Review : Honey Colony Superior Cannabinoid Rich Hemp Formula for pain relief

Disclosure: “I have been given Honey Colony Superior Cannabinoid Rich Hemp Formula as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.”

 

For the last 6 weeks I have been trialing Superior Cannabinoid Rich Hemp Formula, an herbal supplement made by Honey Colony, a co-operative model based in USA that aims to empower the individual to be their own best health advocate. honey colony.com

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Cannabidiol (CBD) can be extracted from the cannabis plant and taken for health benefits, but without the euphoric feelings usually associated with cannabis/marijuana.  Honey Colony, who have a mission to empower the individual to be the best advocate for their own health whilst putting honesty back into the food supply, were looking for individuals experiencing chronic pain to assess the effects of CBD oil on their health and well being.

The science bit:

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   Hemp         ←                              →    Marijuana

Agricultural production                                                                          Pharmacological production

↓                   ↓                    ↓                                                                                 ↓                                      ↓

Fibre            Oil                Food                                                                          THC                               CBDs

Cannabis is made up of over 60 compounds, and the 2 in greatest numbers are CBD and THC.  The compound that people will be most aware of by reputation if not name is the THC – this is the part that causes the user to experience the high we think of in recreational use! However it is possible to produce a plant that has higher levels of CBD and lower levels of THC.  As CBD has no component to cause psychotropic changes it is useful for medicinal purposes. Must know facts about CBD

So now the health benefits:

Pharmacological reviews have claimed that CBD has the following properties

  • anti-sickness,
  • anticonvulsant,
  • antipsychotic,
  • anti-inflammatory,
  • anti-oxidant,
  • anti-cancer,
  • anti-depressant

(https://www.ncbi.nlm.nih.gov/pubmed/22625422)

Honey Colony has developed an herbal supplement incorporating CBD which they state

  • Balances the Nervous System
  • Balances the Musculo-Skeletal System
  • Promotes Mental Clarity, Focus & Memory
  • Supports Calm & Relaxation
  • Supports Healthy Immune & Stress Response
  • Supports Healthy Inflammatory Response
  • Provides Anti-Oxidant Support
  • Supports Healthy Energy & Stamina

 

What makes the Honey Colony Superior formula stand out?

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This herbal extract is a combination of CBD oil and 6 other natural compounds

  • Sichuan Teasel Root
  • Dang Shen Root
  • Astragalus Root
  • White Peony / Bai Shao Yao root
  • Propolis
  • Bitter Orange Peel

 

The Honey Colony site states “whole plants or mixtures of plants are more effective than than isolated compounds.

Full details of the ingredients’ properties can be found here: https://www.honeycolony.com/shop/superior-cbd-oil/.

 

Why should I try Honey Colony Superior Cannabinoid Rich Hemp Formula?

I have a genetic condition called Ehlers Danlos Syndrome (hypermobility type) which means that my body does not produce collagen in the normal way – normal tissues containing collagen stretch & rebound like an elastic band, whilst mine is more like chewing gum!  It affects my joints, causing pain & dislocations, my circulation (Raynauds and Postural Orthostatic Tachycardia syndrome – I pass out regularly!), my gut, my bladder & my nervous system.  Cauda equina syndrome after a lumbar disc rupture many years ago has left me with chronic pain in my back, leg & foot.

I have struggled to gain any real pain relief in recent years and have taken a cocktail of drugs including the opiate Oxycontin (oxycodone), various antidepressants used for nerve pain and the gold standard for nerve pain, Lyrica (pregabalin).  Last year I had a spinal cord stimulator implanted to help relieve the nerve pain and my hospital insisted that I wean myself off the Oxycontin. Whilst I’m pleased to be off the opiates, a downside has been a huge increase in my joint pain so having been asked to write a review for Honey Colony I felt quietly hopeful & excited!

