Some Ramblings for January Prompts with A Chronic Voice

Every month I have great plans to take part in link up parties and then life seems to get in the way of writing.  One link up that I particularly love is Sheryl’s on A Chronic Voice where she gives prompts aimed specifically for people living with chronic illness to express themselves and share experiences.  January seems like the perfect month to join the party again…..so here goes!

january prompts

Dedicating

This is a great prompt for a new year isn’t it?  It could also be very cheesy!

I think that I would like to be dedicating more time and energy to working with fellow bloggers this year.  Sometimes I see others who give so much of their time to commenting on and sharing the writing of others (Sheryl at A Chronic Voice, Caz at Invisibly Me, Esme at Esme Salon, Sue at Sizzling Towards Sixty – to name but a few) that I feel a bit inadequate in my feeble attempts.

So maybe I should say that I will try dedicating my own time to working effectively and to stop procrastinating.  I had a teacher at school (Latin) who used to ask us “what is the thief of time” to which we 11 year olds would chant “pro..cra..sti..na..tion” without having a clue what it meant. Sir…I get it now!!

 

blog

Establishing

I really need to start establishing some proper self care routines that will see me through both the good days and the bad days.  For me self care revolves around reducing stress levels, which in turn will help keep the pain at bay.   At the moment “self care” – healthy eating, regular exercising (in our neighbours’ gym – so lucky!), pilates, meditation, mindfulness, rest etc etc – or maybe I should just say putting myself first in my schedule, well it seems to come way down the list of priorities and almost feels rather decadent.

 

love begins at home

Breaking

I’ve written before about chronic pain and illness being my constant companion and there are so many times that it feels like my companion is putting up barriers for me or tying me down in knots.  I want to be breaking through barriers and ties, physical and mental, that are holding me back and stopping me from feeling like the person I used to be, being the person I can be.

 

barrier

 

This might mean breaking some of the rules that I self inflict and wrap myself up in – one is the need for a clean, tidy house!  The biggest problem is that my idea of clean and tidy does not quite match with the rest of the family……this causes me more stress than anything else, and whilst I will try to be more laid back, this will be a tough one for me to break!

Breaking crockery is also something I’d like to do less of in my kitchen!!  Dislocated wrists and thumbs frequently equals dropped plates and mugs……BREAKING!!

Strengthening

Strengthening has to apply to my core!!  Whilst I was still mobile and fit, I practised yoga daily and attended classes several times a week, and had even been asked to train as a yoga teacher by my teacher!  My back has been troublesome ever since my surgery aged 21, so it has been important to keep my core muscles strong to support my weak back.  I wouldn’t boast a 6 pack, but I had a very flat stomach which pinged back after each of my 3 caesarian sections!  But….since turning 40 and my mobility and health have gone into free fall, those core muscles have gone into hiding……apparently muscle memory is a thing, if I can only coax them out.

 

stomach

Allowing

I am not very good at just allowing myself “to be” – to accept my own limitations that come with my condition, to acknowledge the bad but to celebrate the good.

I want to allow myself to take a rest without beating myself up; allow myself to say “no”; allow myself to sit and just be without feeling guilty.  Most of all I want to allow myself to accept my conditions, warts and all – accepting is not a weakness, I believe it is a strength and liberating!

 

to be

 

So there we have it – my ramblings to add to the thoughts and writings of other bloggers that can be found here on A Chronic Voice. I hope you enjoy them all.

Update….as I type I have a new cleaner in the house – a lovely lady who works for a friend who said she could fit me in…..hurray.  Now I just need to make sure I don’t fall into the trap of cleaning before she comes – just nagging the kids to make sure that the floors in their rooms can actually be seen to vacuum!!

Claire x

Monday Magic – Inspiring Blogs for You!

