We are all here in the UK, after a very difficult week, enjoying another bank holiday Monday. I don’t want to write anything other than our thoughts and love are with everyone in Manchester.
This week the youngest household zebra has been away on a German exchange trip and has had the most fantastic time. I must give so much credit and thanks to the staff and her host families – particularly for quietly acknowledging that her joint and pain problems might impact upon some of the visits. I think that the visit to caves involved a serious number of steps!! She has returned on a high, despite having her bag & mobile phone stolen, and the whole group of English and German teens are still chatting constantly on a group chat (you can imagine – “how quickly can I get a new sim card, dad??”)…..watch out for the return visits in October.
Today also marks the last Monday in May and so the last in Ehlers Danlos Awareness month. I am shamelessly going to share posts and sites that are all from people affected in some way by EDS – from Vlogs on Youtube, to an author to beauty blogs.
For a little Monday Magic, make a cuppa, sit back and enjoy! Please remember to like, share and comment to make someone’s day!
https://www.facebook.com/search/top/?q=lara%20bloom%20eds# – this appeared on Sky News 28/05/17
I can barely move my legs; they hurt so bad. This is somewhat of a wake up call that I need to A. continue my diet and B. exercise. Tonight was our parents vs. kids soccer game with my 8 year old-C. I decided to go all out so I hit the thrift store yesterday and scored an old-school pair of shorts and an Ohio State Soccer t-shirt for $4.50. I finished off the look with a thick white headband from The Walmart.
After arriving at the field, I asked my friend to take this picture. Do you like it?
Find the rest of the post here: I should have googled how to play soccer
Reblogged from Danny’s Dream Big!
This is a great post from “How To Get On” full of websites and blogs and groups to enjoy. Thanks Lily for putting it together and for including PainPals!!
Artwork: Robin Mead
It’s possible that I have now joined every Facebook group ever created. Here are a few where I have found the moderators to be exceptionally kind and welcoming and a great group of people.
I am sure there are many wonderful groups I am accidentally missing or forgetting. If I left off a group where I post regularly, it was not intentional! Please comment below with any groups you like that got left off this list.
Housebound or Bedbound
Lyme & Disability & Services
Best Email Newsletter Ever Ever Ever
🍄 New free email paper! Please sign up! Peace. Love. Spoons.
ME and CFS
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I have found myself reading a lot of new blogs and posts recently – many that I have found through link /meet & greet parties and others through connecting on instagram, twitter etc! It just strikes me what talented people are out there and also some pretty fantastic writers too. Some of your poetry has blown me away.
So this week I have some very new bloggers to introduce you to along with some well established, but new to me, sites. I hope that some of you newbies will consider looking up the Chronic Illness Bloggers network and joining us – we are a friendly bunch who communicate mainly on our members facebook page! Details here : How to join Chronic Illness Bloggers.
So once again, grab a cuppa, put your feet up and enjoy some great posts – please remember to comment and share if you enjoy them,
Cathy at Ty Siriol Ceramics and Crafts recently posted a short review for this book on pinterest which I thought I would share with you.
The “blurb” from Amazon reads “This is an incredibly informative and reader-friendly book about a common debilitating medical condition that goes largely undiagnosed and untreated. ADRENAL FATIGUE: The 21st Century Stress Syndrome is a very empowering work cram-packed with vital information about a condition that very likely affects millions of people”
Cathy writes “I’ve recently read this book to try to get to the bottom of why I’m so exhausted, among other things. It’s a really good read and helps you to assess if this could be a problem for you as well as giving really thorough advice….” Remainder of her short review is here:
On Amazon the book has received 151 reviews with an average 4.5 stars out of 5.
Meet and Greet party time from Dream Big, Dream Often – join us!
Ok so here are the rules:
See ya on Monday!!
I am really pleased to have been featured on The Zebra Mom regular Friday Feelings feature. Please check it out – and the rest of her great blog! Claire x
Hey there, hi there, ho there!
As it is Ehlers Danlos Syndrome Awareness Month, during the course of May, we will be reading the diary entries of EDS sufferers. Each person experiences their illness differently and I think it will be interesting to see these differences throughout the month.
This week I spoke to Claire from Pain Pals Blog. The mum of two previously worked in health care but medically retired nine years ago. She now works in the education system and enjoys Spoonie friendly hobbies.
“Hi, I’m Claire. I am a married mum of 2 boys aged 21 and 18, and a girl aged 14 living on borders of South London & Surrey, UK. My career was…
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Time for some Monday Magic! I hope that you have all had a great weekend – I think it was Mothers’ Day in the USA, so hope all you mums were spoilt rotten. I was asked by Evie, the lovely Zebra Mom, to take a selfie wearing red and to post it to spread the word about Vascular Ehlers Danlos Disease. We had a very rare moment in our house and I managed to persuade everyone to do a selfie…all 5 of us in one shot!!
I am delighted to be still be finding different blogs from the Chronic Illness Bloggers community to introduce here – please remember that just because we are chronically ill doesn’t mean that we don’t blog about other things too! So sit back with a cuppa and enjoy exploring some great blog reads with me….