The Product

The hemp formula arrived in the UK well packaged and in a bottle of good quality & appearance – dark brown to preserve the qualities of the formula from light damage, with a pipette dropper lid and a black & bronze label.

It is recommended that the product is taken 3 times a day, placing 4 drops under the tongue for 90 seconds – sublingual for fast absorption into the blood stream.

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The product is a strange sludge colour, but please don’t let this put you off!  I found the taste bitter at first but after several doses my taste buds had adjusted and I was able to detect the sweetness of the honey.  For me this was a similar taste experience to that with oxynorm elixir!  Unlike some other CBD oil products on the market which use olive or coconut oil, the Honey Colony Superior Rich Hemp formula does not contain a carrier and does not need warming to thin the consistency.

The All Important Question – Did it help?

I went into this trial with an open mind and without reading any other reviews for this or similar products.  I haven’t used CBD products before so I am unable to draw comparisons between this product and other CBD products on the market. The immediate difference that I noticed was to my sleep. Like many chronic illness sufferers, my sleep is at best disturbed and at worst non-existent.  The particular type of spinal cord stimulator that I have cannot be used overnight and so I have to switch it off.  Without the oxycontin my nights have become worse from both the nerve pain and joint pain.

My nights have definitely been more settled following a final dose of CBD oil before going to bed – the muscle spasm around my joints is improved and I feel generally more relaxed.  I can’t pretend that I suddenly sleep all night every night, but I think that during wakeful periods I am less stressed.

My pain in my joints & soft tissues is definitely helped by the CBD formula – the relaxed feelings come within about 30 minutes and last for several hours.  This allows me to perform some of the moderate exercises that are essential to keep me moving & to  ensure my mobility does not further deteriorate.   The jury is still out with regards to the chronic nerve pain that I have in my back, leg & foot – I plan to continue monitoring this alongside the scs over coming months.  The temperature has dropped in recent days and so my pain has worsened – this will be a really good test period for some improvement.

I am completely realistic after so many years with chronic pain and do not expect a “cure” but any relief is really welcome, so I am thrilled that I am able to feel more comfortable in my shoulders, hips and hands particularly.

Prices, Value & Comparisons

Honey Colony products are available for shipping to the UK, but cannot be bought from suppliers here.  So when calculating costs a shipping fee must be considered.

A 30 ml bottle of the Superior Cannabinoid rich hemp formula retails for $92.55, with a current conversion of £74.73 and various reductions are available for larger quantities (https://www.honeycolony.com/shop/superior-cbd-oil-3-pack/). superior-3pack-600x600 The current postage on one 30ml bottle to the UK at Priority International rate is $48.75 or £39.36, or first class rate is $22.75 or £18.37.  The exchange rate has altered since the Brexit vote in the UK and unfortunately for me makes the product and postage rate higher as the pound falls against the dollar!

The product does feel expensive, particularly as I am no longer physically fit enough to work and we rely upon disability benefits & are technically a low income household.  However having now done a little research and value comparisons online with other products, I can see that other CBD oils claiming to be of a similar quality are comparable – it is difficult though as I may not be comparing like with like.  My verdict is that for the results I achieved, this product does offer good value and I would purchase under different financial circumstances.

Any Special Considerations?

Honey Colony recommend that pregnant and breastfeeding women consult a doctor prior to using the product.

It is possible for the consumption of CBD oil to result in a positive drugs test for THC – whilst this should be well below legal limits, it must be noted by the individual (in the same way that eating poppy seeds can result in a positive opiates test occasionally).

My Conclusion

I have been impressed with the results that I have achieved using Honey Colony Superior Cannabinoid Hemp Formula health supplement whilst caring for my symptoms from Ehlers Danlos Syndrome.  Whilst I have not eradicated all my pain, I have achieved a better sleeping pattern & have gained relief for my joint pain.  When personal circumstances allow, I plan to continue using this product as part of a pain relieving programme.