How often do you have those weeks when life seems to have sped by and yet you’re not sure what you have done in that time?  I made a birthday cake with a robin theme – birds that is…..not Batman or Bristol City football club (me to hubby: “why on earth would I make a 7 year old little girl a Bristol City football club cake? She’s not a football fan and lives nowhere near Bristol” – he supported them as a child and still does!).  img_0349We went out for a family Chinese for hubby’s birthday as my brother and nephew were here – this birthday rolls on and on. I started another blog post – wrote the majority of it in fact, but never quite got it finished (one for later this week) – and I cancelled plans a couple of times. Oh….and I had several sleepless nights.

alarm clock analogue bed bedroom
Photo by Pixabay on Pexels.com

It never fails to amaze me just what sleep deprivation can do and when that insomnia is down to pain the resulting fatigue and drain is even worse.  Now I look back at the many sets of night shifts and then a period working continuous nights when the kids were young and wonder how I did it….much like any other shift worker.  The constant tiredness must be akin to constant jet leg, but without any promise of far off sunny climes!  I did get phone calls from school on more than one occasion back in the day when I had slept through my alarm and failed to pick my kids up from school.  It is one thing dropping off at 8.30am in your PJs and boots, but quite another thing picking up inn your dressing gown at 3.30pm!

monday magic inspiring blogs for you! (4)

 

My own blog may have failed to spring any new writing over the week, but I have managed to read some great posts that did make the light of day.  I have found some great new and very different bloggers on a couple of meet and greets (Danny’s Dream Big Dream Often and Esme’s Senior Salon) as well as some familiar faces.  So sit back, enjoy some you time and get stuck into some fabulous reads.

https://tinybuddha.com/blog/how-going-offline-for-10-days-healed-my-anxiety/

https://michelemorin.wordpress.com/2019/01/17/standing-on-the-edge-of-inside/

http://www.christafairbrother.com/my-word-for-the-year-courage/

https://pinkfortitude.com/random-acts-of-kindness/

https://italiangoodness.net/learning-how-to-cook-italian-food/perfect-risotto/

bowl chinese close up cook
Photo by Pixabay on Pexels.com

https://treesmendus.com/4-unexpected-tips-for-living-longer-with-chronic-disease-i-want-trees-please/

https://amykinsblog.wordpress.com/2019/01/20/dust-of-snow/

https://lifeattheintersection.com/2019/01/21/what-can-white-people-do-to-support-racial-justice/

https://everydayaspie.wordpress.com/2019/01/21/a-stranger-in-my-home/

https://spiritualdragonfly.wordpress.com/2019/01/19/growth-%F0%9F%8C%B1/

Please like, comment and share!

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

We are already half way through January and in the PainPals house this means that a significant birthday has been celebrated by the hubby.  I couldn’t say anything in my last post as I had booked a surprise weekend away and he reads these blog posts!

monday magic inspiring blogs for you! (3)

For those of you who know me or live with a chronic health condition yourself, you will know that planning any sort of trip away is tricky.  The variability and unpredictability of symptoms and general wellbeing can make it difficult on a day to day basis – so it felt like a risk to book a trip away and I wasn’t confident enough to look too far afield.  We haven’t taken a holiday abroad since before I was disabled from work, and an annual holiday is a thing of the past for many reasons.  So it was with some trepidation that I plotted with the family and arranged a couple of nights away in a haunted 15th century inn on the coast in East Sussex.

Hubby had no idea!  We all managed to keep it a surprise and let nothing slip, only letting on the night before we left.  I had seen a review on the Mermaid Inn, Rye on Kerry’s blog Kerry’s Life and Loves and fell in love with the history and photographs of this historic hotel and town.  “How on earth will you manage on the cobbles and all those hills?” asked my mum, alongside a nagging little voice saying the same in the back of my head, but the bloodyminded side of me was determined to enjoy just a couple of days.  Sometimes it is so important to throw caution to the wind and let the chronic illness take a back seat, whilst “normal” life takes over! The inn is everything that Kerry promised – steeped in history, former residents include Elizabeth I, Shakespeare and Elizabeth the Queen Mother to name but a few, and the beams, low doorways and open fires are all other worldly.  The maze of tunnels beneath and around the inn were thought to have been used by smugglers and it is rumoured that several inhabitants are of the ghostly variety!  No strange happenings on our watch….

Hubby was in for another surprise as we were shown to our room – he was not going to be allowed to forget his special age with the enormous helium balloons that the young engineer had arranged.  With the low beamed ceilings they took up nearly the whole room….did I mention that he had also arranged for a bottle of champagne to be chilling?!

