Thank you – Inspirational Blogger Award

I want to extend a huge thank you to Barbara McLullich, a freelance writer and blogger, who has awarded me a Most Inspiring Blog Award 2016 on her Back Pain Blog Uk….I am thrilled to be in such esteemed company.


This is what Barbara says about her awards:

Most bloggers, at some point, will have heard of a blog award be it from a professional organisation or from one blogger to another.

After reading on the Word Press Community Pool that ‘anyone’ can make up a blog award and nominate another blogger with that award, I decided I would have a go and make some up of my own.

Receiving any award gives you a bit of a buzz and when I was recently given the “Top Migraine or Chronic Pain Blog Award” I sat and designed my blog widgets and the type of awards I wanted to give out.

All the awards come with rules which the recipient has to follow and although not always the same they are basically

1. This award exists only on the internet, and is given to bloggers by other bloggers.

2. Thank your blogger who gave you the award and link back to their blog.

3. Copy and paste the award on your blog.

4. List 3 things about yourself.

5. Nominate 8 other bloggers for the award and list them.

6. Inform those blogs by leaving a comment on their blog.

With all that in mind my two ‘new’ blog awards are for ‘My Favourite Blog’ award, and the ‘Most Inspiring Blog’ award.

Sooooo check out your comments my blogging friends as some of you may have a surprise coming your way.”

So following the above, 3 things about me

  • I’m a mum to 3 – now adolescents who turn 21, 18 & 15 this year
  • I’m passionate about health care (the nurse in me) and education
  • I love being active in the chronic illness community – I have found so much support, info and new friends through blogging, facebook & twitter
  • Lucy says I need to put a fourth – I make cakes for friends & family! Becoming harder as my hands and wrists hurt more, but this is this week’s offering!file_000-7

My Inspiring Blog Award was such a fantastic surprise …and now I’m off to decide on some more bloggers to nominate.


What does Ehlers Danlos Syndrome look like?

Please just take a moment out of your day to view these remarkable photos that the Ehlers Danlos facebook community have shared with The Mighty in response to the question

What does Ehlers Danlos Syndrome “look like”?

A couple of my own to add to the mix……

Not even doing the full bend here – don’t do this at home!
Standing at home for pics of Lord & Lady Goth….but spent the party in my wheelchair as POTS bad & had just fainted before this!
Pretty one this….slow healing after one of the spinal fusions
Would you know? These 3 all have elements, tho not formerly diagnosed…..chronic migraines, all have mega anxiety issues and spot the bendy arm!

Meet and Greet: 1/13/17

Meet and Greet……find new blogs to follow!
Dream Big, dream often….

Dream Big, Dream Often


Evelina and I are Disney bound so that means…it’s the Meet and Greet weekend everyone!!    

Ok so here are the rules:

  1. Leave a link to your page or post in the comments of this post.
  2. Reblog this post.  It helps you, it helps me, it helps everyone!
  3. Edit your reblog post and add tags.
  4. Feel free to leave your link multiple times!  It is okay to update your link for more exposure every day if you want.  It is up to you!

  5. Share this post on social media.  Many of my non-blogger friends love that I put the Meet n Greet on Facebook and Twitter because they find new blogs to follow.

See ya on Monday!!

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Treat yourself: Delicious Orange Drizzle Cake Recipe

It was Duncan’s birthday last week – 21 again! – and ever since the birth of my old school friend Hazel’s daughter seven years ago, on the day before his birthday, Duncan never gets his own cake.  He usually makes do with some candles on what is left of the Christmas cake! Meanwhile I have made Thomas the Tank, My Little Pony, Totally Spies to name a few and last week created an H2O Just Add Water Mermaid cake for the swim party on Saturday.  Son number 2, the sixth form student, was even persuaded into the water by his godmother (Hazel) to be one of the responsible adults for the 18 children.

With yet another cake in the offing this week – another mermaid, Ariel, for a 5 year old – poor Dunc has gone another year with no cake.  So I thought I would whip up something quick for him today and have the recipe here to share.  It is an old recipe that I have adapted with a bit of trial and error….

Orange Drizzle Cake


6 oz self raising flour

6 oz castor sugar

4 oz margarine

2 large eggs

4 tablespoons milk

Zest of one orange

I love this recipe as it is an all in one method, so just put all the ingredients into a large bowl and mix together.  My preferred method has always been an electric hand whisk for any cake mixing, whether all in one or more classic bakes, as this allows me to “feel” the consistency of the batter.

file_000-5 But since my dodgy EDS ligaments have become more loose and the pain in my wrists, shoulders and hands has increased (not to mention more bones popping into places they shouldn’t be!) I have needed to use a kitchen mixer that free stands on the worktop.  These vary in price massively, but one tip is to try the weight of the bowl and the arm if you have any similar disabilities! I have had several cheaper models and now have a pricier well known brand – burnt the motors out on the first two after a run of cakes!

Bake in a 2lb loaf tin in the centre of the oven at 150 degrees for approx 45 minutes or until a skewer comes out clean.  I usually use a paper cake case to line the tin as this helps with the next stage.  file_000-4Use the skewer to make holes over the surface of the whole cake.  Whilst the cake is cooling in the tin, squeeze the juice of the orange (half if large) and mix with 2 – 3 tablespoons of castor sugar, dependent upon your taste.  Pour this sugar mixture over the top of the cake and leave in the tin to soak through.  The sugar will form a crust over the cake and the cake should be very moist and syrupy.  Enjoy!

I also make this with lemons for the traditional lemon drizzle, which is not as sweet for those who prefer a sharper citrus flavour.  Substitute orange for lemon, and use the juice of the whole lemon.







Cloudy with a Chance of Pain

If you are anything like me this cold weather is causing you & your illness some serious grief!  My nerve pain has been off the chart today and the spinal cord stimulator has struggled to control it.

So…..If you live with chronic pain and haven’t already signed up for this easy research project, then please do……

Cannabis ingredient CBD to be classed as medicine in UK

Following my recent posts reviewing a CBD product and then discussing the legalities in the USA and UK, I have been sent this video and article written by Sarah Hajibagheri of Sky News:

Cannabis to be classed as medicine in UK

There is real concern that the new regulations to be rolled out by the UK regulator could cause real confusion & give mixed messages for the general public regarding the safety and legality of cannabis based products.