 

DISCLAIMER: all opinions stated above are my own and based upon my own experience.  I am not authorized to give medical advice and am no longer registered as a nurse.  Please consult your doctor or seek medical advice before commencing any health supplements/medications.

When Chronic Pain requires drastic action

I want to share a story published this week in the British press and the email that I have sent on behalf of everyone suffering with chronic pain.

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Dear Daily Mail,

Thank you for sharing the story of Hannah Moore, the young lady who has chosen to have an amputation to help relieve her chronic regional pain syndrome(CRPS).  I know that the majority of people will be unable to understand why she would choose such a drastic route, but those of us living with constant intractable pain will understand the lengths that one will go to for any relief.
I have lived with chronic pain for many years now and have undergone various major back surgeries in an attempt to give me some relief.  My first operation, aged 21, followed me taking my nursing finals lying on a mattress!  Nursing at a time when we still “lifted” patients, combined with a genetic disorder of the collagen, undoubtedly marked me out for back & joint problems!  Following two failed back fusions in more recent years, last year I had a spinal cord stimulator implanted at St Thomas’ & Guys hospital in London and whilst this gives me some relief when it is switched on, it is not a cure..
The nerve damage in my back is permanent, as is the genetic condition (Ehlers Danlos Syndrome) causing faulty connective tissue to allow recurrent joint dislocations, circulation problems and more.  So….there is no cure, currently, for my pain.  I remember clearly the look of shock on a friend’s face when I said that I would happily swap my poor mobility for a permanent wheelchair IF it meant that I was pain free.  I would imagine that this brave young lady has come up against similar reactions.
Ironically I have recently acquired a wheelchair in order to give myself & family so more freedom, but I still do have constant pain which fluctuates in severity dependant upon the weather, my activity or for no reason at all.
I hope that with more recognition of chronic pain conditions, such as CRPS, that there may be some more understanding for this debilitating invisible illness.
Regards,
Claire Saul
A recent film has been made detailing life with CRPS “Trial by Fire” https://en-gb.facebook.com/trialbyfiremovie/
Link for the original story about 19 year old Hannah Moore – don’t be put off by the “sensational” headline

A Year on…life as an #EDS zebra with a spinal cord stimulator & #chronicpain

I’ve really struggled to get my act together over the last 10 days and write.  You may have noticed a gap in my posts – POTS symptoms in the heat followed by a migraine! This time last year I was mid spinal cord stimulator trial and planning my girl’s birthday, that is I was carefully pottering about with a massive dressing on my back and an electrical flex sticking out my side attached to a magic box of tricks handing out instructions!  So this also means I’ve been blogging for a year.

My kids really could not understand why I would feel the urge to write or why anyone would want to read anything that their mum wrote.  At first PainPals started out as a means to let friends & family know how I was getting on, to cut down on the number of repeat conversations. I had been really helped by info that I’d found online, particularly on Pain Support UK & by a lady called Tina Worth,  when I was first referred to St Thomas’ pain unit, so I figured that if I could help someone else at the same time this would be a bonus.  I never dreamt that I would link up with so many people, find so much help and support out there or that so many of you would want to follow me.  I am really grateful.

I still remember arriving at Guys hospital at 7 am and being the most scared that I had ever been before surgery.  This wasn’t going to be the longest, the most complicated or even the most painful surgery that I had undergone – but it really felt like and still feels like there was the most riding on it.  It offered hope and if this trial didn’t work then that hope for relief of the chronic back and leg pain was gone – and to continue living like this was not something I could contemplate.