 

 

We had a wonderful meal in the restaurant and the staff were all friendly and accommodating – even if they did wonder why this woman who was struggling to walk had booked to stay in really old building with steep stairs and no lifts!!  I managed though….even walking for some of the day in Rye on Saturday.  A word of warning – Rye with its cobbles and hills really is not wheelchair friendly!

 

I still find it frustrating that I couldn’t manage a whole day out and we spent Saturday afternoon watching a film in our room, but pacing is the name of the game.  This allowed me to go out for dinner Saturday night – to a lovely new restaurant called The Devil in Rye, which overlooked the gardens and walls of the ancient monastery – and then we spent the rest of the evening listening to jazz in a neighbouring Champagne & Jazz bar.  So grown up, nearly sophisticated and great fun.

 

It is a shame that I then slept for long periods on Sunday and all this morning, but sometimes it is worth using up all those spoons in one go.  So Monday Magic is teetering into Tuesday as I catch up from my slumbers……but I have found some blogs for you (even one about Elizabeth I) and hope that you will sit back and enjoy!

https://www.radiantnubeginnings.com/smile/

https://helensjourneysite.wordpress.com/2019/01/09/wellbeing/

https://despitepain.com/2019/01/11/how-to-help-doctors-listen-and-understand-better/

https://invisiblyme.com/2019/01/10/12-life-changing-reads-2019/

https://playdatesparties.com/how-to-get-motivated-to-clean-when-overwhelmed-by-mess/

https://www.eclecticevelyn.com/include-yourself-in-your-schedule/

https://notesfromtheuk.com/2019/01/11/professional-hazards-of-being-a-virgin-queen/

https://christiehawkes.com/forgiveness-starting-2019-with-a-clean-slate/

https://wehavekids.com/parenting/Encouraging-Children-to-be-Independent

https://www.momfever.com/2019/01/a-positive-way-to-look-at-january.html

Please follow, like and share these bloggers! By the way we somehow managed to wedge the balloons in the back of the car, around the wheelchair, and they are now adorning the lounge!

Have a great week,

Claire x

 

My Guest Post “Claire’s Story” on Young, Sick & Invisible

To start the new year I am honoured to have had my health story featured on the blog “Young, Sick and Invisible”.  I do know, painpals, that I don’t strictly fall into the group “young”, but Bethany who writes the blog does and is a pretty inspirational young lady, so please have a look at some of her posts and her regular guest blogger post.

guest post claire's story pin

So if you feel like reading a bit more about my Ehlers Danlos Syndrome and chronic pain – and to see some very glamorous pictures – have a look here where I answer the following:

1. Who are you? Name. Engaged/ Married Any children/grandchildren? Give as much or as little information as you feel comfortable with.
2. What Chronic illness/illness’s is it you have ..? With a brief description on what it is/what they are
3. What did you love doing before you was diagnosed ..?
4. Are you still able to work (explain briefly what you do and if you’ve have to lower hours because of the illness/illness’s)
5. When did you first develop the chronic illness/illness’s (or think they started – what were the beginning signs)
6. Was the diagnosis easy or not ..? – also explain how you was diagnosed and any struggle you had
7. Did you search the internet looking for help ..?
8. Where do you flare ..? – describe a flare
9. Try and describe the pain (maybe even using a metaphor like (Raynauds is like being sunk deep into ice numerous times a day)
10. How long do you flare and how do they affect you ..?
11. How do you manage/cope with the flares ..?
12. What are your main triggers ..?
13. What medicines/supplements do you take ..? (Briefly explain ones you have tried but don’t/do help)
14. What is your biggest tip for those who suffer from the same illness/illness’s as you ..?
15. How has your illness/illness’s impacted your life ..? (Positively and negatively)
16. What has it stopped you doing ..?
17. How has it impacted on your friendships/relationships ..? (If it hasn’t then don’t worry about this question)
18. How do you stay positive ..? – what has your illness/illness’s allowed you to do or become (positive) for example have you become more understanding ..? You might have stopped work but learnt to spread awareness ..?
19. What is your hope for the future ..?

Guest Post: ‘Claire’s Story.’

January 1, 2019

Claire S.

