The weather has turned – my joints and dodgy bits of body are telling me it is colder, even if the sun has been shining. Last night we went to a posh do at The Oval cricket ground and there was a drinks reception on the roof terrace before the meal. On arrival it was suggested to guests that they left their coats on the second floor before ascending to the fourth floor. It was lovely looking over the stunning cricket green (it really was very green) as the sun went down – but it was freezing!! There was a blustery breeze that left many of the ladies’ bare shoulders blue and goose pimpled in their strappy evening gowns. I had kept my outer layers on – a cape that looks a bit posh due to a fur collar – but my spinal cord stimulator and chronic nerve pain were doing battle with each other as to which could out do the cold air!
Earlier this week hubby and I were out shopping and again I was caught out by the sunshine! Something that you don’t realise when you are up, mobile, walking and running is just how cold it can get sitting in a wheelchair. My legs and feet were freezing and the cape (not the one from last night – one that Dad calls my “old lady blanket”) I usually tuck around me was safely in the car. It is time to change the clothes, pack the summer shoes away and accept a different set of symptoms as the POTS faints decline as the temperature drops, and the chronic pain flares.
This is the autumn term now and when I saw Lorna’s writing prompt (Autumnal food memories) on Gin & Lemonade it got me thinking to times in the past when I could go out without constant chronic pain. I’m not moaning, looking for sympathy, just merely reminiscing! My memories of autumnal food takes me back to the Halloween/Guy Fawkes nights of my primary school days and the bonfire celebration that we would attend as a family held by my brother’s school. It was in the rugby field and the big treat would be toffee apples – hard, crunchy, golden toffee casing over soft red apples. Dreadful for our teeth Mum would tell us every year! But then as the evening temperature dropped and feet started to go numb inside wellie boots, there would be polystyrene cups of hot tomato soup – Heinz in those days of course! – and never has soup tasted so good.
Thinking back there were aches and pains in some of my joints even then, but all put down to me being bendy (correct!) or growing pains (wrong!). But the memories of that tomato soup, sticky toffee apples and not forgetting the fireworks and bonfire, will always makes me smile.
Make your own toffee apples with this simple recipe from the BBC Good Food site
October is here! Autumn, the nights drawing in, the beautiful colours outside, digging out the winter warmers, Strictly Come Dancing (huge fan here!) and Halloween…..not quite such a big thing here in the UK as for some of my virtual pals across the pond, but it is growing! It also brings a special anniversary in our house tomorrow….more of that to come!
If you saw my post yesterday, you will already know that I haven’t been too well this last week as my autonomic nervous system went into melt down…..causing severe dysautonomia with me unable to stand up, fainting, ear pain (anyone else get this?) and severe brain fog. Unfortunately this coincided with a call from Ofsted for the school where I am a governor for an inspection that we have been expecting and wanting for some time. Whilst I managed to get to the school the evening before to meet with the head, the chair and my co-vice chair, I became so aware of the effects of brain fog as I couldn’t recall any recent figures or information that may be necessary for the inspection. Of course stress often exacerbates illness symptoms – whether chronic or otherwise – and as a bit of a worrier/internaliser (typical of EDS anxiety) I struggled more than usual to sleep and then on the morning of the “big day” I was unable to even sit up without snow vision and nausea. Great – just when I needed to use my brain, which was once OK despite what my kids may say, it was full of enormous balls of cotton wool and opiate sized holes. My colleagues were of course just fine without me…..but once again I am left with that feeling that I have let other people down. The loss of clarity and independence drives me bananas!
So once I was able to read a computer screen again – the light can make the visual disturbance so much worse – I have spent some hours over the weekend looking for some more great blog posts for you. I am mindful that not everyone who follows my ramblings has a chronic illness, so this week I have found a mixture of posts from cookery to a podcast.
I have my coffee in my hand, so I invite you to sit down and join me for a virtual cuppa whilst enjoying reading some fantastic posts.
Please remember to comment, share, like and make a blogger’s day!