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But life goes on and I want to recap the last year – the difficult bits, the positive bits & well the rest!  Has the spinal cord stimulator worked is the question that most people ask. Yes & no. Probably the hardest part of this journey is learning & accepting yourself and then explaining to family & friends that this is not a cure.  I have permanent nerve damage & a permanent genetic condition.  Would I go down this route again? Absolutely.  Whilst the scs is not the be all and end all for me, it has given me relief and some control back.  I have to admit that I still have “stim envy” for those who are having 24 hour permanent stimulators, as I have to turn mine off every few hours.  A “buzzing” stimulator also has to be switched off to drive – meaning that I can’t drive as I am unable to sit in the car without it on – and should not be left on whilst sleeping. So painsomnia again!  I understand that different surgeons use different devices, there is a cost, and that in the UK high frequency devices are only licensed by NICE for one specific diagnosis.  But….I still envy my friends who are able to have them on all day!

I have written posts about drugs and chronic pain, and I do feel proud that I’ve managed to come off the high dose of oxycontin that I was on a year ago.  It was not easy!  In fact I think that my bloody mindedness was what got me off and the biggest benefit must be the kids saying that I am like the old me again.  A downside is that the opiate was masking my increasing Ehlers Danlos pain and now the pain in my hips, shoulders, knees etc is much more acute and disabling.  I can’t manage without pregabalin(lyrica) and am still on the maximum dose for my nerve pain – St Thomas’ have said that I may never be able to come off it.  But I’m about to start a trial of a cannabinoid hemp formula supplement which I will review on here, so watch this space for some (hopefully) good results.  My autonomic nervous system has deteriorated and symptoms such as fainting, headaches/migraines, circulatory problems, postural changes do seem to have worsened since I had the electrodes implanted.

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Blue POTS fingers

No one is able to confirm if the stimulator could be increasing other symptoms, but I do wonder as it is the spinal cord and thus the nervous system that it is acting on.

Positives from this last year have been joining social online communities.  I had no idea how anything worked this time last year and my kids would laugh at me -facebook was totally their domain. But the support that I have found from fellow spoonies on wordpress, the amazing Julie Ryan and Chronic Illness Bloggers, Ehlers Danlos Uk & Twitter has been beyond any expectations.  The realisation of how many of us there are and how many families who support & are supported is simply staggering.  To find the Twitter #SpoonieSpeak set up by Tania from http://www.WhenTaniaTalks.com on a Friday evening to a new EDS chat that I stumbled upon last week, there is so much support & good feeling toward each other.

I still struggle to accept my limitations and am pretty rubbish at pacing, but I have accepted this year that a wheelchair gives me more freedom and that whilst my spinal cord stimulator has helped to manage pain, I am one of the third for whom the disabling factors of EDS get worse with age.  I’d rather my boys – young men now – didn’t have to get me out of the shower and dry me on a bad day…..in the humid weather last week I had breathing problems after a shower and the eldest’s main concern was that I didn’t die whilst naked. Charming!!  There was an article in a tabloid recently about some ladies who wouldn’t let their partners see them naked because they were worried about saggy breasts post feeding, caesarian scars or stretch marks.  They should be so lucky to have the choice – and only one scar – they should see my patchwork.  We have to laugh as all too often chronic conditions rob us of dignity & leave us in PJs.

On a brighter note I have managed to join 2 book clubs and reading is certainly easier without the opiate background to enhance my brainfog.  The first has been a local group that we found through Google Meet ups and Duncan & I both go along – probably helped to persuade him when he knew that it met in the pub!  The second is The Book Club on facebook which has been amazing. 14222267_10154600381361495_2740355709948892258_n I feel honoured to be able to read and review the works of authors who are also members – I hope that you have enjoyed some of my reviews that I have published on here.  Next month we have tickets for a birthday event for this group in London and I really hope that I am well enough to attend & actually meet some of these lovely people.  Think I might have to buy that wheelchair to get me there – we’ve been a bit slow as I’m still not quite sure what to invest in.

At times I feel very aware that other amazing bloggers seem to publish something every day and I just don’t seem to get my act together, or feel that I can write such inspiring pieces (have you read Genevieve at http://www.shipwithnosails.com or Ness at http://www.TheGirlWiththeFiveLads.co.uk ?).  But it is through these lovely ladies such as Amy at http://www.SmilesintheTrials.wordpress.com that I have drawn support & understanding and new friendship.  A year ago I would never have imagined that there would have still been any interest for what I might post or tweet, but here I am, still writing, making birthday cakes when I can and more importantly still holding my head up high…..well most days!