Hi all, I’m Claire Saul, married to Duncan, 3 children aged 22 (boy),19 (boy), 16 (girl)

I have Ehlers Danlos Syndrome with POTS (postural orthostatic tachycardia syndrome) chronic pain & nerve root damage, migraine, gut motility problems, Raynauds

The EDS is a genetic condition of the Connective tissue – my body produces faulty collagen – so it can affect any part of the body that contains connective tissue.  Normal connective tissue is like elastic, EDS connective tissue is more like chewing gum. I have regular dislocations, particularly my hips and shoulders – I started dislocating aged about 8.

POTS is condition that affects the circulation on changes in movement, temperature.  When I stand up my blood pressure drops, meaning my heart has to beat quicker and harder to get blood round the body – but the circulation to the brain is reduced, causing me to pass out!  This can happen when I stand up, get out of the shower or when the weather is hot/sunny. My hands and feet turn purple as blood pools in them.

Before I was diagnosed I loved my job as a palliative care nurse, I loved socialising  & hosting dinner parties – dancing and going to yoga classes! I am not able to work – I was a palliative care nurse, but due to the chronic back and leg pain was medically retired due to disability.

EDS is genetic so I had signs from an early age – “knocked knees”, flat feet, dislocations, poor coordination, pain, headaches (prob early migraines) all before age 10, then during my teens dislocations increased, def migraines, fatigue, circulation probs (now realise POTS), Raynauds and “growing pains” IBS. Aged 21 a disc ruptured in my back and went into cauda equina (foot drop, severe pain, bowels and bladder not functioning) – had first back surgery. Chronic back problems – started here with nerve root damage

My shoulder pain was increasing and preventing me from doing some normal activities, so my GP referred me to the Hypermobility clinic at UCLH (Prof Graham’s clinic).  I was lucky that then a secondary referral from a GP was accepted – it has changed now and the patient has to be referred from another hospital consultant (tertiary).

The actual diagnosis was easy as I fulfilled so many criteria and my mum had gone with me so was able to give family history.  Although she isn’t formerly diagnosed, we can see that both she and my grandma when she was alive have symptoms.  I was given a diagnosis very quickly,  but no support or follow up – was told that my management needed to be local.

But the time it took to join the dots of various illnesses was not easy. I was finally diagnosed aged 42

To read the rest of my answers to Bethany’s questions visit Young, Sick & Invisible here!

Thank you so much to Bethany for having me as a guest blogger!

 

Monday Magic – Inspiring Blogs for You!

monday magic 7th jan

Today is the last day of the school holidays in our house and the last week of the uni holidays.  So whilst the lovely girl prepares to return to school (in not the greatest of humour it has to be said but with a new haircut – 4 inches of her lovely blonde hair cut off!), the politics student is allegedly revising for exams and the young engineer has become an employer today.  I can’t quite believe that our little boy, the young adult who acts so daft at home, is now an IT entrepreneur with a business partner and an employee….I guess all parents must feel this at some time.

black and white connected hands love
Photo by Pixabay on Pexels.com

For our house, a sign that the new year is well and truly under way is when we reach the birthday of my best friend’s daughter on the 10th and hubby’s birthday on 11th January.  We went to the Pizza Express part of the 9th birthday party yesterday, deciding to skip the ice skating at Hampton Court Palace to avoid  the cold – and yours truly was the “best auntie ever” for the cake. This year I was tasked with “A Series of Unfortunate Events” for the theme, and fortunately my mob have all read the books and watched some of the Netflix show.  My lovely girl helped with painting the decorations on the sides and we were very pleased with our efforts, particularly when all the party guests recognised the characters.  This year is a big one for hubby (and me too later in the year – yes, 21 again) but more of that next week!

