilst I have had to sit back due to a self imposed inability to stand, I have found some new blog posts for you. This week we have blogging posts, a yummy looking recipe site, a musical tribute and the feelings encountered when a pet is found to be very sick. I am delighted to report that my list of blogs I have shared here has grown to 230 and many of these have been featured several times. What a wonderful community you are!

Hope you have a cuppa in your hand, an hour to sit back and the enthusiasm to enjoy and explore these fantastic blogs.

https://www.disabledgo.com/blog/2017/09/activists-plan-day-long-musical-tribute-to-radical-and-brilliant-robert-dellar/#.Wb7PB7KGPIU

http://www.youcanalwaysstartnow.com/2017/09/11/is-the-universe-pushing-your-buttons-deal-with-it/

http://www.blessingmanifesting.com/2017/09/self-care-awareness-month.html/

http://riverandquill.com/2017/09/identity-theft.html/

https://beinglydia.com/2017/09/17/what-finding-out-my-dog-is-sick-has-taught-me/

http://www.livingnaturaltoday.com/2017/09/heart-goes-texas/

http://raisingzebras.weebly.com/blog/brain-mri-and-the-wheelchair-arrives

https://starbrightcooking.com/21-tips-classic-comfort-cooking/

http://www.strugglingwithserendipity.com/blog/accepting-harvard

http://www.angiecruise.com/what-i-learned-in-my-first-year-of-blogging/

Please, please share, pin, like, comment to let our bloggers know that you have enjoyed and value their writing. Have a lovely week!

Claire x

78-conan-o-brien-quote_1_orig — Picture from Struggling with Serendipity blog

Monday Magic – Inspiring Blogs for You!

On Sep 11, 2017Sep 15, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness15 Comments

Another week, time for another Magic Monday! The events in our household really pale into insignificance compared to the natural disasters taking over so many parts of America at the moment. The majority of us, thankfully, will never have to encounter the devastation that these natural phenomena wreak, but I want to send support and good wishes to all our American blogging pals who are living through this. There is an additional blog post this week that my pal Cheryl at Chronic Mom blog wrote last week about what no one tells you about surviving a natural disaster with chronic illness – but I think that there are probably aspects that apply to everyone!

We had an unexpected trip over the weekend – hence no blog post – and as it was a long trip for this chronic bird to make in a day, we paid an impromptu visit to old friends to beg a bed for the night. Panic not other old friends, we gave them 24 hours notice!! We haven’t seen each other for about 5 years, yet we have known each other for nearly 30 years – we “girls” did our nurse training together and the blokes have always been hifi and gadget buddies. Not forgetting that this fellow hifi nut was hubby’s best man 25 years ago! With just a few precious friendships the years roll away and it is possible to appreciate the long and deep connections that you have with each other. As two couples, we have had our fair share of traumas over the past couple of years – we decided we should form the “Happy Pill” brigade as we must have shares in antidepressant companies between us – but we have survived and it is testament to our friendship that we can come together as if it was yesterday! How many people in your life can you call on and truly rely upon to be there for you no matter what? Quick shout out here for our fab friends’ facebook page – check it out (chocolate brownies to die for) Keeley House Bakery

I have found some great blog reads for you this week including becoming a real mermaid (just read it!), a fab book review, and using your imagination when putting pen to paper. There is also a piece about the scandal currently coming to light about the use of mesh implants in surgical procedures. So grab a cuppa, put your feet up and enjoy some fabulous writing in these inspiring blog posts!

http://www.chronicmom.com/2017/09/what-no-one-tells-you-about-surviving-a-natural-disaster-with-a-chronic-illness.html/

http://www.nataliemabbott.com/quitting-everything-to-be-a-mermaid/

http://moonglotexas.com/2017/09/10/book-review-death-at-thorburn-by-julianna-deering/

https://1stimeblogger1232.blogspot.co.uk/2017/09/every-scar-tells-story.html

http://www.meaction.net/2017/09/01/reading-matters-lets-hear-it/

https://dystoniaandme.com/2017/09/10/5th-blog-birthday/

http://www.amundanelife.co.uk/2017/09/anxiety-is-not-trend.html

http://invisiblyme.com/2017/09/05/the-mesh-scandal/

https://globehousesitterx2.wordpress.com/2017/09/10/a-pen-paper-and-my-imagination/

https://mindovermetablog.wordpress.com/2017/09/06/how-to-deal-with-toxic-people/

https://ginlemonade.wordpress.com/2017/08/30/when-the-accessible-hotel-room-is-inaccessible/

Please share this post and make a blogger’s day with a like, share, pin or comment….it makes it all worthwhile.

Have a great week!

Claire x

Monday Magic – Inspiring Blogs for You!

On Sep 4, 2017Sep 4, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness, chronic pain, Poem12 Comments

Good Morning and welcome to another week, another Monday Magic and some more great blog posts to explore!

Here in England the schools return this week, much to my daughter’s disgust, and it feels slightly odd that we only have one child still at school. I have almost missed the ritual trip out to buy school shoes and stationary, but my 15 year old doesn’t need me for this any longer. Note that I have said ALMOST, not really missing queuing up with a numbered ticket in a branch of Clarks along with a bunch of harassed mums and boisterous children……however there are going to be some shopping lists I should think, ahead of the soon to be politics student going off to uni in a couple of weeks. He is more concerned about his football season ticket and joining the Facebook freshers’ group than how many sets of bed linen and cutlery he might need. Who am I kidding? One set of bedding will last the term, won’t it – there is no way my 18 year old son will change it of his own accord, YUK!