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A year on out for Lucy’s birthday
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With 3 generations….birthday girl with mum and grandma

 

Obscure diagnosis – postural tachycardia syndrome | Feature | Pulse Today

I wrote about my visit to the cardiologist last week, and as an Ehlers Danlos bendy with chronic pain and other strange symptoms including fainting, I found this article by a UK based GP to be easy to read and understand.  At the moment I’m not sure what I will be labelled with, but the more I read the more i am able to join the dots on a variety of symptoms from over the years – for instance the strange discolouration in my feet and calves as a teenager that looked like fluid pooling, for which my GP prescribed circulation tablets.  Just last week during the hot weather, every time I let my hands lower below heart level they turned purple, then navy whilst swelling with bumps resembling varicose veins!  See lovely pictures of my swollen hands – fortunately I was able to pull all my rings off before it was too late!File 26-08-2016, 12 56 25 File 26-08-2016, 12 56 52

 

Our series continues as GP Dr Lesley Kavi discusses this lesser-known condition.

“Recognising disorders of the autonomic nervous system is a challenge for GPs. Symptoms can be subtle, non-specific and mimic other conditions (1). Yet dysautonomia can be a source of considerable disability and poor quality of life for patients. The postural tachycardia syndrome is no exception (2)”

See full article at Source: Obscure diagnosis – postural tachycardia syndrome | Feature | Pulse Today

#EhlersDanlos radio drama “Tinsel Girl & the Big Reunion” Part 5

Welcome to the final installment of this BBC Radio play starring EDS UK patron Cherylee Houston.

http://bbc.in/2aL8Dt5

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Cardiology, POTS & Some Enchanted Entertainment

This last week has been a challenge, as I’ve really tried to carry on as a normal mum during the school holidays – and have used far too many spoons. So much for pacing myself.  Those of you who follow my facebook page will already know that I went for afternoon tea with my mum and some friends at the very posh Cannizaro Park, Wimbledon.  We were c
elebrating the 80th birthday of a family friend and I was delighted to be able to enjoy the afternoon – and to be able to wear a dress that I haven’t been able to get in to for a while.

So to those all too frequent swoony moments (no hunks involved sadly) and one story that File 24-08-2016, 17 01 22I put on facebook.  The weather has been beautiful, but has left me with massive dizzy spells and faints – I even managed a fantastic one during a short dog
walk the other day! I knew I felt rough, so Duncan called home for a teenager to come and help get me along the road. By the time Olly came wandering along I was just coming round on the pavement….what do you think he did? Straight to the dog to check he was ok!! Forget the blasted dog, what about your mother sprawled on the pavement?? Dunc says I’m not allowed out again…

 

 

 

This week has included a hospital trip to see a new consultant in a different speciality – cardiology.  The neurologist had recommended that I be seen as she felt, along with me, that the faints are not epilepsy related but probably a dysautonomia condition.  It probably wasn’t a bad thing that it was a warm day and as I wasn’t seen until late afternoon, I was feeling pretty rough.  I was lightheaded and massively fatigued.  Twelve lead ECG first with a new cardiographer and then the usual wait in a corridor.  My blood pressure was taken on a dynamap(always think a proper sphyg better) in the corridor and, not surprisingly, was elevated – well for me anyway, as my BP is normally on the low side.  The cardiologist was great.  He seemed to have a sound understanding of Ehlers Danlos, wanted to know about childhood issues related to it, when & where I diagnosed (University College Hospital, London) and what heart investigations I had already had…..answer: none since childhood.  He seemed slightly surprised, but went through some of the common issues of leaky valves, postural issues, thyroid levels, palpitations and then took a lying animages (3)d standing BP.  Whilst there was no significant difference with this (and I thought he nay think I’m making it up), he could see that I couldn’t stand up straight – it feels like I’m being pushed backwards, although I’m told I fall forwards. Weird! Anyway, he believes me enough that he has ordered a tilt table test (exactly as it sounds, but the patient is left lying flat for considerably longer than an outpatients lying/standing BP and injected with nitrates etc to observe reaction when tilted to angles which will induce symptoms. Can’t wait!), bloods and a 5 day heart trace.  He mentioned postural orthostotic tachycardia syndrome (POTS) and that postural circulatory issues are a symptom of EDS – which I knew, but had been concerned that he might not recognise!  More news as it unfolds.