I wrote a long post for the Versatile blogger award yesterday and tagged various bloggers (who I thought hadn’t been nominated before) so I’m sharing one of each of their posts with you today. So grab a cuppa, relax and enjoy!

https://ginlemonade.com/2019/01/06/disabled-parenting-problems-this-might-become-a-series/

https://fancypaperblog.com/2018/12/01/the-band-when-theatre-causes-time-travel/

https://mydailyjournalonline.com/my-2018-journal-expectations-vs-reality/

https://debs-world.com/2018/04/08/what-ive-learnt-from-surviving-a-school-trip-that-went-terribly-wrong/

https://www.awalkandalark.com/exploring-hyogo-kinosaki-onsen/

https://www.ajourneythroughthefog.co.uk/2019/01/the-personal-hygiene-challenges-i-face-living-with-me-cfs/

https://www.brainlesionandme.com/embracing-the-warrior-inside/

https://mymedmusings.com/2019/01/07/little-things-do-matter-especially-when-living-with-chronic-illness/

https://trend-able.com/roll-on-face-masks/

https://www.sizzlingtowardssixty.com.au/new-year-evolution-not-resolutions/

https://kerrylifeandloves.com/2019/01/02/my-european-travel-wish-list-2019-edit/

https://pamelajessen.com/2019/01/05/chronic-pain-post-holiday-blues/

https://trippingthroughtreacle.com/chronically-strong-music-to-give-you-strength/

https://libertyonthelighterside.com/why-is-world-environment-day-important/

https://jaipurthrumylens.com/2018/12/08/jaipur-sunrise-winters-nahargarh-fort/

Have a great week,

Claire x

 

Monday Magic – New Year Inspiring Blogs for You!

New Year’s Eve 2018….how did this happen?  The year has flown by.   I remember as a child hearing my grandmother and her sister saying that the older they got the quicker time flew, and I didn’t have a clue what they were talking about.  Now with each passing year, I understand them more and more – I even sound like them!

New Year Blogs

This last week of 2018 hasn’t gone quite to plan – just the usual faints, dislocations, pain and kids! – but does any festive season?  A highlight to kick off Christmas was a visit to watch the Bolshoi ballet performing The Nutcracker – Mum and I might have been watching in our local Odeon cinema, but the joy of live streaming meant that we were able to watch as events unfolded live direct from the Bolshoi theatre in Moscow.  We were blown away by the host who skipped from Russian to French to Spanish to English without drawing breath, I was exhausted just trying to keep up with her but the dancers were something else as they twisted and turned to the classic Tchaikovsky score.

This year a first in our house happened as Santa got fed up with waiting for the last of the youngsters to arrive home, probably getting into bed at the time that they would have been getting up only a few years ago and so the stocking delivery was made at 8am Christmas morning.  IMG_0311It comes to something when mum and dad are sat sipping coffee and waiting for the kids to emerge!  Another first was the grand outing of the new power wheelchair to make the trip to my parents’ for our Christmas meal.

There was much hilarity, particularly on the way home as my joystick skills left a bit to be desired……

IMG_2121.JPG

Here I sit on New Year’s Eve in my PJs watching Madness on the BBC and the fireworks along the Thames in London and although I may have had to miss a party, I can still raise a glass of bubbly with hubby (kids all out!), find some great blog posts to see you into 2019 and wish you all a very Happy New Year!

https://ifitbringsyoujoy.com/make-life-better/

https://ginlemonade.com/2018/12/16/the-christmas-cow-year-in-review/

https://mymedmusings.com/2018/12/09/loving-moments-of-life/

https://trend-able.com/cocktail-party-survival-tips/

https://a30minutelife.com/resolution-new-year-2019/

https://www.novemberschild.com/2018/12/13/dreams/

https://www.realmomlife.com/my-word-for-2019-happier/

https://retirementtransition.blog/2018/12/16/unrealistic-expectations/

https://www.mycupofcocoa.com/favorite-reads-2018-edition

http://liferedesign101.com/2018/12/18/how-to-get-a-week-of-happiness/

Have a great 2019,

Claire x

 

Monday Magic – Christmas blogs for you!

The tree is up, new lights adorn the outside of the house and the Christmas cards are written.  The young engineer returned home and found glitter and sparkle adorning the house – much to his disgust….Mr Grinch!!  but then he has the cheek to criticise the lights in our hallway – too bright, too harsh – and presented me with a box of soft white lights to use instead.  Not a “I’ll change them for you, Mum” but rather a “put these up – they’ll look nicer”.  Needless to say the lights have not been changed.