Moving on swiftly, September is Chronic Pain awareness month and naturally with my background I will be mentioning it….just a few times! This week also happens to be Fibromyalgia awareness week – which falls under the chronic pain umbrella – and Kat writes about this over on Chronically Composed – a Scottish journey with Chronic Pain. The other posts I have found this week include a back to school guide, an emotive poem about depression (you can see I have commented on it), a young dad struggling with illness and surgery whilst raising his family, and a face that many of you are already familiar with – Danny from Dream Big who is currently concentrating on his Youtube channel and MS awareness. Plus a great post looking at what is more important in blogging…numbers or friendship?

But to kick off I have kindly been given permission to bring you this fun poem from Anna on Healing Hugs and Hope blog……

An Ode to My Heating Pad

Oh, heating pad,

your warm hugs ease

my aches and pains.

I need your healing squeeze

When my feet get cold,

or when I get one of my migraines.

From arthritis to subluxations,

you’ve nursed me through.

When I find my muscles tied,

I cuddle up to you.

It’s so nice and toasty,

with you by my side.

Due to my poor circulation,

I’m often very cold.

When my thyroid acts out,

you are too hot to hold.

Still, you know I’ll be back,

it’s your gentle hugs I’m mad about.

If you love your heating pad so much, why don’t you marry it? Well, maybe I will….

A Silly Poem for People with Chronic Illness by Anna Ottlinger HEALING HUGS AND HOPE

So now time for feet up, cuppa in hand and enjoy some great posts!

https://chronicallycomposed.wordpress.com/2017/09/03/my-fibromyalgia-awareness-week-2017/

https://thezebramom.com/2017/08/24/back-to-school-guide-for-parents-with-chronic-illness/

http://lifesapolyp.blogspot.co.uk/2017/09/dialectical-behavioral-therapy-for.html

http://angelanoelauthor.com/inspiration-motivation/be-awesome-in-real-life/what-matters-more-numbers-or-relationships/

http://channongray.com/talk-mental-health-awareness-stigma/

https://thisreallifedad.com/surgery-going-knife/#comment-332

http://www.homeschoolinsights.com/2017/09/trials-of-chronic-illness.html

http://www.weareholistic.com/mental-health-care/might-call-depression/

I really hope that you enjoy these as much as I have – and had a giggle at the poem from Anna. It appealed to me as I really can’t go anywhere without my heating pad! Please explore the blogs leave some messages and share posts you enjoy.

Claire x

Monday Magic – Inspiring Blogs for You!

On Aug 28, 2017 By Claire Saul (PainPalsBlog)In Blogging, Blogs, chronic illness, Disability15 Comments

Monday Magic

Good Morning, all! Hope that those of you enjoying a Bank Holiday are having a fantastic day, and that everyone else has had a great weekend!

The weather is beautiful here and we have a family BBQ planned for later in the day – coincidental, but it just happens to be my parents 52nd wedding anniversary. Dad would tell you that he would get less for a life sentence!!

A very good friend contacted me earlier in the week with the sad news that her mum had died. She has been living in a nursing home for several years now and has gradually deteriorated, but in recent weeks she took a turn for the worse with a bad chest infection and just wasn’t strong enough to fight it. This week has been very hard for my friend, her brother & sister, and particularly her dad. They had been married over 60 years. It struck me that no matter how old or how sick a loved one is, the sense of loss at a death just can’t be anticipated.

File_000 (41) — Beautiful bank holiday Monday!

When I received that message my own mum was here and I should probably point out that we have a great relationship. She has been staying with me whilst the family have been away and has effectively been my carer again! Talk about turning the clock back, becoming the child again. I felt so dependent physically and even a short car journey left me struggling, but it never fails to amaze me how that parent/child psychological bond is always there. No matter how old you are, it is always possible to feel like a teen again! A naughty teen at times! Seriously though, thanks mum, I couldn’t have managed without you.

This week I have been able to spend time finding new groups and meeting new bloggers online. So the inspiring blog posts I have for you are from a mixture of sources – one of them being the Facebook group Big Up Your Blog! – run by Suzie from “Suzie Speaks”. I have included her post about self censorship on our blogs – it is something all bloggers should read, no matter what your content matter. I think that I have probably failed miserably on all counts!! There is also a beautiful poem about a relationship break up, the role we play ins supporting new mothers emotionally and a shout out for a new disability campaign for parents later this year.

So as usual, grab a coffee, sit back and enjoy…..

https://suzie81speaks.com/2017/07/08/should-you-self-censor-your-personal-blog/

https://fancypaperblog.wordpress.com/2017/08/22/mental-health-be-kinder-to-new-mothers/?fref=gc

https://iwillnotliveinvain.wordpress.com/2017/08/26/vaguely-nauseated/

https://mindovermetablog.wordpress.com/2017/02/22/why-its-sometimes-good-to-look-back/

https://jellified.wordpress.com/2017/08/25/from-the-start/

https://addandsomuchmore.com/about-the-name-add/

https://nolightwithoutdarkness.com/2017/08/23/when-your-mental-health-affects-your-job/

https://fibromyalgia-chronic-pain.blogspot.co.uk/2017/01/to-reduce-stress-and-pain-in-your-hands.html

https://cfsmeandkingdomliving.wordpress.com/2017/08/27/redefining-the-dark/

http://blossomandcompany.co.uk/italkdisability-campaign/

Please remember to comment, check out other posts on these blogs and find a new writer to follow,

Claire x

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An Ode to My Heating Pad

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