 

The light entertainment has been enjoyable but tiring.  I have been writing this post for days now, but the fatigue and brain fog have taken over!  Duncan had bought tickets for my mum and I to visit Cadogan Hall in London for the concert “An Enchanted Evening” – with Lesley Garrett, Ruthie Henshall, Gary Wilmott and Michael Xavier (I have copied my short review to the books & reviews page). download (2) Public transport is a nightmare for me these days and I can’t manage the journey home after a show, so Duncan drove us up to Sloane Square where we managed to get the one and only disabled bay.  This is where I feel so guilty as my husband came to dinner with us – really could have done with a wheelchair to get to the restaurant- and then took himself off for the couple of hours that we were being enchanted!  Our darling eldest son was also in London for the evening and eventually called his father to invite him to join his group for drinks – because he felt guilty.  Too late, student engineer – Dad was already headed down the Kings Road for the Curzon and a performance of the new David Brent film. Of course Duncan spent many years working on THAT Slough trading estate! Office fans will understand.  Without him I just would not have been able to do this night out, and for that I am so grateful.

We had a lovely evening as a family with our dear friends Evi & David over the weekend too – they have been a major support to us in so many ways for all the family, and this is ongoing.  Evi and I are just massively relieved that David & Duncan have found each other – kindred spirits in their love of Prog Rock music, meaning that we don’t have to listen any more (sorry, boys!).  Then, bam!, it hit me.  The fatigue, the pain – everywhere, the swelling of my feet and hands…..here comes another PJ day!  I’m so sorry, I can’t come out today….

 

Ehlers Danlos Radio drama “Tinsel Girl & the big Reunion” Part 4

Part 4 of our “zebra’s” drama – how will Maz fare today?

http://bbc.in/2aUCNi2

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Ehlers Danlos Radio play “Tinsel Girl & the great Reunion” part 3

Next installment of Maz’s story – how will it work out with new best friend Veronica?

http://bbc.in/2aStHii

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#EhlersDanlos Radio drama “Tinsel Girl & the Great Reunion” Part 2

Hoping that you enjoyed the first episode of this radio play about Maz, who is a young woman who has a thirst for life and just happens to need a wheelchair to get about as she has EDS – so I’m going to post each episode link daily this week.  Please remember that the episodes are only available for a set number of days, so download them all now and listen at your leisure!

http://www.bbc.co.uk/programmes/b07m5gwp

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#Ehlers Danlos radio drama “Tinsel Girl and the Big Reunion”

Whilst scrolling through the BBC iplayer earlier searching for a good drama to listen to, I came across this series with the introduction “An uplifting comedy drama about the lifes, loves and misadventures of wheelchair user Maz”.

I was pleasantly surprised when I heard that main character Maz has a genetic condition that affects her connective tissues called Ehlers Danlos syndrome.  It makes me hope that the syndrome is becoming more widely known and recognised in the mainstream.  Actress, fellow zebra and patron of Ehlers Danlos UK, Cherylee Houston plays main character Maz.

Follow this link for Episode 1 of “Tinsel Girl and the Big Reunion” by Lou Ramsden

http://bbc.in/2aC2wIX

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