IMG_2110
Not my house…..but on our estate

This weekend brought the return of the middle child – the politics student – home from university for Christmas.  An enormous suitcase returned on the coach with him and I have a sneaky feeling that his entire wardrobe is in there ready for the washing machine.  I wonder how quickly the clothes will make their way downstairs and into said washer?  Hopefully before the smell invades the rest of the house!

Hubby and I have worked our strategy for the Christmas shopping – early, local trips that don’t last too long and then home to collapse for the rest of the day.  I think that he will find himself doing more of the wrapping this year!  A couple of achievements have been that we managed my old school carol service last week and a family meal out last night with our kids, the eldest’s other half, mum and dad, and my brother and nephew.

IMG_2094
What is my eldest doing to make his cousin’s face glow like that?!

The preparations for Christmas can be stressful – the food, family dynamics, shopping, expense, parties, having enough hours in the day. If you read my post yesterday – a letter to my chronic illness – you may have some understanding that this stress can be so much worse when paired with health problems, physical and mental.  Amongst the posts this week are several offering suggestions to help cope with stress, to plan and to make checklists.  There is a fab post of creepy Christmas legends, some wonderful magical moments and some lovely Christmas poems.

Christmas blogs pin.png

So grab an eggnog or some mulled wine, sit back and with a week to go enjoy some great Christmas posts.

https://www.navigatingthestorms.com/fun-things/holidays/stressed-out-for-christmas-excited-planning-helps/

https://www.brainlesionandme.com/christmas-analogy-for-spoonies/

https://www.achronicvoice.com/2017/12/17/holiday-checklists-spoonies-supporters/

https://www.awalkandalark.com/merry-christmas-blogging-friends/

https://fancypaperblog.com/2017/12/09/ten-ways-christmas-is-lovelier-than-last-year/

https://safemindspace.home.blog/2018/12/15/creepy-christmas-legends-and-customs/

https://debs-world.com/2018/12/16/my-25-day-countdown-to-a-happy-christmas-2/

https://justmuddlingthroughlife.wordpress.com/2018/12/04/christmas-stresses/

https://susielindau.com/2018/12/13/recapture-the-magic-of-christmas/

https://pamelajessen.com/2018/12/16/seasonal-poetry/

Please like, comment and share!

Have a great week,

Claire x

Monday Magic -Inspiring Blogs for You!

How are your Christmas preparations going?  Are you the type of very organised person who has already bought and wrapped the gifts?  Or maybe you are more like our household…..

Vienna pin

 

The lovely girl has just returned from Vienna where she and class mates enjoyed a trip to the Christmas markets and the historic city.  When I asked her if she bought anything the answer was an incredulous”no”…. why on earth would you think to buy any gifts in a Christmas market?  But she did have a fantastic time, returned exhausted and is now full of cold!  Despite now earning money, Christmas shopping will pass the young engineer by completely until I get a panicked call on the 23rd or 24th December asking for ideas for everyone and “also, mum, do you have any wrapping paper?”.  Our politics student isn’t due home until next week and has several pieces of coursework to hand in by the end of term – I believe it is known as pulling all nighters or as lastminute.com!  He has always been the best at organising Christmas shopping but with his current lack of finances……..

Vienna
Vienna taken by the lovely girl

Then are the Christmas cards to write and post.  “Kids do you want some cards to send to friends/customers/family? Maybe you could help me write some” “Mum, why would I want to do that?” “No one sends cards to each other!!” – you get the picture, although they did work out that sending cards to customers on their newspaper rounds could result in Christmas tips.  So we in the PainPals household are not evenly slightly prepared, although hubby and I did purchase some new lights last week and counted the vast number of houses already well adorned on our trip up to London on Saturday night.

 

shallow focus photography of yellow star lanterns
Photo by 嘉淇 徐 on Pexels.com

This trip to Westminster was my big achievement of the week as hubby and I went to see the very talented Katie Melua in concert, supported by the Georgian Gory women’s choir.  Together they made sounds that were almost too pure to be human voices – absolutely stunning!  Yours truly made a new friend in the form of an elderly lady as we found our wheelchairs parked up close and definitely in each other’s personal space.  She couldn’t understand why the choir weren’t singing something more “jolly” for Christmas – I did try to explain that Katie Melua sings a particular type of popular music and the choir back her!  Her ticket had been booked by a well meaning son and she had no idea what she was coming to see, but we had a giggle!

