Great post from Rie – all applicable to me at the moment!
Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself. The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective. Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions. What is often not acknowledged is the tremendous emotional effort it takes for someone to share some of their most painful moments. We do this in the hopes that it will change something in the hearts and minds of our audience. Yet, do we ever actually examine the toll it takes on us?
Once, I had someone ask me if I liked writing so much, why I didn’t I do it more. The quick answer is because it is exhausting. The longer answer is that it is like a small death each time I put…
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