I have been gathering some more Christmas related blog posts for you over the week and hope that you will find something here to enjoy!

http://www.thisautoimmunelife.com/2018/12/05/gingerbread-hot-cocoa-mix/

https://zebrapit.com/2018/12/03/support-spoonie-businesses-this-holiday/

https://rachaelstray.com/christmas-wreath-making-workshop-ad/

https://trippingthroughtreacle.com/tips-for-a-frugal-and-ethical-christmas/

https://brookeclarke.com/fashion/what-to-wear-for-your-christmas-party/

http://caseythecollegeceliac.blogspot.com/2018/12/33-gluten-free-christmas-cookie-recipes-for-holidays.html/

https://invisiblyme.com/2018/12/02/giftguide2018/

https://www.theworldseesnormal.com/the-world-sees-normal/2018/11/24/the-holiday-season/

https://wheelescapades.com/2018/11/25/festivities-and-kindness/

https://christmascountdown.co.uk/4-ultimate-christmas-pudding-recipes/

https://reclaiminghope.blog/2018/11/30/adjusting-expectations-when-things-dont-turn-out-as-you-planned-5-tips/

https://ruralgreystar.com/christmas-gift-ideas/

christmas cookies
Photo by rawpixel.com on Pexels.com

Please comment, like and share posts for these fab bloggers.

Have a great week,

Claire x

Monday Magic – Inspiring Blogs for You!

It is December and many households have begun the month with the opening of Advent calendars.  Gone are the calendars of my childhood where a picture of an angel or a sleigh nestled behind a cardboard door, to be replaced with calendars filled with chocolates, beauty gifts and some even alcoholic delicacies.  For the first time in years I am the only one in the house with a calendar and mine contains pamper gifts, perfect for a chronic spoonie who is in need of a bit of “me time”.  To the embarrassment of the adult kids, I am posting pictures of the lovely little bottles of niceness on Instagram each day!

Monday Magic Inspiring Blogs for You! (2)

This week hubby and I had a double cause for excitement on a night out into London.  It was a Christmas/thank you drinks evening hosted by the young IT engineer and his business partner in the 5cc bar situated in the grade II listed Singer sewing machine building in the City, London.  As “the parents” it felt rather surreal!  Our boy turned into a man in front of our eyes as he and his partner spoke with the investors, clients and share holders for their new tech enterprise.  Whilst the young engineer lacks in confidence in his ability to speak with people yet speaks “computer” as a native tongue, his partner compliments him beautifully with a personable, confident, easy manner and effortless, articulate way at speaking with and putting others at ease.  Hopefully their combined ideas, IT acumen and youthful ambition will be a winning combination for a successful venture – just don’t ask me to explain what they are actually doing!!  We were very proud parents – who actually didn’t put a foot in it, at least not too deeply, and were actually described as “cool”.

IMG_2052
Flaming Singer Zombie cocktails bought for hubby and me….by our son!

 

This was our very first venture out on the train with my wheelchair!  We have tended to drive into London since my mobility had decreased and pain increased, but the thought of driving into the City at rush hour and then seeking out a disabled parking bay was not appealing.   We travelled on the Thameslink line, which is a newer line and as such has modern trains with designated accessible carriages, and I appreciate that this makes travelling easier than it might be on older lines.  But I can’t fault the assistance that we were given by rail staff – someone was waiting on the platform with ramps to see me onto the train and he phoned ahead so that another staff member was waiting on the platform for us at our destination.  Our journey was comfortable and relaxed, taking a fraction of the time that driving through rush hour London would have…..we will take the train again!

 

Sticking with our December theme, the blogs that I shall share leading up to Christmas will be as wide a variety of winter festival posts that I can find.  They won’t all be about the joys of the season, as for some it is a difficult time, but I hope to bring you some great reading!  Enjoy.

https://pinkfortitude.com/best-gifts/

https://www.chronicmom.com/2018/11/15-thoughtful-christmas-gifts-for-friends-and-family-with-chronic-illness.html/

https://trend-able.com/holiday-survival/

http://www.sewhistorically.com/old-fashioned-christmas-wreath-from-scratch/  

https://piggybankprinciples.com/cheap-easy-diy-christmas-decorations/  

https://joyfullyunexpected.com/toddler-gift-guide-15-toys-under-15/

http://preppyemptynester.blogspot.com/2018/11/a-sentimental-gift-idea.html

https://www.smallworldspreschool.com/christmas-sensory-activities-for-preschoolers/

https://grammysgrid.com/is-it-ok-for-kids-to-believe-in-santa/

https://www.ajourneythroughthefog.co.uk/2018/11/for-many-people-the-festive-season-is-not-a-time-of-celebration/

http://www.sewhistorically.com/victorian-christmas-gifts-for-the-home/

https://www.sizzlingtowardssixty.com.au/25-day-countdown-to-happy-christmas/

https://itoldyouiwassick.info/2018/11/23/perfect-gift-chronic-illness-spoonies/

https://awandafulthing.com/2016/11/28/day-1-hershey-kiss-christmas-cookies/

Please share, like and comment on your favourite posts.

Have a great week,

Claire x

 

 

Monday Magic – Inspiring Blogs for You!

Monday Magic Inspiring Blogs for You!

This post should just about make it to you for Monday – depending upon which time zone you live in!  My brain fog has continued, several painsomnia nights later and an eye/sinus infection have left the blog low on the to do list.  Actually using the computer screen has been a chore with head and eye pain…..then add in my almighty cock up with my drugs and a few hours of pregabalin withdrawal – you get the picture!!

turned on laptop on bed
Photo by Daria Shevtsova on Pexels.com

This week my nephew turned 8 and celebrated with a Laser Quest party for 15 little live wires.  This crumbly Auntie didn’t manage the trip (for the second year running)….but I did manage to make his birthday cake and sent it with hubby, the best Uncle in the world on that day.  For a simple, yet really effective cake that appeals to any kid, young or old, who likes sweets….make a “box of chocolates/jellies/sweets”!  If you would like a post with instructions leave me a message in the comments. One of the worst parts of chronic illness is having to cancel plans for special occasions when symptoms take over.  However watching Strictly Come Dancing with my Mum was probably slightly more relaxing than the aftermath of the party and the subsequent present frenzy!!  I have to just say here – I loved Stacey Dooley’s tango…you won’t know what I’m talking about unless you are a UK Strictly fan!

Screen Shot 2018-11-26 at 23.25.52Screen Shot 2018-11-26 at 23.29.28Screen Shot 2018-11-26 at 23.24.11

I am currently writing another post for you following a special Accessibility day at Gatwick airport last week and probably the biggest excitement to come out of this has been our purchase of an electric wheelchair.  More of this to come.  Meanwhile I have caught up with some blogs today as my vision has improved (have you used that chloramphenicol ointment – eughhh, gunky eyes and stings like hell!) and I hope that you enjoy these posts as much as I have.  I plan a Christmas blogs post, but have included the advent calendar one here as you might want one sooner rather than later!  I have been a very lucky girl and was bought a beauty calendar by my gorgeous friend Holly – lovely surprise gift….I will fill you in on the gifts as I open them!

Sit back, grab a drink and enjoy!

https://www.brainlesionandme.com/the-benefits-of-a-spa-day-for-those-with-chronic-illness/

https://wheelescapades.com/2018/11/17/booking-accessible-tickets-mission-almost-impossible/

https://countingmyspoons.com/2018/11/tips-for-pacing-when-you-have-chronic-illness/

https://ellenbest24.wordpress.com/2018/11/21/there-is-power-in-a-name/

https://www.lifeat139a.com/139a/11/20/my-garden-in-november

https://www.crestingthehill.com.au/2018/11/can-being-sad-be-good-for-you.html

http://www.denysewhelan.com.au/denyse-blogs/my-bookmarks-the-big-hug-box-2018-121/

https://www.eclecticevelyn.com/health-mistakes-to-avoid-for-women-over-50/

https://kippiathome.com/2018/11/14/hot-cocoa-bar/

Cupr of cocoa
From Kippi At Home website

 

http://arosieworld.com/beauty-advent-calendars-christmas-2018

Please comment, like and share!

Have a great week,

Claire x